babydaisy's blog

Surgery

2009-08-26T18:28:41Z

Hi Mum saw the surgeon today an appointment she should have had last week to meet him. They have told her that they plan for her to finish this regime of chemo and have one more then they plan to operate on her in about 6/8 weeks time. They explained that she will have two thirds of her esophagus removed and one third of her stomach removed and then that her stomach will be moved to meet the remaining part of her eosphagus. They said she will be in hospital for 10 to 14 days and then recovery will be between 3 to 6 months all being well. I just cant believe this is true and how quickly it is all happening. Today she ate a tiny piece of toast, 3 spoonfuls of scrambled egg and baked beans and a cup of tea and 2 chocolate biscuits!!!!! Just thought Id share my good news with you.

What a week

2009-08-23T16:14:32Z

Hi All What a week it has been. Mum started her chemo on monday with an overnight stay 8 hours of strong chemo and 4 bags of saline for her kidneys. Then Tusday she came home with her chemo pump. Went to see her tuesday night and although in bed she didnt look too bad. Thursday she was rushed into hospital as she was very weak due to the contact sickness. They gave her some different stuff for the sickness and sent her home. Then yesterday morning she took the last of the sickness stuff she had been given and by the afternoon she was back to being sick constantly along with the runs now also!!!!! When I spoke to her mid afternoon she wasnt making any sense at all didnt even sound like my mum - dad tells me this is due to the fact that she was so dehidrated. So now she is back in hospital and doing ok again. Has had lots of fluids through last night and today and the sickness has calmed down as she has a line in for that now. I am emotionally knackered after this week - I live 2 hours away from my mum so dont have the opportunity to pop round when I can which I feel really guilty about. But hey ho onwards and upwards maybe next week will be a bit calmer. (I hope so)!!!!!

Nightmare!!

2009-08-16T18:41:21Z

Hi All Mum should have started her chemo on friday but the PIC line has cuased her arm to swell. She is now being treated for a blod clot and an infection and yet again we dont know when the chemo will start. Maybe tomorrow maybe not!!! Over the last few days the special drinks the doctors have given mum to help her get her daily intake due to the fact that she cant swallow her food are also coming back up, Even a cup of tea can make her sick. She has declined very quickly and I am just wondering if anyone else that has been in contact with this type of cancer have experienced such a rapid and quick decline??? It took her 5 hours to have some soup today????? I am hoping the hospital will suggest a feeding tube or stent she is tierd and week due to not eating and cant even stand to do the washing up. Hope things turn around for her this coming week. What a horrible weekend.

The start of chemo

2009-08-12T18:31:38Z

mum went for her pre chemo check today and has now been told that because she is on a liquid diet only that they are ditching the ECX type of chemo and is now having the ECF instead. She goes tomorrow to get the line fitted and then chemo starts on Friday. Have spoke to her today and I thought she would be really happy as she has wanted chemo to start for weeks but in fact she really wasn't very happy at all. I guess she just hasn't had any time to get her head round this next bit. That sounds stupid as she has known she would have chemo but as she has only been doing one day and one appointment at a time has had to wait weeks between appointment etc and has had the time to get her head round things. She only has tonight to get her head round this next step. Have had a few tears today as I was hoping to see her before treatment started but as me and my family have all been ill with colds and stuff we have to stay away so the next time I see her she will have short hair as the chemo nurse has advised her to get it cut short. She is having this done tomorrow aswell at the hairdressers. Not sure Im ready to see her with short or no hair as she has always had long hair. Thats the next bit to get my head round. I'm sure it will all be fine.

results

2009-08-11T12:41:43Z

mum got her pet scan results back yesterday and the good news is it hasnt spread anywhere else. We are all so pleased for her and look forward to her starting her chemo within the next week. An op is now back on the cards if the chemo works well. Thanks for all the support everyone. xxxx

pet scan results the waiting game

2009-08-10T12:53:34Z

mum gets her pet scan results at 16.00 today so I am keeping my fingers crossed for her and will let you kow later what they said. Just trying to whittle away the time between now and then as this afternoon is really dragging - I hate all this waiting!!

One step closer

2009-08-03T18:09:52Z

well mum saw oncology consultant today and has been told she starts her chemo the week after next. Firstly she has to go next week to see a nurse to check her blood count and kidneys etc before they can start the chemo. She will be having her chemo in stints of 3 weeks at a time, some through a line in hospital and the rest taken at home as tablets. Does anyone know if this is a good type of chemo to have? Am I right in thinking this is the ECX type of chemo??

pet scan

2009-07-31T20:09:44Z

Hi all, mum had her pet scan today and she felt that all went well. Going back on Monday to chat about the findings from the scan and to talk about the plan from here on in. Yet another long weekend waiting for results!!!!

I would like to get in contact with other people who have had oesophegal cancer touch their lives in one way or another.

2009-07-25T20:06:58Z

I am hoping that this website is going to put me in touch with other people who have experienced oesophegal cancer in one way or another. I am interested to know and learn all there is to know and am hoping you lovely people on here can help.

at the beginning

2009-07-24T22:55:34Z

Hi all this is my 1st blog on here. Today my mum got results for her cat scan for her cancer in her oesophagus and was told that it hasn't spread which is good news but her lymph node gland things are enflammed which she is saying is normal due to where the cancer is which is near her stomach. There was talk a few weeks ago about an operation but she has now been told that there is no op and that chemo and radiotherapy works best with this type of cancer. She now has to have a Pet scan just waiting for the appointment. I have read between the lines and my mind is running away with me. Does anyone know if this means she is inoperable?? Any advice welcome - I am prepared for the worst although obviously trying to stay positive for her.