Bibby's blog

Not the greatest night I've ever had

2009-08-16T07:11:52Z

What a night.....just been at Frankie's beck and call all night. These steroids just make him a nightmare. He gets so irritable and demanding. Went to bed very early (7pm)....got woken up by him demanding food at about 12. Did that, came on What Now. Then he had spilt Ribena all over his/our bed so at 3am I'm changing a King Size bedsheet on my own. Not an easy task and now my mattrress is stained with Ribena......grrrrr! Went back to bed and of course he was up with the larks. 6am. Bouncing off the wall "come and play mummy" "have this car", "play now"! When really all I want to do is collapse and sleep. He's saying "mummy" about once every 3 seconds, soooooo tiring. I know he's little, I know he doesn't understand, I know he's got leukaemia and I shouldn't be complaining but crumbs....I'm glad I have an outlet that lets me moan. K, x

It's off again...lol

2009-08-15T07:51:05Z

So, it's a steroid week. And he's off...........been demanding food in the night and it's not even 9am and he is asking for chips and nuggets (this is after his weetabix and shreddies). Frankie's face has become bigger already, I'm sure it's not my imagination. I've noticed that the Vincrinstine upsets his tummy. He's been on and off the toilet all night. I'm glad he sleeps with me and I've got an en-suite! Less walking to do in the night. Anyway, he's quite bright and happy. His brother and sister go away with their dad today. I'm sure he will miss them and it's a shame he can't go.

Bibby's blog

2009-08-14T13:27:43Z

So, I'm blogging now.. Some of you know me from chat. I'm a carer, not a patient. My son Frankie...........he's on week 9 of his treatment for Acute Lymphoblastic Leukaemia. He's had such a great week it's been like seeing the old Frankie again. The lively one, the cheeky one. But yesterday he had his Vincristine (chemo) in his line and he's tired and can't get up the stairs. It's awful to see a 4 year old boy go through this. It's awful for anyone with cancer. All he wants to do today is lie on the sofa and watch dvds. I'm hoping the remainder of his hair comes out. Keep getting second looks from people "is that kid bald or not?" I try to remember, it's not all about me. It's not about how I feel. It's about Frank.