Radiotherapy- 5 days to go.

1 minute read time.

I've not been blogging as much this week because there hasn't really been much to add. Things have stayed pretty much the same. The saliva has become thicker, but not really thick and I've found swills with the salt water and then later the carhopsol seems to give some relief from it.

Denplan have paid out on the private prescription I had for that so that's fab.

I'm still doing 5ml of oramorph about every 4 hours which seems to do the trick. Because I've been into work 3 days this week I've been talking more which I think annoys the ulcers a bit so they are more sore.

It has felt like there is flem in my throat and getting the mouth pipe in has been tricky because my mouth opening has really reduced.

I have to really concentrate during the zapping otherwise I start to think I need to swallow and there's really not much room for movement when you're fastened down. So long as I focus I can get through it, although I've started asked them to get me unclipped Asap at the end.

The skin on the outside is much redder now, and a bit flakey in a couple of spots. I hope it can hang in there 1 more week without breaking open or blistering.

I've had moment or two of feeling really tired this week, but I've also still been getting about on trains and buses and driving my self ( I make sure I'm 4 hours after oramorph and don't take any while I'm driving. ) Nearly there.......

Anonymous
  • FormerMember
    FormerMember

    Hello DLC ... yes indeed you are nearly there now ! Five more to go and then you've got through what I call ' The Death Ray ' and recovery will start soon afterwards ... bear in mind that the RT will continue to work for a wee while after the treatments have stopped, but once it's ' peaked ' then the healing can begin.

    You are doing fantastically well and I remember that ' get me off this table right now ' feeling after the zappings ... oh, do ask if you want to keep your mask ( some patients want them as a souvenir ) I don't know what happened to mine but I didn't want the thing anyway ...

    Take care and rest if you feel at all tired x

    Joycee x

  • FormerMember
    FormerMember

    Gosh, DLC, I think you're doing fantastically well! I can't imagine carrying on working while going through such a tough treatment. And talking too. You must be made of steel.! I've just completed a week of r/t on my spine and am completely exhausted. Though I did manage to drive myself back home to Wales from Manchester this morning. My husband was going to come and drive me home, but he thought the dog was dying, so I insisted he stay with her and I would be Ok to drive. Am on 20mg slow release morphine twice a day and only take Oramorph at night as a top-up if necessary. Was a bit worried as I had already taken the Zomorph when he rang to say he was worried about the dog, but I drove slowly and stopped for a couple of caffeine fixes and it was OK. Now safely home in bed.

    I know just what you mean about the mask. I got a week of that in the autumn for a lump in my neck and hated it. Only got through by meditating while on the table. Those of you going through several weeks of it have my total admiration. Hang in there, the end is in sight, then the healing can begin.