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Ronny.a

Neuroendocrine Cancer Awareness

by Ronny.a

Ronny was diagnosed with Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, iron deficiency anaemia and facial flushing (Carcinoid Syndrome).

Latest Entries
  • Neuroendocrine Cancer Awareness

    Lanretotide vs Octreotide

    LONG ACTING LANREOTIDE (LEFT) – LONG ACTING OCTREOTIDE (RIGHT) Somatostatin Analogues are the ‘workhorse’ treatments for those living with NETs, particularly where  syndromes  are involved. Although it can sometimes seem like they are only associated with serotonin releasing tumours (i.e. what might be described as  Carcinoid ), these types of...
  • Neuroendocrine Cancer Awareness

    Neuroendocrine Tumours – Carcinoid Crisis

    NET Patient Foundation wallet card (example guidance) The word ‘crisis’ has a wide range of meanings and it’s well used in the media to catch the reader’s attention. Lately, the terms ‘political crisis’, financial ‘crisis’ and ‘constitutional crisis’ appear almost daily in media headlines. In a previous life, the term ‘crisis management’ was used...
  • Neuroendocrine Cancer Awareness

    Living with an incurable cancer – does mind over matter help?

    When I started blogging in 2014, it was relatively easy - all I needed to do was to talk about my experience to help raise awareness of Neuroendocrine Cancer; then talk about my hike along Hadrian's Wall for a local Charity. The blog was only ever intended to be a temporary supporting tool for the walk and its build up; but I was persuaded by good reviews...
  • Neuroendocrine Cancer Awareness

    The Mother of all Surgeries

    My plan for this week’s blog was to continue with a surgery theme using the story of a lady who had what was described as the “Mother of all Surgeries” after being late diagnosed with a very rare and advanced appendiceal cancer. I had a draft in outline before Christmas ready to update and publish early Jan. However, I’ve been carefully watching the...
  • Neuroendocrine Cancer Awareness

    What is your new normal?

    Cancer isn’t always a one-time event. It can be a chronic (ongoing) illness, much like diabetes or heart disease. Cancer can be closely watched and treated, but sometimes it never completely goes away. The cancer may be ' controlled ' with treatment, meaning it might seem to go away or stay the same, and it doesn’t grow or spread as long as you are...