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  • Forum Post: Support needed

    I'm not sure where to start as this is my first post but I'm hoping to get some advice from people in my position rather than the people who say they understand but have never been through it...I used to be one of them...feeling so sorry for the person who was ill and their family, imagining...
  • Forum Post: Bitter Ol' Man

    I'm not sure why i'm writing here. I guess in some way i'm looking for vindication or sympathy. I'm pretty sure what i want to say will be met with some annoyance. It sounds like i'm so selfish, so ungrateful. The fact is i'm not only my wifes carer but i apparently am supposed...
  • Forum Post: Help please - where has my lovely husband gone?

    Help please - I am feeling really low. My husband came out of hospital today after his first cycle of high dose chemo. He has NHL and only last week was told that he has had a relapse, has a new high grade lymphoma and will need a stem cell transplant. A year ago he had 6 cycles of medium strength chemo...
  • Forum Post: Angry Pants

    Having had the news that my mom has 3 months to go, over the last 4 weeks I've had every emotion going, or so I thought! My goodness me am I angry! Hopefully you won't all think I'm crazy but I really need somewhere to vent....... I had a lovely morning yesterday, I'd had a good...
  • Forum Post: Tired all the time!!

    Hi, I was diagnosed this time last year with Thryoid Cancer and have recently received the all clear. The thing is I am always tired, all the time. I went out with friends for a night out last week and I am still trying to pick myself up after it. I lose all energy, motivation and temper. I think...
  • Forum Post: Re: New here - Currently recovering from biopsy

    Hi there - and welcome to the site. First off, don't panic!! Secondly, we ALL ramble on here from time to time, don't fret about that..so here I go (forgive me, as I could win prizes for rambling, hah!) I know just where you are coming from, it's so unexpected - there you are, bobbing...
  • Forum Post: Waking up at night to PU

    Hubby is finding real difficulty staying asleep at night as he keeps having to get up to urinate. It only happens at the beginning of each cycle (days 4-8 ish) of R-CHOP-21. He's only just got over chickenpox (2 weeks in hospital on IV anti-virals scaring the life out of me) so he's already...
  • Forum Post: Re: what to expect from radiotherapy?

    Hi Julia, I was diagnosed January 2013, with follicular NHL behind both eyes, which was forcing - mainly my right eye - to bulge outwards! (I also have lymphoma on my neck and a small one in my stomach.) As the ones behind my eyes were freaking me out, causing double vision and general discomfort...
  • Forum Post: After effects of R Chop chemo for LDBCL

    Hi This is my first post on behalf of my Mum, in her eighties, who finished 8 cycles of R Chop four weeks ago. She is still feeling ill all the time and is also having trouble with her bowels. She has to go frequently and has abdominal pain. This has been since the last chemo. She has also had lots...
  • Forum Post: Worn out and freaking out! Hubby's DLBCL

    So, my hubby and I have had an extremely busy four weeks. We've had: -A surprise diagnosis of DLBCL after a routine wisdom tooth extraction. -GP appointment -A bone marrow biopsy -First blood tests -A PET/CT scan -A CT scan -Initial meeting with consultant haematologist, which...
  • Forum Post: Re: new to this.. daughter 21 has Acute Lmyphoblastic Leukemia

    Hi, No she has been hopitalized since the 9th Dec and started chemo a week after being here and will be here until the Induction treatment has been completed which is another 3-4 weeks so the poor lass is already sick of the site of the hospital although everybody is so nice. She did have a lovely...
  • Forum Post: Bad news on today of all days

    Hi,I found out today that my partner's cancer spread is both extensive and palliative. This has come as a shock, on today of all days. Am finding it difficult to cope at present even before we had this news. Just don't know how long we have, what to do, what to say to our children, family and...
  • Forum Post: Re: Second big argument :-(

    Oh thanks very much, Sarah. There will always be good and bad days I suppose. It is nice to know others on the path with whom we can be candid. Like I am really sick of snot and mucus, it seems everywhere! ::)) And while I mostly have good days, some days I am so tired to the bone with my own maladies...
  • Blog Post: I can turn you inside out

    Last week started out promisingly enough, with a relatively uncomplicated call from the district nurse, a lovely visit to see Caro and her Maine Coons, including teeny-tiny mega-cute kittens, and a (again, relatively) pleasant trip to chemo - many chatty ladies in attendance this week; I don't get...
  • Blog Post: Mamma mia!

    My mother died two years ago today. Before I say anything else, I should explain that she was 93 years old, in reasonably good health, still lived in her own house, had relatively recently, thanks entirely to my sister's tireless efforts, agreed to have both a cleaner and a carer, and, so far...
  • Blog Post: This is not the news I was looking for

    So, this is what happened at the hospital yesterday: I'm currently on a regimen of three weeks of Paclitaxel, followed by a week off. One side-effect of Taxel is neuropathy - numbness/pins and needles/pain in the fingers and toes. I've had very bad pains in my fingers for the past couple...
  • Blog Post: The last thing on my mind

    No , Churchill Hospital, please pay attention. This is your arse. This is your elbow. Do you think you can remember that for five minutes together? What have they done this time, do I hear you ask? What they did this time was send me a pre-chemo consultant appointment for 2.50 pm next Tuesday (one...
  • Blog Post: Pants

    If I should die unexpectedly - which isn't entirely out of the question, which, I suppose, means it wouldn't really be unexpected, but wotthehell - then please do not judge me too harshly on the evidence of my underwear drawer. I do sometimes fold my pants neatly, but other times I just think...
  • Blog Post: Today was gonna be the day

    It's Monday, it's the 13th, the Olympics are over, and it's raining. Today never stood a chance, really. Still, it might have been improved if the district nurse had managed to come and do my bloods and dressing change ("Which part of 'weekly' do you not understand?"...
  • Blog Post: Sorry to bring this up ...

    It has been a slightly unusual week this week, internets. I don't necessarily say better; just different. Which I suppose is good in itself. Apart from the food poisoning ... We set out with a Plan. Judy was going to take me to chemo on Tuesday, bring me back, then go up to Penny's for the...
  • Blog Post: Or emptied some dull opiate to the drains

    I've been hearing how NHS cancer patients can't get the opiates they need, which is all very Bad and Wrong indeed. But I have to admit to having apparently won the postcode lottery here; my doctors love giving me drugs. I have Zoomorph, which sounds to me like a collection of animals all changing...
  • Blog Post: The envy of Sisyphus

    I'm sure things aren't meant to be quite this hard. I had to call the out of hours doctor again last night - I was sick and fever-y, and had very bad tummy pains. This time, by way of variety, they sent us along to an out of hours clinic in Oxford, which was, I suppose, preferable to waiting...
  • Blog Post: What a difference a day makes

    Seriously. Yesterday I couldn't get arrested - not that I was trying to get arrested, but the Churchill had gone all sullen and uncommunicative, painted its bedroom ceiling black, and was playing My Chemical Romance on an infinite repeating loop; today I've been beating them off with a stick...
  • Blog Post: When I get to the bottom I go back to the top of the slide

    It was a funny week, last week. Not that they're not all a bit strange these days, what with the way everything has to revolve around cancer, in pure defiance of Galileo, but mostly what I do is spend my life sitting around, usually feeling guilty about sitting around and being sure that there ought...
  • Blog Post: Being bored

    My dear mamma used to tell me that only boring people were bored. This is a painful thought; I must be positively stultifying, because, as things stand at present, I am pretty much climbing the walls - or I would be, if the walls in our house weren't made of cardboard, or close enough, and probably...
  • Blog Post: Time passes slowly

    I used to love Saturdays. I'd leave the alarm set, get up at the usual time, feed the cats, clean the litter trays, make a cup of coffee, and then take it back to bed and snuggle up with Phoebe and Sounds of the 60s . But Phoebe's been gone for four years now, and the NuCats aren't much for...
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