babyjane's blog

what a day.

2008-12-13T10:44:30Z

i have had quite a lot of problems lately with mobility, severe arthistis in knees ankles and hips. my macmillian nurse has great.for the short term i have been loaned a wheelchair and walking stick.these past few days have been really bad and havent been able to go upstairs and have been sleeping down stairs.yesterday i went for bone scan which all was going well untill it was fininshed, when trying to sit up my back froze big syle and was in complete agony. to cut it short it took 45 mins to get up and scared me witless.rang gp whom sent out ot for a rapid assessmet team with adaptations to tied me over the weekend and are coming back monday to do full assessment, regarding aids hopefully temporary. i really dont know why this is happening but is really getting me down its like 2 steps forward 5 back. at the begining of the week i was feeling ok even though mobility bad could still get about feels like an hurdle in place every time i turned. will they ever a light at the end of the tunnel. thanks for listening.babs.

can anyone help please.

2008-11-27T17:44:45Z

sorry to be apain but iam really in agony. fininshed rads on tuesday. had review with oncoligist monday asked any adversed side affects.bad cough a bit of breathlessness but awful cronic heartburn. was prewarned about these but never in my wildest dreams heartburn so painfull. mentioned it but just said may get worse before getting better that was it came home in tears so painfull, never slept all night. rang gp day after whom prescribed lansoprozole one per day. on top of that taking gaviscon like going out of fashion helped a little but struggling with eating and drinking very painfull. seems as soon as i swallow feel like its a brick. really hungary but it hurts to much. taking tablets have to crushed to. please any advise at all would be appreciated. thanks babs.

blessed

2008-11-26T09:12:17Z

Hi everyone, I would like to share some very happy news with you all. My youngest daughter 32 told me yesterday she was pregnant. no mean feat since she has been trying for years without any joy. to say she is over the moon would be and understatement . Iam so thrilled watching over the years her siblings getting pregnant her adoring her nieces and nephews when iam sure a little part of her was devastated. words cannot the joy and love in her eyes when she told me. Iam so so pleased and proud of her. now i do really have to get rid of this vile and repulisive thing growing inside me. Sorry i havent told her about my condition she thinks its bone and mobility problems. i have tied myself up in knots and dont know how to get out of it. It is going to deverstate her so i would rather keep quiet for time being unless there is some excellent news about this radiotherapy. love Babs.

is this the turning point.

2008-11-20T10:11:19Z

morning everyone. well today for a change am feeling reasonable well. i underwent three months of chemo recently with so side affects it didnt work.oncoligist suggested ten sessions of radiotherapy whicn i started last week, should have been the week before but had a slight complication. head and face blew up like a balloon one of the blood vessals blocked. admitted as day patiant and shunt put in to release it. have been on steriods ever since and have got the typical half moon face. my energy levels are none existant and to top it all iam having some quite severe side affects from the radiotherapy. i have a disgusting cough that takes ages to get my breath after having a coughing fit and now iam on inhalers. sat at the edge of the bed at 3.30 having panic attack. cant believe just a few short weeks ago was really well. but must admit gave myself a good talking to not sitting here wallowing in self pity and made myself do things. iam now feeling reasonably calm and feeling a little better. they did warn me at radiotherapy these side affects could happen, but i thought they were quite mild compared to chemo.

choronic constipation.

2008-11-13T12:42:12Z

sorry people not the nice of subjects. for the past few weeks had terrible constipation, something i have never had before. i think its the pain killers causing it. i think i have been through the chemist shop and doctors surgery for a cure or at least short term to no avail. please please can anyone help on what to take it is making me feel so low and down and iam getting to the end of my tether. i will try anything. thanks babs.

rest in peace linda 52.

2008-11-09T13:22:04Z

some sad news folks just found out today linda passed away on the 17 th of october. my sincerce condolansces to the family . i hadnt spoke to her for some time time as she had become quite poorly and evenually passed away peacefully in the hospice.

time to thanks and good bye

2008-09-14T19:01:08Z

hi all just like to say thanks for everything. just feel now its time to leave. some lovely people on site but now got to personal very clicky. this what not the site was about. its lovely your there but now not for the right reasons. just to give support you know which ones you give support to. i can name all of you whom are a ? a very close group excluding everyone else there are there for you yourselves and now its got to the stage your little group. i personal think you should set up your own self help group. i just feel sorry for newcomers coming on the site because now all of your very clicky group.

the sun really did shine on a wonderfull day.

2008-08-24T13:28:57Z

well thanks to lanz and carol for a wonderfull day. the sun was shining the company fantastic what more could you ask for. also the entertainment via lell and her wonderfull family was briliant and the food poor scoffy worked her but off was out of this world.it was no nice to put a face to a name and feel like i have an extended family.thank you to each and everyone for all your support and kindness you are all trulely amazing. love babs and graham catt.

having a bad day.

2008-08-19T10:59:00Z

well today has been horrible. cant stop crying being very negative. sat here looking at photos of kids, weddings .and lots of happy memories. then reality creeps in and you think will this be the last time. cant get my head round the start of the year, making plans for holdays improvements to house and then everything goes pear shaped. iam half way through the chemo and dont know whether its working or not. i just want some normality back into my life to be able to say yes to peoples invatasions twelve months down the line.i miss not being able to go to work and meeting diffrent people on a daily basis. i feel my independence has been taken from me all because of this awfull thing growing inside me.i look at my husband whom i love to bits and couldnt bear the thought of him with someone else. i know thats a very selfish attitude as if anything did happen he is only young to be on his own. this horrible black cloud if only would go away. iam feeling very lonely and need to get this off my chest my life doesnt feel like my own anymore. thanks for listening hopefully tomorrow will be a better day.

change of chemo anyone else this happened to

2008-08-09T14:58:40Z

Hi,All just wondering if this has happened to anyone else.After having first cycle of chemo had routine appointment with oncoligist thursday before starting 2nd cycle of chemo friday. iam currently on gemcarbo. he wasnt happy about blood tests revealing liver function wasnt normal compared to before chemo started.he has took me off gemicitne as this is one of the side affects. i have been told this is the main one for lung cancer. he has replaced it with vinorelbine this is administered via injection through canula then flushed through with saline for half an hour. iam just a bit worried this wont have the same affect as gemicitine. it does say its for the treatment of lung cancer and certain other cancers. your comments and advise would be appreciated. Thanks Babs.

tomorrow never comes

2008-07-31T10:22:12Z

Good morning everyone, iam feeling very positive and well today and hope that you are to. didnt sleep very well last night but helped me put things in perspective. iam very fortunate to have a wonderfull family behind me. some people havent. like the saying goes tomorrow never comes so enjoy today and all the many days to follow. each day do something that you want to do enjoy life to the full.who knows what time we have but that also goes for non cancer people to.my early days before they diagnosed me were traumatic scarey and very stressfull thank god for this site and all your wonderfull support.now i have faced my demons head on instead of wallowing self pity.Be strong positive tell the bloody thing to get out of my body how dare it invade my personall space . Finanlly tell your family everyday how much you love them and care about them. there are people out there a lot worse off than me. i will beat this thing regardless of statisics iam a person not a statisic.

advise on painfull joints

2008-07-22T17:52:31Z

help iam having really painfull joints mostly in my right hip but more painfull in my right ankle. it feels like toothacre and is driving me mad.it has been suggested its trough the chemo but have only had one cycle and was there .before treatment started. it wasnt as painfull and could get away with one painkiller every blue moon. now taking them like sweeties okay for few hours hen back again. iam on a blood thinning trial and have just found out this is a possible side affect. have spoken to trial nurse whom swears its the chemo not the trial. iam off to see the gp tomorrow with a view to stopping it. why give myself unnecessary pain. any advise would be helpfull. thanks babs.

why am i so bad tempered

2008-07-13T12:21:28Z

these past fews days i have been feeling a bit yucky, first time i have felt unwell. i couldnt start chemo because of chest infection hence feeling un well. hopefully antibiotics will kick in soon.my husband is walking on egg shells because at this moment in time he cant do anything right. i have been down right nasty and snappy. he doesnt deserve this hes been fantastic through all of thisi dont mean what i say and its not like me to be so nasty. i tried to apoligies but hes not having any. he wont even speak to me know and walks out the room rather than be with me.at this moment iam really down not fealing sorry for myself and without his support what will i do.

awfull taste

2008-07-08T09:19:30Z

hi all for the past few days i felt quite quezzy. everything tastes metalic and it has put me off my food. my daughter whos a student nurse has been coughing and sputtering round me hence i also have a cough. the gp has give me some medicines for the cough. its just this awfull taste. any advise would be appreciated. thanks babs.

its official

2008-07-02T09:19:53Z

hi all well to say that iam in shock but be and understatement. at 8.30 this morning call from lung cancer nurse. her conversation started morning mrs c dr green has asked me to ring yours results are in it is cancer and we have made you an appointment tomorrow at four with the oncoligist is this alright fine then bye.were do these people get there manners from i dont expect to be treated any diffrent from anyone but surely this is not an epceptable way to be told. iam feel very angry and let down after waiting all thes weeks for test results and this is the way the deliver.