We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Ronny.a

Neuroendocrine Cancer Awareness

by Ronny.a

Ronny was diagnosed with Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, iron deficiency anaemia and facial flushing (Carcinoid Syndrome).

Latest Entries
  • Neuroendocrine Cancer Awareness

    NET Newsletter AUGUST 2017

    NET News The following news items may be of interest: PRRT takes a step forward to being formally approved in USA. FDA acknowledges receipt of revised application for approval. Click here . However, in UK, there is a threat that PRRT won’t be approved despite a positive recommendation by the scientific committee of the European Medicines Agency...
  • Neuroendocrine Cancer Awareness

    The Invisible Neuroendocrine Tumor Patient Population

    I found some of the quotes from the recent NET SEER Database study very interesting. The National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program is a comprehensive source of population-based information initiated in 1973 that is updated annually. The NET study is formally titled “ Trends in the Incidence, Prevalence, and...
  • Neuroendocrine Cancer Awareness

    At home with Lanreotide

    The Somatuline 'reservoir' forming in the deep subcutaneous tissue[/caption] I think after 87 injections (as at 11 July 2017), I think it's safe to say I'm now 'at home' with Lanreotide (Somatuline Autogel - Somatuline Depot elsewhere).  I'm looking forward to celebrating my centenary 'butt dart' in a years time! I was fortunate...
  • Neuroendocrine Cancer Awareness

    Living with Cancer – 6 tips for conquering fear

    Before I was diagnosed with cancer, my relationship with my health was fairly distant. I had minor irritants that seemed to come back now and then, nothing that was going to kill me. So I just put up with most of it and time was frequently a good healer. Occasionally, I would use medicine to speed up the healing or ask a doctor for advice. Even leading...
  • Neuroendocrine Cancer Awareness

    The trouble with the NET (Part 3) – Miracle Cures

    Since I started blogging, I’ve had to become quite savvy at forming headlines for my posts as the wording can be a factor in whether someone reads it or not. A post picture can also influence. There’s a third factor and that is credibility – I’d like to think I’ve worked hard to earn that level of trust in my ‘product’. I use the NET to talk about NETs...