2 lots of appointments in one week

1 minute read time.

I am due my second follow up

appointment with the RT team this week. Hopefully they will be pleased with the big improvement in my eating and subsequently the improved energy levels. I won't be running and marathons yet but I do feel more up to coping with more day to day tasks and I'm going into work 3 days this week. Not for the whole day, but we'll see how Friday find me  

I got in touch with my macmillian nurse on Friday as my original consultant who did my operation said I should fall back into seeing him every month about November and if I'd not heard from them to get in touch. She texted today to say I have an appointment with the team and dietician tomorrow! Quick service I have to say.

My list of things to ask eithe sets of people this week are:

-mention the occasional pains and aches in the area around original Timor site

-ask about general feeling of stiffness in that area- excercises? Massage?

-artificial saliva for overnight ( remember to write down ones joycee uses)

- find out if I would benefit from different type of tooth paste

- tongue swelling, will it be here for ever

- do I have a baseline scan?

- discuss links with HPV virus ( having previously had cells removed after cervical cancer smear) can I go back to tests every year  

plenty to remember!!

Anonymous
  • FormerMember
    FormerMember

    Hello DLC ... just to wish you all the best for your forthcoming appointments and it's a great idea to write everything down ( don't forget the lead weights in case they are needed for the weigh-in with dietician ! )

    Yes, it can some time for all the different side effects to diminish but so far you are doing extremely well. Take care x

    Joycee x

  • My list of things to ask eithe sets of people this week are:

    -mention the occasional pains and aches in the area around original Timor site

    Answer: all feels fine

    -ask about general feeling of stiffness in that area- excercises? Massage?

    Forgot this question

    -artificial saliva for overnight ( remember to write down ones joycee uses)

    Answer: given a tube to try

    - find out if I would benefit from different type of tooth paste

    Answer: use normal toothpaste, but visit dentist more often

    - tongue swelling, will it be here for ever

    Forgot this one

    - do I have a baseline scan?

    Answer: no baseline - monitored through check ups

    - discuss links with HPV virus ( having previously had cells removed after cervical cancer smear) can I go back to tests every year  

    Answer: mine wasn't HPV linked as it was a different sort, not the sort linked to HPV, which is found further back in the mouth.