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Today we have some personal anecdotes and stories from some of our Community Champions who are discussing what surprised them about chemotherapy. Many people go into chemo with pre-conceptions about it, such as it will be very quick, or that they will be in a room alone, however this is not always the case.
What didn’t you know about chemo before you or your loved one went in? Share your experience and tips with other members by commenting below.
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Constipation is one of the things people don't tell you lol
How you sit in a bay with lots of other people,no privacy.I particularly would have like some on the very first day as it really hit home and I started crying.no one else had a curtain round and wasn't asked,maybe I should have .??
Hi Flyingscotsman, thanks for your honest revelation!
Hi carla1965, I'm sorry you felt like this during your chemo. If you ever feel uncomfortable please remember to ask someone in the chemo ward for help. They are there to help make it as easy as it can be for you.
I feel bad, in a way, because I have just served a sentence of 8 Oxaliplatin and continuous 5-FU (24 weeks) without any bad side effects at all. I stopped taking anti-emetics for the last few cycles and felt better........I just hope it worked.
If you're there for a full day as I was (6 days in total) tty and get a day bed
I had no idea of the scale of cancer treatment in the UK
The people in their having treatment are so stoic
I was really really lucky I had little side effects
The staff at The Churchill in Oxford are amazing
My mother in law was really poorly after her first chemo session it scared me to see her looking so ill and seeing her in such discomfort and pain
I was just diagnosed with stage 2 lung cancer, I am 39 years old and have 5 kids. I had a small lump on my side and within a couple weeks it had quadroopled in size, and it got so painful. I just finished my 6th week of chemo treatment. I've just started getting side effects from chemo. I woke up with sores all over my lips, my mouth, my tongue, and my face. I've got blood coming out of nose and mouth. Has anyone else had any of these symptoms.
I'm really sorry to hear about your recent diagnosis. It's a good idea if you join the Lung Cancer to start and then you can click 'start a discussion'. This way you write your story and others will be able to respond to you.
Please email us at firstname.lastname@example.org if you are having any problems and we'll respond to you.
Macmillan Community Team
I had ovarian cancer 11 years ago, after chemo I had radical hysterectomy, I felt fantastic 3 years on my cancer returned on my pelvis still classed as ovarian cancer. I had another session of chemo this helped but 2 years after my ca125 levels started rising I had more chemo and radiotherapy which was fine until 2 years ago my levels started rising so I am back on chemo, just had 4 pints of blood and have a picc line fitted in the morning. initially my ca 125 level was nearly 5000 I has 22 litres of water drained from my stomach and was given little time too live.. I am still fighting, with the fantastic team at Glan Clwyd hospital north wales, God bless them all.
JJust first chemo drip last week got tingly fingers and serious hiccups which rattled 4 or 5 times
Handled it fine
Felt OK apart from this am taking anti sick pills and six chemo tablets plus all sorts else 21 a day
Yesterday had a plain Tuna baguette out in a cafe I know we'll on finishing started burning gullet for about 3 hours horrendous hiccups just got on with it and then tried call glass milk Symptoms disappeared
Sunday today had my best sleep pattern last night
Feel really back on top today hope it lasts
Sorry to hear about you fellow patients in pain Stay strong you can cope with family and friends determined help
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