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<?xml-stylesheet type="text/xsl" href="https://community.macmillan.org.uk/cfs-file/__key/system/syndication/atom.xsl" media="screen"?><feed xmlns="http://www.w3.org/2005/Atom" xml:lang="en-US"><title type="html">Active surveillance a journey to where…</title><subtitle type="html" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/atom</id><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where" /><link rel="self" type="application/atom+xml" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/atom" /><generator uri="http://telligent.com" version="12.1.2.21912">Telligent Community (Build: 12.1.2.21912)</generator><updated>2026-01-17T18:09:15Z</updated><entry><title>Waiting is working…Radon and PSA half-life’s.</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/waiting-is-working-radon-and-psa-half-life-s" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/waiting-is-working-radon-and-psa-half-life-s</id><published>2026-02-25T11:33:50Z</published><updated>2026-02-25T11:33:50Z</updated><content type="html">A quick update. 
I know you want the important results first. The race was won by My Medical Record. It pinged with PSA result sometime overnight so well within 24 hours of the test. The NHS&amp;nbsp;app hasn&amp;rsquo;t uploaded the PSA result yet. Could be...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/waiting-is-working-radon-and-psa-half-life-s"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=723047&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>Just another Tuesday…Flossing techniques and other routines</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/just-another-tuesday-flossing-techniques-and-other-routines" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/just-another-tuesday-flossing-techniques-and-other-routines</id><published>2026-02-24T17:27:29Z</published><updated>2026-02-24T17:27:29Z</updated><content type="html">Well it&amp;rsquo;s already time for the six monthly visit to the dental hygienist, doesn&amp;rsquo;t time fly. It&amp;rsquo;s just a coincidence that my first three monthly active surveillance routine monitoring for PSA also ended up being booked on the same da...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/just-another-tuesday-flossing-techniques-and-other-routines"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=723046&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>Results day…where are the blue flashing lights</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/results-day-where-are-the-blue-flashing-lights" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/results-day-where-are-the-blue-flashing-lights</id><published>2026-01-18T17:28:18Z</published><updated>2026-01-18T17:28:18Z</updated><content type="html">It felt like a race against time.&amp;nbsp;
From the moment the referral letter was sent to the post MDT appointment it felt as if the medical staff knew every hour counted. As if even a one day delay could reduce my lifetime.&amp;nbsp;
Friday afternoon lett...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/results-day-where-are-the-blue-flashing-lights"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722980&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The waiting game…PSA monitoring anxiety.</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-waiting-game-psa-monitoring-anxiety" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-waiting-game-psa-monitoring-anxiety</id><published>2026-01-18T00:39:37Z</published><updated>2026-01-18T00:39:37Z</updated><content type="html">Data first, drama second.&amp;nbsp;
PSA monitoring on active surveillance is a bit like running. You know your PB, you&amp;rsquo;re&amp;nbsp;desperate to beat it, can it be lower this time. The expectation creates anxiety. Having control of the data helps. I&amp;amp;rsq...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-waiting-game-psa-monitoring-anxiety"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722976&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The post MDT appointment …a grey area</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-post-mdt-appointment-a-grey-area" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-post-mdt-appointment-a-grey-area</id><published>2026-01-17T20:19:38Z</published><updated>2026-01-17T20:19:38Z</updated><content type="html">The longest wait comes to an end. Three weeks and two days after the biopsy. And three days before Christmas I get the biopsy results.&amp;nbsp;


PSA 13.2


PSAD 0.33


T2c


3+4=7 with PNI


pattern 4 10% 


longest length 14mm. 


10 out of 15 cores p...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-post-mdt-appointment-a-grey-area"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722975&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The biopsy…a training opportunity</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-biopsy-a-training-opportunity" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-biopsy-a-training-opportunity</id><published>2026-01-17T19:54:39Z</published><updated>2026-01-17T19:54:39Z</updated><content type="html">The MRI went well. An out of hours late evening appointment just 4 days after the referral letter was sent. Neither nurse could get the cannula in. I gave them five attempts then in the machine for a bimetric&amp;nbsp;scan. Just 10 hours later a phone ca...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-biopsy-a-training-opportunity"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722974&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The phone call…was anyone going to tell me?</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-phone-call-was-anyone-going-to-tell-me" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-phone-call-was-anyone-going-to-tell-me</id><published>2026-01-17T19:38:25Z</published><updated>2026-01-17T19:38:25Z</updated><content type="html">I called the receptionist. As usual asking barrier questions to my queries. I then asked for the practice manager to call me back and explain why the surgery was not following NICE guidelines with regards to cancer pathways. That cut through the chat...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-phone-call-was-anyone-going-to-tell-me"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722973&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The results…well from AI</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-results-well-from-ai" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-results-well-from-ai</id><published>2026-01-17T19:33:45Z</published><updated>2026-01-17T19:33:45Z</updated><content type="html">Blood test done. Results came back, but not to my usual GP, &amp;nbsp;sent a text: &amp;ldquo;Cholesterol high, I&amp;rsquo;ve booked you in for a repeat test in two weeks.&amp;rdquo; Lots of information about how to reduce it. Nothing else mentioned.
Not surprised ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-results-well-from-ai"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722972&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author></entry><entry><title>The journey begins…Family visit</title><link rel="alternate" type="text/html" href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-journey-begins-family-visit" /><id>https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-journey-begins-family-visit</id><published>2026-01-17T18:09:15Z</published><updated>2026-01-17T18:09:15Z</updated><content type="html">Hello everyone,
This is the start of my blog sharing my active surveillance journey with localised 3+4=7 prostate cancer (CPG 3).&amp;nbsp;
It all kicked off in the most ordinary way. Family came down to Cornwall for a two-week stay. After about 10 days ...(&lt;a href="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/posts/the-journey-begins-family-visit"&gt;read more&lt;/a&gt;)&lt;img src="https://community.macmillan.org.uk/aggbug?PostID=722971&amp;AppID=42881&amp;AppType=Weblog&amp;ContentType=0" width="1" height="1"&gt;</content><author><name>JohnPM</name><uri>https://community.macmillan.org.uk/members/e2375452689848cb9a74505d11f3d660</uri></author><category term="Prostate cancer" scheme="https://community.macmillan.org.uk/cancer-blogs/b/active-surveillance-a-journey-to-where/archive/tags/Prostate%2bcancer" /></entry></feed>