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  • Forum Post: Worn out and freaking out! Hubby's DLBCL

    Posted by
    Posted 1 month ago
    So, my hubby and I have had an extremely busy four weeks. We've had: -A surprise diagnosis of DLBCL after a routine wisdom tooth extraction. -GP appointment -A bone marrow biopsy -First blood tests -A PET/CT scan -A CT scan -Initial meeting with consultant haematologist, which...

  • Forum Post: Re: new to this.. daughter 21 has Acute Lmyphoblastic Leukemia

    Posted by
    Posted 4 months ago
    Hi, No she has been hopitalized since the 9th Dec and started chemo a week after being here and will be here until the Induction treatment has been completed which is another 3-4 weeks so the poor lass is already sick of the site of the hospital although everybody is so nice. She did have a lovely...

  • Forum Post: Bad news on today of all days

    Posted by
    Posted 4 months ago
    Hi,I found out today that my partner's cancer spread is both extensive and palliative. This has come as a shock, on today of all days. Am finding it difficult to cope at present even before we had this news. Just don't know how long we have, what to do, what to say to our children, family and...

  • Forum Post: Re: Second big argument :-(

    Posted by
    Posted 6 months ago
    Oh thanks very much, Sarah. There will always be good and bad days I suppose. It is nice to know others on the path with whom we can be candid. Like I am really sick of snot and mucus, it seems everywhere! ::)) And while I mostly have good days, some days I am so tired to the bone with my own maladies...

  • Forum Post: Re: Second big argument :-(

    Posted by
    Posted 6 months ago
    Dear Sarah, How lovely it must make you feel being pushed away at a time all you want to do is be there and help. Same happened to me after my husband's diagnosis in June and we spent a few miserable months as he conies to do all the high risk things he had just been told to quit (drinking, smoking...

  • Blog Post: I can turn you inside out

    Posted by
    Posted 7 months ago
    Last week started out promisingly enough, with a relatively uncomplicated call from the district nurse, a lovely visit to see Caro and her Maine Coons, including teeny-tiny mega-cute kittens, and a (again, relatively) pleasant trip to chemo - many chatty ladies in attendance this week; I don't get...

  • Blog Post: Mamma mia!

    Posted by
    Posted 8 months ago
    My mother died two years ago today. Before I say anything else, I should explain that she was 93 years old, in reasonably good health, still lived in her own house, had relatively recently, thanks entirely to my sister's tireless efforts, agreed to have both a cleaner and a carer, and, so far...

  • Blog Post: This is not the news I was looking for

    Posted by
    Posted 8 months ago
    So, this is what happened at the hospital yesterday: I'm currently on a regimen of three weeks of Paclitaxel, followed by a week off. One side-effect of Taxel is neuropathy - numbness/pins and needles/pain in the fingers and toes. I've had very bad pains in my fingers for the past couple...

  • Blog Post: The last thing on my mind

    Posted by
    Posted 8 months ago
    No , Churchill Hospital, please pay attention. This is your arse. This is your elbow. Do you think you can remember that for five minutes together? What have they done this time, do I hear you ask? What they did this time was send me a pre-chemo consultant appointment for 2.50 pm next Tuesday (one...

  • Blog Post: Pants

    Posted by
    Posted 8 months ago
    If I should die unexpectedly - which isn't entirely out of the question, which, I suppose, means it wouldn't really be unexpected, but wotthehell - then please do not judge me too harshly on the evidence of my underwear drawer. I do sometimes fold my pants neatly, but other times I just think...

  • Blog Post: Today was gonna be the day

    Posted by
    Posted 9 months ago
    It's Monday, it's the 13th, the Olympics are over, and it's raining. Today never stood a chance, really. Still, it might have been improved if the district nurse had managed to come and do my bloods and dressing change ("Which part of 'weekly' do you not understand?"...

  • Blog Post: Sorry to bring this up ...

    Posted by
    Posted 9 months ago
    It has been a slightly unusual week this week, internets. I don't necessarily say better; just different. Which I suppose is good in itself. Apart from the food poisoning ... We set out with a Plan. Judy was going to take me to chemo on Tuesday, bring me back, then go up to Penny's for the...

  • Forum Post: Chemo done - Now 'watch and wait' or get zapped!?

    Posted by
    Posted 11 months ago
    My 72 year old Mum has follicular lymphoma, mediastinal area. She's done her 6 cycles of RCHOP, during which she fought off a fungal chest infection that nearly killed her, then a few months later caught C-Diff. She's been left weak, depressed and because of the Vincristine, has peripheral neuropathy...

  • Blog Post: Or emptied some dull opiate to the drains

    Posted by
    Posted 11 months ago
    I've been hearing how NHS cancer patients can't get the opiates they need, which is all very Bad and Wrong indeed. But I have to admit to having apparently won the postcode lottery here; my doctors love giving me drugs. I have Zoomorph, which sounds to me like a collection of animals all changing...

  • Blog Post: The envy of Sisyphus

    Posted by
    Posted over 1 year ago
    I'm sure things aren't meant to be quite this hard. I had to call the out of hours doctor again last night - I was sick and fever-y, and had very bad tummy pains. This time, by way of variety, they sent us along to an out of hours clinic in Oxford, which was, I suppose, preferable to waiting...

  • Blog Post: What a difference a day makes

    Posted by
    Posted over 1 year ago
    Seriously. Yesterday I couldn't get arrested - not that I was trying to get arrested, but the Churchill had gone all sullen and uncommunicative, painted its bedroom ceiling black, and was playing My Chemical Romance on an infinite repeating loop; today I've been beating them off with a stick...

  • Blog Post: When I get to the bottom I go back to the top of the slide

    Posted by
    Posted over 1 year ago
    It was a funny week, last week. Not that they're not all a bit strange these days, what with the way everything has to revolve around cancer, in pure defiance of Galileo, but mostly what I do is spend my life sitting around, usually feeling guilty about sitting around and being sure that there ought...

  • Blog Post: Being bored

    Posted by
    Posted over 1 year ago
    My dear mamma used to tell me that only boring people were bored. This is a painful thought; I must be positively stultifying, because, as things stand at present, I am pretty much climbing the walls - or I would be, if the walls in our house weren't made of cardboard, or close enough, and probably...

  • Blog Post: Time passes slowly

    Posted by
    Posted over 1 year ago
    I used to love Saturdays. I'd leave the alarm set, get up at the usual time, feed the cats, clean the litter trays, make a cup of coffee, and then take it back to bed and snuggle up with Phoebe and Sounds of the 60s . But Phoebe's been gone for four years now, and the NuCats aren't much for...

  • Forum Post: Re: Tiredness

    Posted by
    Posted over 3 years ago
    Hi Sharon and thanks for welcoming me to this group. Sorry to hear about your hubby and I hope he is feeling better. My thoughts were that if you didn´t have ant sec effects the first time of chemo you were in the clear. How wrong I was! Today T is a bit better, having drunk rather a lot...

  • Forum Post: Tiredness

    Posted by
    Posted over 3 years ago
    Hello everyone, Being a bit worried about my partner, he went for his second chemo last Tuesday(only half strength). He has so far been very well without any secondary effects. Yesterday and today he has been extremely tired. Only wants to rest and sleep. Difficult even to get him to drink enough...

  • Forum Post: Re: how long do RCHOP side effects last after chemo

    Posted by
    Posted over 3 years ago
    Thanks again for your posts. They are helpful. Regarding the last post, we seem to be in very similar situations with my dad and your mom. What date did your mom get her cycle 2 chemo? My dad is on his 13th day of this cycle and feels "okay" but very, very tired. He's only sponged himself...
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