Sublingual Salivary Gland Cancer- my journey

  • Christmas update

    Well it's been about 14  months since this journey began, and 7 months since diagnosis and the big operation, 2014 has been quite a year. 

    I'm still signed up for monthly check ups with the radio therapy team, although I think they will sign me back over to my consultant after this months visit. I started back with the consultant in November and am on monthly check ups there too .

    im seeing a lymphoedema nurse…

  • Update about 7 weeks post radio now

    I've stopped counting, so that must mean it's lots better. Had a dentist appointment on Tuesday. He was the one who originally referred me. He's checked my teeth and prescribed me some mouth was and extra floride toothpaste and I'm back in 2 weeks where he is going to do a gentle clean. I'm working a lot more now, almost 4 days a week. I do notice how much I'm suffering with the dry mouth when I'm at work. Disaster…
  • 2 lots of appointments in one week

    I am due my second follow up

    appointment with the RT team this week. Hopefully they will be pleased with the big improvement in my eating and subsequently the improved energy levels. I won't be running and marathons yet but I do feel more up to coping with more day to day tasks and I'm going into work 3 days this week. Not for the whole day, but we'll see how Friday find me  

    I got in touch with my macmillian…

  • Recovery 5 weeks on and found a use for that mask (pic attached)

    I feel like I've really begun to turn the corner now, and the biggest factor in this is the improvement in my eating.  The steroids have definitely improved my appetite, and I seem to be hungry all the time! I'm also managing to eat a much wider range of foods. I can chew on the side that still has teeth, and my swallowing has improved. Stuff does sometimes get a little wedged, but a discrete coughing it back up and…

  • 4th Week of recovery

    The steroids have definitely helped with my appetite, and the more I've been trying to eat the better the swallow reflex has become.

    My preferred meal at the moment is pasta soup and bread (all in the same bowl) with cheese on the top. I think I do need to try and include a few more vegetables, but I am definitely eating a lot more.

    The side that received the main RT still has a bit of soreness, and a few new ulcers…