The following news items may be of interest:
A quiet month. Due to the vagaries of Facebook inner workings, some of these may not have even shown on your timeline. So, ICYMI …….here’s a summary with links, includes updated blogs.
- The Invisible NET Patient Population. My latest published blog and received some great viewing figures (and this continues). Controversial for some but backed up by facts.
- NETs – not as rare as you think. An older post with some tweaks. Again, controversial for some but backed up by facts.
- Carcinoid vs Neuroendocrine – One of my most controversial posts – this is an older post which previously had an element of sitting on the fence. I jumped off the fence following some further research and period of reflection. I was happy with some of the positive comments I subsequently received on this post.
- Steve Jobs. An updated version with some new research timelines added. This post continues to receive hits daily even when I’m not sharing. Most of the hits are from people searching and find my article online, an indication of the interest Steve Jobs still has today. And many of the hits are NEW audiences.
- NETwork with Ronny © – Community Newsletter JULY 2017. My July 2017 newsletter ICYMI.
- Your favourite posts. All posts with viewing figures above 2000.
- There’s a lot of chatter about use of the word ‘fight’ in cancer parlance but many people are misrepresenting the word’s multiple meanings as per the most eminent English language dictionaries. As for me, I’m ‘sticking to my guns’ on the subject.
- I got some great comments on my monthly Lanreotide ‘butt dart’ post. Feel free to add questions. I may know some of the answers and cannot promise answers from Ipsen due to their regulatory arrangements but I will try! Check out the discussion here …… ‘click here’.
- My notification about the Ipsen HomeZone (or equivalent services within your own country) got an interesting response. Since then many others have taken advantage by contacting Ipsen or their specialist asking about the service. This has also led to feedback about the similar schemes from Novartis for Octreotide. I’m happy that my post has provided publicity to services which help patients. Read my post At Home with Lanreotide by clicking here.
August was a slower month in ‘new’ blogging terms mainly due to personal activities and the consequences of having a large internet footprint! Striking a balance is becoming more difficult. I’m seeing a trend of low ‘new’ blog months, mainly due to external projects and a continuous stream of offline messages from patients (more on this later). Also, I’ve been suffering with minor right hip pain but now seeing improvements working with a physiotherapist. However, despite a low month for brand new blogs, I still managed to make the second highest monthly views ever……..Thank you all so much for the support.
Please join my 2017 awareness campaign event here (select ‘Going’)
I continue to receive a steady flow of private contacts, mainly from patients seeking information. I don’t have an issue with private contact but please note my disclaimer. Please also note that I cannot accept telephone calls on a one to one basis. However …..the number of non-patients contacting me for other reasons (mainly to help with something) continues to grow and this is producing some great publicity and awareness.
By the time you read this update, the nominations and endorsements for the 2017 WEGO Health Awards will be closed. If you remember last year, I made it to the final in two categories of Blog and Community, and then won the latter. I should find out if I made the finals by the middle of September. Fingers crossed! Many thanks to those who took the time and trouble to vote for me.
New Audiences for NET Cancer. From Day 1, I said it was my aim to find new audiences for NETS rather than just share stuff within our own community.
Speaking Engagements
Writing and other types of Engagement (external) – watch this space as I’m working on quite a few projects concurrently
Remember …….
Blog Milestone. In August, I tipped a 360,000 views! Thank you all so much ♥ Keep sharing! On track for 400000 by end of the October.
Facebook Milestone. I would love to achieve 6000 followers by the end of 2017 but this will be a challenge. The Facebook page is now my biggest outlet for awareness and education so please please please recommend this page to anyone you think would be interested.
I’m expanding into Instagram to see how that goes. I’ve amassed over 200 followers to date. Initially, I’ll just be posting pictures of things that inspire me, mostly scenic photos of places I’ve been or want to go! You can follow me here: Click here to go to my Instagram page
WOW! – that’s an amazing amount of awareness and hopefully, support for others. However, I cannot do this without you guys liking, commenting and sharing! The likes give me motivation, the comments (and private messages) give me inspiration (or at least a chance to explain further) and they also keep me humble. The sharing gives me a bigger platform. A bigger platform generates more awareness.
Thanks for your great support in August. Onwards and upwards!
Thanks for reading
Ronny
Hey, I’m also active on Facebook. Like my page for even more news.
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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!
