Mine and my families 11 year battle with NETS

  • Neuroendocrine tumours NETS

    FormerMember
    FormerMember

    My 15 year with NETS very hard journey but i have great people looking after me. I should not be here if it was not for the great service of the NHS AND RESEARCH. I have just moved onto this site. the Neuroendocrine system is a complex nasty cancer that can strike anywhere and any age. My first advice in my 15 experience is that you have not got access to a NET doctor then try straight away to got your doctor do it. They…

  • Mine and my families 11year battle with NETS

    FormerMember
    FormerMember

    during this time. This has been used by my local MP who has taken it forward to the health department to hopefully obtain a substantive response as to why the drug has been removed from the NICE list?

    My story started when I was diagnosed with a Neuroendocrine Tumor to the pancreas.

    I was at my Doctors surgery and I noticed that they were providing well man checks for the over 40s Male. I decided to take these basic checks…