My journey through an allo stem cell transplant for Hodgkin's lymphoma
I bounced out of bed this morning! More energy than I ever remember, actually feel like a new person.
Nurse informed me neutrophils are 1.6! And other bloods coming along nicely too (happy days) Went for walk with physio, done some stairs and passed with flying colours,seen the dietician who assessed my weight and eating etc, passed with flying colours.
Consultant came to see me, said I've recovered very quickly and they are very happy, told me he'd looked over everything and there's not much more they can do for me and that I'd be better off at home and see him once a week in clinic!
So plan is for discharge tomorrow. Omg!! I never expected to hear this for at least another week, I'm still sitting here in shock hours later.
I've done it!!! Can't believe it! Forever grateful to my brother Kevin, my husband, family, friends and everyone's prayers. I think my granny has broken the record of candle lighting in the chapel.
And let's not forget the amazing NHS, no words can describe how I feel for every doctor, nurse, care assistant, therapist and domestic who have been part of my journey. These are the people who should be on the TV receiving awards and as a nurse I am so so proud to be part of the NHS. Thank you!
So that's it, but it's not the end, I've got a long way to go to be 'fully recovered' so i will be keeping blog updated for anyone interested.
And for anyone going through this or about to embark on a stem cell transplant there's no point in lying, it's hard, a few really dark days where even your mind and your body are at the lowest point. All you can do is survive and that's exactly what our amazing bodies do, we have no choice but to survive and then that corner comes, a day later you're around the corner and into the light and it only gets brighter.
I feel rejuvenated and liberated, I will never take normality for granted again. And unless I take a cardiac arrest tonight (joking) I will be out those doors tomorrow and you'll next hear from me lying in my living room with some chocolate, my dog lying at the living room door watching me as I patiently wait for love island xxx
Brilliant news...so pleased for you.
This is wonderful news. We are so pleased for you, Darragh and your immediate families. Your journey thus far has been incredible, scary and life-affirming. You are an inspiration to us all. We look forward to following your progress in the weeks ahead.
Another quote for you: "The greater your storm, the brighter your rainbow"
Barry and Terry
Fabulous Stacey ! You are inspirational ! We are all delighted to hear such wonderful news .
So glad to hear this news this evening. Well done stacey.x
Oh Stacey this made me cry with happiness!!! So proud of you and am so glad you are going home where you should be surrounded by that hubbie, dog and wonderful family!! Keep looking after yourself x
Well done you Stacey, the escape tunnel has been dug and you are escaping.
So the beginning of the reintroduction back to what you think as normal life, but what is the new normal?....... but it does not include hospital beds, no darkens, no bloods at silloclock, no obs...... It is very important that you look after yourself. Little steps will eventually turn into big steps. eat well, drink lots and keep infection risks under control.
Enjoy the walk out of the hospital doors and especially the non air-conditioned air.
Greetings from the furnace that is the bay of Naples
How r u getting on in your "new" life ?
Hope everything returns to normality in the next few months and allows me to shake off that mother in law u have. Lol
(just saw this on a Macmillan email, hence delay.)
So so very happy for you - I went through an SCT last year and it is a big deal. The moment I left isolation was recorded on a photo, with my 7 & 9 year old daughters clinging onto me for dear life and pure raw emotion on everyone's faces. A year on have got my strength back, running 5k and still in remission, and best of all sleep soundly. Best wishes!
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