Ronny.a

Neuroendocrine Cancer Awareness

by Ronny.a

Ronny was diagnosed with Metastatic Neuroendocrine Cancer in July 2010 after presenting with weight loss, iron deficiency anaemia and facial flushing (Carcinoid Syndrome).

Latest Entries
  • Neuroendocrine Cancer Awareness

    NET Newsletter AUGUST 2017

    NET News The following news items may be of interest: PRRT takes a step forward to being formally approved in USA. FDA acknowledges receipt of revised application for approval. Click here . However, in UK, there is a threat that PRRT won’t be approved despite a positive recommendation by the scientific committee of the European Medicines Agency...
  • Neuroendocrine Cancer Awareness

    The Invisible Neuroendocrine Tumor Patient Population

    I found some of the quotes from the recent NET SEER Database study very interesting. The National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program is a comprehensive source of population-based information initiated in 1973 that is updated annually. The NET study is formally titled “ Trends in the Incidence, Prevalence, and...
  • Neuroendocrine Cancer Awareness

    At home with Lanreotide

    The Somatuline 'reservoir' forming in the deep subcutaneous tissue[/caption] I think after 87 injections (as at 11 July 2017), I think it's safe to say I'm now 'at home' with Lanreotide (Somatuline Autogel - Somatuline Depot elsewhere).  I'm looking forward to celebrating my centenary 'butt dart' in a years time! I was fortunate...
  • Neuroendocrine Cancer Awareness

    Living with Cancer – 6 tips for conquering fear

    Before I was diagnosed with cancer, my relationship with my health was fairly distant. I had minor irritants that seemed to come back now and then, nothing that was going to kill me. So I just put up with most of it and time was frequently a good healer. Occasionally, I would use medicine to speed up the healing or ask a doctor for advice. Even leading...
  • Neuroendocrine Cancer Awareness

    The trouble with the NET (Part 3) – Miracle Cures

    Since I started blogging, I’ve had to become quite savvy at forming headlines for my posts as the wording can be a factor in whether someone reads it or not. A post picture can also influence. There’s a third factor and that is credibility – I’d like to think I’ve worked hard to earn that level of trust in my ‘product’. I use the NET to talk about NETs...