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<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">ambrosia&amp;#39;s blog </title><subtitle type="html">ambrosia&amp;#39;s blog </subtitle><id>https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2009-11-24T17:31:58Z</updated><entry><title>have no idea what i am doing</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/posts/have-no-idea-what-i-am-doing" /><id>https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/posts/have-no-idea-what-i-am-doing</id><published>2009-11-24T16:31:58Z</published><updated>2009-11-24T16:31:58Z</updated><content type="html">&lt;p&gt;A friend has head and neck cancer.&amp;nbsp; Palliative treatment only now.&amp;nbsp;&amp;nbsp;His partner&amp;nbsp;phoned me tonight.&amp;nbsp; (they live 200 miles from me)..&amp;nbsp; He has a PEG tube in for the past few months.&amp;nbsp; Tongue is gettting bigger and she is exhausted with all the washing because he is dribbling and coughing up fluids.&amp;nbsp; I think she needs help with this and have been looking on websites&amp;nbsp;&amp;nbsp;for disposable waterrpoof pads to protect bedding etc.&amp;nbsp; &lt;/p&gt;
&lt;p&gt;Apparently these will not be supplied by nurses.&amp;nbsp; Why ??&amp;nbsp; Macmillan nurse has been out today and district nurse goes weekly.&lt;/p&gt;
&lt;p&gt;He is not incontinent, so that is why he cannot get any supplies.&amp;nbsp; Why is there such a difference, they are both bodily fluids?&lt;/p&gt;
&lt;p&gt;I am trying to order some stuff and send it to them.&amp;nbsp;&amp;nbsp;Does anyone know any good websites or suppliers I can arrange to send for them&lt;/p&gt;
&lt;p&gt;Would welcome any suggestions please&lt;/p&gt;&lt;div style="clear:both;"&gt;&lt;/div&gt;&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=275488&amp;AppID=28524&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>Former Member</name><uri>https://community.macmillan.org.uk/members/formermember</uri></author><category term="Tongue" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/archive/tags/Tongue" /><category term="Head and neck cancer" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/archive/tags/Head%2band%2bneck%2bcancer" /><category term="palliative" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/archive/tags/palliative" /><category term="fluids" scheme="https://community.macmillan.org.uk/cancer-blogs/b/ambrosia/archive/tags/fluids" /></entry></feed>