THANKS MACMILLAN ( SARCASM )

Less than one minute read time.
friday 19/8/16
USELESS MACMILLAN YET AGAIN .
S calls one of her Mac assigned nurses today to ask what is going on re. the biopsy results since it's now been two weeks and not the ten days as promised . FECK ME !!!! This nurse says that the results are ONLY for the doctor giving the kimo and NOT for S or me. FOR FECKS SAKE . !!!!!!! Why did the Mac nurse need to tell us that the results were in if it had nothing to do with us ? AND TO ADD INSULT TO INJURY ..the doctor giving the kimo is on her hols for another fecking week . WHAT A BUNCH OF FECKING IDIOTS...FROM THE START . And on the strength of that , S and I had a row over it as she's cutting them slack whereas I just want to fecking report them for their utter bollox in all that they have done .
Anonymous
  • FormerMember
    FormerMember

    Hello Manuel. My goodness, you are certainly very upset and angry, I'm sure you have your reasons,how about sharing the whole story with all of us on here I'm sure it might help get things in perspective and also there will be other people who are going through, or have gone through the same frustrations.   We are all here for each other, so don't be afraid to let us in,

    love Jean.xx

  • FormerMember
    FormerMember

    I was accidently diagnosed with ovarian cancer this time last year and both me and my partner know how hard it is to wait for results and treatment. The first I knew there may be something wrong was after a routine scan I got and urgent phone call from my GP. Fast forward 6 weeks and i am just about to get into a gown so i can have a hysterectomy when i am told they have just looked at my ecg and there is a problem. After another 2 week wait the op went ahead followed by another 4 week wait to get the results. 2 weeks after the results I started chemo. All the waiting was agonising but I had to take a deep breath and tell my partner to calm down as his reaction was very similar to yours. Getting worked up about these things won't change anything, just upset everyone around you. I have found some macmillian nurses better than others but have found one I can talk to and she does help. Don't alinate the nurses as trust me you will need their support when the chemo starts.

    Hope you are both ok.

    Elaine

  • FormerMember
    FormerMember

    Tuesday 7/6.


    This morning bought a visit from S's appointed McMillan nurse. I'll call her 'Jack' for now. So , I left Jack and S to chat privately on this first meet . But , at no point did Jack say to me that when I returned she would chat to both of us at the same time about what is and was going to happen re. care and treatment . When i got back , s told me Jack left me a leaflet !! Great ...........I'M IN A HURRICANE AND I GET GIVEN A FECKING UMBRELLA . More of Jack later.

    Fri 10/6.


    Arrived in a good mood but the Macmillan nurse soon put a stop to that . S was in so much pain that she wasn't going to be set free today as the hospital wanted to pain-manage her do to all the drains attached to her previously . 
    And so we come to this................
    The macmillan nurse came in said hello and then said to S ...." so , you've decided to have it all taken out . " 
    I KID YOU NOT.....those where the actual words she used . And that's when i didn't see her as a nurse but something more akin to JACK THE RIPPER. She didn't sit down to S's eye level but stood at the end of the bed , ....looming like the spectre at the feast . More talking to S and not even acknowledging me at all . 
    A few mins later , S's line manager /friend arrived . Great , a witness !! She also heard Jack the Ripper say to S that she was going on her hols but if S wanted to chat about anyting re. the cancer then Ms. X would be available . AT NO POINT WAS I PUT INTO THE MIX AND INCLUDED INTO IF I WANTED TO ASK A QUESTION . 

    Fri 17/6.

    Jack the Ripper aka the Macmillan nurse called today. Shame that S had mentioned that i was there ...just to see if Jack would ask if there was anybody there since she was giving the news that S's biopsy came back and that there were definately cancerous cells in the tissue from the ovaries. Also , Jack the Ripper told S to get in touch with the hospital ward herself if she wanted the discharge letter . So much for Jack being supportive and a contact and caseworker for S. Jack also said that a letter could take a week to arrive . !! Hang on ..........then why did the sister on duty on S's last hospital day say that the letter would be sent out as the consultant had not written it that day .?????

    20/6/16

    Ah...the saga of the Discharge letter finally ends . So........Jack the Ripper ( the Macmillan nurse tells a cancer patient ) to chase up the letter herself . The fecking hospital sent the letter to the cancer patient's GP direct without telling the cancer patient. The cancer patient calls the hospital and speaks to the ONLY senior nursing person I had ANY confidence in ( I'll call her KIP.......Keeping It Real ) , who stated that one had been done but she didn't know what happened to it...but she would send one herself directly to the cancer patient . As this one arrived , the cancer patient received a phone call from her GP surgery to say that they received a discharge letter directly from the hospital . WHAT A FECKING JOKE . The Macmillan nurse is a disgrace in letting her cancer patient waste time chasing non-existant paperwork.

    Thurs 7/7/16


    I made a phone call to S's current macmillan nurse re. Jack the Ripper . I told her that I didn't want her having ANYTHING to do with S's illness and care . I told her that S. knew that I was making this phone call and that S. knew how I felt about the situation . I also informed the Mac nurse that s. was have stomach pains . I told S. that the Mac nurse was waiting for her call re. pains . S. later told me that apperntly Jack the Ripper has to be on the mailing list for admin purposes but that there was another Mac nurse at the first hospital we had gone to .

    5/8/16

    AND MORE UNNECESSARY HEARTACHE BY MACMILLAN . ............S got a phonecall from one of her Macmillan nurses on Friday 5th August , whilst we were watching a film in the afternoon . She told S that the biopsy results were back but S was NOT to have to results for another 10 DAYS.!! WTF.......WTF....WTF ......!! Why tell us this at all ???????????? That really twisted the knife. Bang went the good atmosphere , bang went the film , bang went my good mood ...even S went quiet . Macmillan have done nothing for me at all .

    friday 19/8/16


    USELESS MACMILLAN YET AGAIN .
    S calls one of her Mac assigned nurses today to ask waht is going on re. the biopsy results since it's now been two weeks and not the ten days as promised . FECK ME !!!! This nurse says that the results are ONLY for the doctor giving the kimo and NOT for S or me. FOR FECKS SAKE . !!!!!!! Why did the Mac nurse need to tell us that the results were in if it had nothing to do with us ? AND TO ADD INSULT TO INJURY ..the doctor giving the kimo is on her hols for another fecking week . WHAT A BUNCH OF FECKING IDIOTS...FROM THE START . And on the strength of that , S and I had a row over it as she's cutting them slack whereas I just want to fecking report them for their utter bollox in all that they have done .

    Now you can see why I'm so hacked off with Macmillan . I ' know they have helped many , but , I have seen the reviews on their Facebook page .........and I know now that I am not being thin skinned about things after reading the negative reviews . If you want to know the whole story , read my blog entries here as " Manuel The Mushroom " I wish you all my best wishes and good luck . It sometimes does come down to luck !!