baps54

essy2000....scammer??

2011-02-24T16:00:01Z

just received a friend request from the above. she says her name is esther and

she is a very young girl who is happy to be on this site, nothing else. i see others

have accepted friend requests. is she genuine or not!!!

finelove.....another scammer??

2010-12-30T13:14:54Z

anyone know about someone calling themselves Finelove.? Found friend request today but absolutely no info in biography except 'tell you later'!!!!!

unexpected phone call

2010-12-09T12:01:31Z

as some of you know i have a blockage in my small bowel which has been causing me problems, namely being hospitalised 3 times in 2 weeks!! well i had an appt. through to see the colectoral surgeon for 17th dec to discuss the next step and duly noted this on the calender. next day the phone rang and a man asked to speak to susan....took me a while to catch on that was me cos no-one ever calls me susan. the voice turned out to be that of the surgeon who had looked after me so nicely when i was in hospital. he was phoning to find out if i had been ok since my release from hospital, was i following advice, any problems and to fill me in on rsults of mdt meeting and the appt i had been sent. he explained why another surgeon was taking over,apparently the new one is more specialised. he then said that he was on call mon-thurs next week and if i had any more problems i was to get up to the hospital and ask for him and he would look after me. i thought i would post this because i know some of you have had bad experiences of the nhs but id like you to know that we have good experience too.

also there was a worry that i might have mets on my spine but the mri was clear so thats a relief. so if we can just get the little bugger in my duodenum under control we'll be ok.

hugs and kisses sue xxx

a new phrase has entered my life!!!!!

2010-12-03T08:04:45Z

well ive been in hospital 3 times in 2 weeks! they tried doing a colonoscopy but had to stop just short of blockage because it was too painful. my duodenal cancer has grown slightly but they have decided they wont do a bypass on this as it isnt causing me a problem so far. as they couldnt do a biopsy on my blockage theyre going to make decision on ct scans, blood markers etc. so at this point im am to have an op, it could go either of two ways,1) a bypass 2) a stoma. what do you think asked my surgeon .....as needs must a replied. not much else i could say!!! so thats where we're at with my op.

then i went to see my oncologist. he agreed with what had been arranged and confirmed the 'regression' of my cancer. this is when the new phrase entered my life.... 'we are talking quality of life not quantity'.

now im not stupid and the 'inevitable' has always been at the back of my mind, but now it has been put into words and im somewhat freaked out. i wont tell my family until i really need to cos theyre already freaked out, and i know im strong enough to cope with this cos im a stubborn sod, but its still abit of a blow to me.

but hey-ho, life goes on....and on....and on.....so i shall be making the most of it.

good luck and good health all my macland friends

hugs and kisses sue xxx

what a week end!!

2010-11-16T21:02:43Z

friday had been such a nice day!

my tummy had been gurgling and dancing all day, but no problem because im used to that. after avery nice tea it started doing a war dance and there were many volcanic rumblings coming thru my mouth. the rumblings turned into quakes and then into volcanic eruptions of the vomiting kind. after 4 hours of this and enduring acute pain i was 999'd to my hospital on their instructions. i got there at midnight and after morphine, xrays, examinations etc, i was finally admitted to the surgical assessment unit. that was at 6.30 am.

got settled in nicely only to be woken at 7.45am to see if i wanted a wash!!!!

at 9.30am i was sent for an already booked MRI.

at 2.30pm i was sent for a CT scan.

at 5pm there was the surgeon and his team at my bedside explaining i had a blockage in my large bowel which was probably cancerous!!

"we would ideally like to operate" said the chief. the assistants nodded in agreement. there followed a very long explanation of what they would do......two ops in one. thats good i thought, a BOGOF deal. resect tumour in lower right of bowel and bypass duodenal tumour in upper left of my bowel. 10 days at least in hospital...lot of risks....oh well lifes full of those any way. i discussed this with my family, signed consent form and started praying.

sunday morning sent for more xrays (xray girls have now invited me to their xmas party). results good, blockage had unblocked itself sufficiently to delay immediate surgery. delay but not stop. surgeon is to confer with my oncologist to see if he is happy for the bypass part to go ahead.

tuesday afternoon they signed my release papers as i was much improved, however i have to have an urgent colonoscopy/biopsy......something to look forward to.

now i am home. they told me it is very rare to have two different cancers. so i have one rare cancer (duodenal) and a rare situation. now my experience of rarities is that they are either 1) worth a fortune or 2) only worth chucking in the bin. still deciding on that one.

and more to look forward to...the MRI is to see if i have mets on my spine!!

oh well, i cant say life isnt interesting.

hugs and kisses sue xxxx

nodding head/tingling feet

2010-10-11T19:05:55Z

has anyone in macland had any experience of this....when i nod my head i get this strange tingling sensation in both my feet. went to docs today and she is getting in urgently touch with my oncologist for an appt. she wants to rule out that mets havent attatched themselves to my spinal cord but as you can imagine this is a bit disturbing. i would be grateful for any info .

no more chemo

2010-09-15T07:22:19Z

should have had chemo ( ECX ) last week but it was cancelled because my bloods were too low. went testerday to see oncologist as normal who told me i wasnt having any more chemo as it was taking its toll on me. the results of the treatment have been very good and he was amazed at how well i had coped with it. so yesterday was my last treatment 90% of course completed. back today for transfusion and then thats it for 3 months when i go back for consultation. doc says that the cancer will always be there and ive got to be aware of any changes etc which could be difficult as i had it for god knows how long without knowing i had it cos i had no signs/symptoms!!! however, although im pleased with chemo finishing so i can get back to a relatively normal life, its going to feel rather strange too. no more blood tests, meds, visits to hospital, all the things that have become a way of life. and life is what is important....i was diagnosed in march and told without treatment i would be dead by the end of the year. so thank you all the staff at the Derby Royal, you have given me the best treatment, medical and otherwise and thaks to all my family , friends and maclanders for all your support.

hugs and kisses sue xxxx

ray of light 2

2010-08-27T16:11:13Z

some of you read my original post about receiving a 40 p cheque from income support, well today i got another letter advising me that i will receive 10p a week income support paid every 4 weeks paid by cheque!!! im saving this up now for xmas and would like some ideas about what i could do with it!!! lol

looking forward to your comments

hugs and kisses sue xx

a little ray of light!!

2010-08-26T11:30:56Z

i had some good news yesterday.....now dont get too excited. since i have been 'ill' i have been turned down for income support, disability allowance and most others benefits cos i can live on £79.15 pw. imagine my surprise when i received a cheque for income support in yesterdays post for.....40p!!!!!! talk about a waste of money. lol. anyway, feeling a little better today. can actually stand without falling over.

hugs and kisses to all

sue

dizzy, dizzy,dizzy

2010-08-25T10:10:52Z

OMG the past 2 days have been rough. i feel fine till i stand up then my legs go weak and i almost black out. took me 15 mins to make a cuppa this morning which was cold when i finished making it. got to get some brekkie to take my tablets...thats gonna be interesting!!! lol. ill be better tomorrow... i hope. sue

first time blogger

2010-07-29T11:54:26Z

well this my first blog and hopefully not my last. i was diagnosed with duodenal cancer 3rd march 2010. i then saw a specialist 26th march and was told it was a large mass which had spread into my colon and was going towards my liver. withour treatment i would be dead by the end of the year!!!

it was one hell of a shock but it was worse having to tell my family and friends. everyone was so upset but we have all remained very positive and i believe that helps a lot...besides im a stubborn sod and generally do what i want!!!

i had 3 chemo sessions of EOX but reacted badly and now i have ECX which is better but makes me REALLY tired, then i had a scan and a minor miracle had occured.my tumour had shrunk from 9x7.5cms to 3.8x3.5cms!!!WOW, were we all delighted especially the consultant. this is the 1st step in a long battle but one im determined to win.6-8 more chemo sessions and possible op but that may be difficult cos of its position.

to all cancer sufferers out there please stay positive, i know its hard when you feel like s**t but i believe it helps. a good diet eps chicken/fish/fresh veg fruit juices, keep off milk and caffeine and red meat, these apparently feed cancer cells.

keep well and upbeat my friends xxx