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<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">aurore</title><subtitle type="html">my travelogue though cancer</subtitle><id>https://community.macmillan.org.uk/cancer-blogs/b/aurore/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/aurore" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/aurore/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2010-07-07T14:35:13Z</updated><entry><title>glamotherapy/they know that you know</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/aurore/posts/glamotherapy-they-know-that-you-know" /><id>https://community.macmillan.org.uk/cancer-blogs/b/aurore/posts/glamotherapy-they-know-that-you-know</id><published>2010-07-12T17:44:48Z</published><updated>2010-07-12T17:44:48Z</updated><content type="html">&lt;p&gt;






 
  
  
 




 
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&lt;p class="MsoNormal"&gt;First treatment is over. Another 3,4 or 5 to go. You have
experienced the symptoms. The whole thing now feels real. &lt;span&gt;&amp;nbsp;&lt;/span&gt;The fatigue associated with chemotherapy is so
extreme it is almost funny. When was the last time you could not lift a finger
literally ?&lt;/p&gt;
&lt;p class="MsoNormal"&gt;I remember being heartened by &lt;span&gt;&amp;nbsp;&lt;/span&gt;the thought , invariably around 4am, that if I
pulled through I could at least be able to say : &amp;lsquo;I&amp;rsquo;ve done it&amp;rsquo;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Goal setting, even weird ones, is supremely important during
all this and have come to believe that, it helps to piece together resistance
and belligerence towards the pathetic environment that &lt;span&gt;&amp;nbsp;&lt;/span&gt;surrounds cancer and&lt;span&gt;&amp;nbsp; &lt;/span&gt;in turn , towards the disease. For, generally
speaking, you are constantly being met by agreeable people with ready , understanding
smiles and who can talk needles and nausea &lt;span&gt;&amp;nbsp;&lt;/span&gt;and pain but no&lt;span&gt;&amp;nbsp; &lt;/span&gt;transport difficulties, car-parks, lost wages
or inability to help with the homework. These are your problems. They are
helping to save your life.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;The second treatment is looming. Mentally it is worse than
the first. Apprehension and fear gave the first one a sense of occasion. Second
time round you know what to expect and it is grim and tedious. You probably
have lost your hair by now, which does not help the spirit. Chemotherapy and
wig do not sit comfortably together, especially if you prefer to lie down
during the treatment. The indignity of having to go to the toilet with the drip
attached is sufficient in my view without a wig askew as well.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Use the time between &lt;span&gt;&amp;nbsp;&lt;/span&gt;1&lt;sup&gt;st&lt;/sup&gt;
and 2&lt;sup&gt;nd&lt;/sup&gt; session to experiment with make-up / wig ideas. &lt;span&gt;&amp;nbsp;&lt;/span&gt;It is easier to decide when you still have
what at least resembles&lt;span&gt;&amp;nbsp; &lt;/span&gt;hair and&lt;span&gt;&amp;nbsp; &lt;/span&gt;skin tone. It is a bit like looking for a job
or a man. &lt;span&gt;&amp;nbsp;&lt;/span&gt;Easier to find one from an
engaged position.&lt;span&gt;&amp;nbsp; &lt;/span&gt;Buy a new , cheap,
loud handbag&lt;span&gt;&amp;nbsp; &lt;/span&gt;to keep all the things that
you need during the treatments. You can throw it away symbolically at the end.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Scour the net for treatments (facials, massages,&lt;span&gt;&amp;nbsp; &lt;/span&gt;reflexology, aromatherapy etc). A lot of them
come free with the badge. Try some for future reference. Avoid places dedicated
to treatments for cancer patients unless you feel the need to and will enjoy
talking shop with other sufferers. Remember, any cosmetics counter in a
department store will give you a make-over/make-up for free.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;b&gt;Chemo day 2&lt;/b&gt;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;You know the drill. Keep busy the day and night before, keep
telling yourself that the time really goes quickly between and during
treatments and remind those around you that you will&lt;span&gt;&amp;nbsp; &lt;/span&gt;probably be out of action and needy again for
a couple of days. Your children will probably love it. Take-away 3 evenings in
a row does not happen that often.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;At the end of&lt;span&gt;&amp;nbsp; &lt;/span&gt;session
2 you might feel &lt;span&gt;&amp;nbsp;&lt;/span&gt;that you have reached a
turning point. The worse is over. You lost your hair, you are getting used to
the process, you know what to avoid and can resolve to fight for the remainder
except for the dreaded scan in between 3&lt;sup&gt;rd&lt;/sup&gt; and 4&lt;sup&gt;th&lt;/sup&gt;
session. The reminder that all may not be going well.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;You are told when
your appointment is. You are presumed to be able to make it &lt;span&gt;&amp;nbsp;&lt;/span&gt;at the time that you are given.&lt;span&gt;&amp;nbsp; &lt;/span&gt;They know that you know that you will be
there no matter what. &lt;span&gt;&amp;nbsp;&lt;/span&gt;I wonder how many
cancer appointments have been missed? &lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;I am lucky to live at walking distance from the hospital. &lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;I met this obviously wealthy woman recently, who told me &lt;span&gt;&amp;nbsp;&lt;/span&gt;that she works for a charity (or out of
charity as it turned out) two mornings a week in the canteen of a&lt;span&gt;&amp;nbsp; &lt;/span&gt;London &lt;span&gt;&amp;nbsp;&lt;/span&gt;cancer hospital and quoted a decent profit
made each year from it, which, of &lt;span&gt;&amp;nbsp;&lt;/span&gt;course, goes into cancer research. &amp;lsquo; I butter
scones, make cups of tea and all that for these poor people&amp;rdquo; she chirped
looking&lt;span&gt;&amp;nbsp; &lt;/span&gt;in&lt;span&gt;&amp;nbsp; &lt;/span&gt;self-amazement at her surviving nails. &amp;lsquo; Poor?&amp;rsquo;
I asked.&lt;span&gt;&amp;nbsp; &lt;/span&gt;&amp;lsquo;Dahling&amp;rsquo; &lt;span&gt;&amp;nbsp;&lt;/span&gt;she replied&amp;rsquo; they all congregate in that
reception , hundreds of them, &lt;span&gt;&amp;nbsp;&lt;/span&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;arriving on average about 2 hours before their
appointment &lt;span&gt;&amp;nbsp;&lt;/span&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;having &lt;span&gt;&amp;nbsp;&lt;/span&gt;travelled far&amp;rsquo;. &lt;span&gt;&amp;nbsp;&lt;/span&gt;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Hungry and thirsty for watery coffee and stodgy scones
lovingly buttered by her&lt;span&gt;&amp;nbsp; &lt;/span&gt;manicured hands,
between massage appointments for her and her 16 year old daughter, in case God exists.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;I didn&amp;rsquo;t reveal that I was in the midst . I want to observe
her from a distance next time I am there. I might even arrive earlier just for
that.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Your name is called. Numerous people are fussing around you
in preparation for the Consultant&amp;rsquo;s/Professor&amp;rsquo;s arrival. You are shown an ante-room,
you are told that He will be with you as soon as possible, asked if there is
anything you would like to discuss in the meantime. You do. You will have to
ask the doctor. You take your book out to read or pretend that you are. You are
met with disbelief at the irreverence: &amp;ldquo; The doctor will be here shortly. Here,
undress from waist down and pop on the bed, you can keep your briefs on&amp;rdquo;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;How long does it take to pop or hop on the bed? &lt;span&gt;&amp;nbsp;&lt;/span&gt;you wonder. Why can&amp;rsquo;t it happen after the
handshake with the doctor?&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;If you are lucky and
the clinic is running on time, the Doctor is looking&lt;span&gt;&amp;nbsp; &lt;/span&gt;at your notes as you as you are entering the
room. &lt;span&gt;&amp;nbsp;&lt;/span&gt;Your searching eyes fall on the
bridge of his nose. You are trembling inside. You know he has another 30
patients to see but you can&amp;rsquo;t help feeling that you deserve to be treated as
special.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;The tumour has shrunk.&lt;span&gt;&amp;nbsp;
&lt;/span&gt;You are doing well. You can&amp;rsquo;t wait to punch the air.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;What chemo effects? You are flying to the next session.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Treat yourself to a new pair of shoes and maybe that &lt;span&gt;&amp;nbsp;&lt;/span&gt;crazy wig?&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;b&gt;&amp;nbsp;&lt;/b&gt;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;b&gt;Tip/Warning&lt;/b&gt; :
Propylene Glycol *(Two birds in one shot courtesy of BP) costing about &amp;pound;
14/gallon.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;A colourless, odourless liquid that derives from gas , found
in tiny quantities, &lt;span&gt;&amp;nbsp;&lt;/span&gt;as a coupling
solvent in most cosmetics , shampoos ,sunscreens, baby wipes and other things.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;Mixed &lt;span&gt;&amp;nbsp;&lt;/span&gt;VERY &lt;span&gt;&amp;nbsp;&lt;/span&gt;sparingly, a few drops will do, with a
baseline ointment such as E45 and infused &lt;span&gt;&amp;nbsp;&lt;/span&gt;with your favourite scented oil is&lt;span&gt;&amp;nbsp; &lt;/span&gt;a truly luxurious, skin penetrating, hydrant &lt;span&gt;&amp;nbsp;&lt;/span&gt;at a fraction of the usual cost. &lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;There is controversy about it. I read&lt;span&gt;&amp;nbsp; &lt;/span&gt;much and satisfied myself that it is harmless
in very small doses. My quarter of a gallon is in its 5&lt;sup&gt;th&lt;/sup&gt; year. &lt;b&gt;Would recommend that you read about it as
it can have very nasty and permanent side-effects .&lt;/b&gt;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;b&gt;&amp;nbsp;&lt;/b&gt;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;b&gt;Recommend &lt;/b&gt;&lt;span&gt;&amp;nbsp;&amp;nbsp;&lt;/span&gt;:Master Class with Maria Callas&lt;span&gt;&amp;nbsp; &lt;/span&gt;- CD to listen to during MRI scan. Even if
you do not like opera. &lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;I will try to lay my
hands on Robert Schimmel&amp;rsquo;s&lt;span&gt;&amp;nbsp; &lt;/span&gt;book &amp;lsquo;Cancer
on $5 a Day&amp;rsquo; recommended by fellow blogger Julie Yamamoto.&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;p class="MsoNormal"&gt;&amp;nbsp;&lt;/p&gt;
&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=351932&amp;AppID=30630&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="tumour" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/tumour" /><category term="transport" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/transport" /><category term="needles" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/needles" /><category term="disease" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/disease" /><category term="nausea" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/nausea" /><category term="tiredness" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/tiredness" /><category term="Hospital" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/Hospital" /><category term="research" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/research" /><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/chemotherapy" /><category term="fatigue" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/fatigue" /><category term="MRI scan" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/MRI%2bscan" /><category term="toilet" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/toilet" /></entry><entry><title>glamotherapy</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/aurore/posts/glamotherapy" /><id>https://community.macmillan.org.uk/cancer-blogs/b/aurore/posts/glamotherapy</id><published>2010-07-07T13:35:13Z</published><updated>2010-07-07T13:35:13Z</updated><content type="html">&lt;p&gt;&lt;a href="http://www.glamotherapy.com"&gt;www.glamotherapy.com&lt;/a&gt;&lt;/p&gt;
&lt;p&gt;my story/blog.&lt;/p&gt;
&lt;p&gt;&amp;nbsp;&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=350698&amp;AppID=30630&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="chemotherapy" scheme="https://community.macmillan.org.uk/cancer-blogs/b/aurore/archive/tags/chemotherapy" /></entry></feed>