Ronny.a

Neuroendocrine Cancer Awareness

by Ronny.a

Ronny was diagnosed with Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, iron deficiency anaemia and facial flushing (Carcinoid Syndrome).

Latest Entries
  • Neuroendocrine Cancer Awareness

    PRRT and the Cancer Drugs Fund - is the 'magic' wearing off?

    I was extremely disappointed to learn of the decision to remove PRRT (Lutetium or Yttrium) from the Cancer Drugs Fund (CDF) as reported by the NET Patient Foundation . You can read the detail of the decision here: CDF Statement . PRRT has regularly been described by NET specialists and patients as the "magic bullet" due to its potential to shrink and...
  • Neuroendocrine Cancer Awareness

    Colonoscopy Comedy

    Last year I wrote a series of blogs on the 'coping' side of cancer, one of which was entitled Laughter is the best medicine . This was my way of saying no matter how tough life is, you need to stay positive and maintain your sense of humour. When I think back to some of the treatments I've had, I sometimes have a little laugh to myself even although...
  • Neuroendocrine Cancer Awareness

    Neuroendocrine Cancer - Incurable vs. Terminal

    When I was being officially told I had an advanced and incurable cancer, I did what most people seem to do on films/TV ..... I asked " how long do I have ". The Oncologist said " ... perhaps just months ". That must have been quite a shock because for a few moments after that, I heard nothing - my brain was clearly still trying to process those words...
  • Neuroendocrine Cancer Awareness

    Neuroendocrine Tumours - Stages and Grades

    One of the most discussed and sometimes confusing subjects on forums is the staging and grading of  Neuroendocrine  Tumours (NETs). Mixing them up is a common error and so it's important to understand the difference despite the apparent complexity. In the most basic of terms,  stage  is the spread of the cancer and  grade  is the aggressiveness...
  • Neuroendocrine Cancer Awareness

    Please flush after use!

    In the past 12 months, I've read so many stories about the quite natural act of using a toilet (some more repeatable than others), I think if there was a Bachelor of Science degree in Toiletry, I would pass with First Class Honours. I jest clearly but it's strange that such a routine activity for most can actually become quite scientific in the world...