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  • Forum Post: Medullary thyroid Cancer now thyroid less but more issues than before

    Posted by
    Posted over 1 year ago
    I only come on here to rant and I feel such a moany old bat right now I had thyroidectomy in feb now i am on 150mg levothyroxine and I have the following symptoms - Severe sweating at random times , weight gain although on a calorie controlled diet , no energy, mood swings, swollen ankles, and my neck...

  • Forum Post: Ignoring Thyroid Papillary Cancer-An option?

    Posted by
    Posted over 1 year ago
    If TPC is very slow growing, could one conceivably ignore it for several years? If I'm 52 now, could I get to my 70's without having all the invasive treatment and just shuffle off gently. I was wondering what symptoms, apart from the lumps, sent people to the doctors prior to diagnosis. Is having...

  • Forum Post: Re: Lid diet???

    Posted by
    Posted over 1 year ago
    Hi Wendy I have been very lucky with the information I have been given so far, and I've had lots more info from this forum - great suff everyone. The brochure I have been given from the specialist oncology hospital (Addenbrookes) actually has a sample 7 day menu plan and provides recipies for...

  • Forum Post: Re: Advice Needed Please

    Posted by
    Posted over 1 year ago
    Hi SarahHelen, Barbara just provided you with all the info that your Hospital should have fed you during your treatment. It is not acceptable that all the gaps you mentioned in info should be provided by fellow TC survivor. The Christie might be massive('we were the first') Cancer Centre, but...

  • Forum Post: Re: Hi

    Posted by
    Posted over 2 years ago
    Thanks for this Barbaral. I'll now go to sleep thinking I'm definitely a small, light woman! Actually I hope I will be by the time I've got all this sorted out. I'm reassured and I've had to set an alarm on my phone to make me remember to take the second dose - mornings are fine,...

  • Forum Post: Im now thyroidless... what meds are you on?

    Posted by
    Posted over 2 years ago
    Morning all So iv been reading your posts all week from my hospital bed but havent been able to reply as mac website doesnt seem to like android lol... Anyhooo - had my completion on monday, came round felt really good, no loss of voice this time and very little pain in my scar, I was up and about...

  • Forum Post: Re: Hurthle Cell Carcinoma

    Posted by
    Posted over 3 years ago
    Hi Barbara, sounds like you have gathered a bit more info. I think the ingredient to look out for in salt is potassium iodide/iodate or sodium iodide/iodate, but having looked at a few salt container ingredients I have found that it usually isn't mentioned and is not routinely added in the UK. Sea...

  • Forum Post: Re: hyperthyroid

    Posted by
    Posted over 3 years ago
    little miss_1 Hey Jenny I have always felt better on the T3 than the T4. When I mentioned this to my doctor, he said he could combine the two for me...so may try that in the future. I was abit of a mess when going back onto my T4, although I didn't realise it the time! I have waited roughly...

  • Forum Post: Re: hyperthyroid

    Posted by
    Posted over 3 years ago
    Hi all, I've actually been feeling quite well after swapping from T4 before surgery to T3 (40mcg per day) after surgery. My heart rate tends to shoot up sometimes, but overall, I've had more energy than I've had for years. (I was on T4 for about a year before surgery). I've got an...

  • Forum Post: Re: hyperthyroid

    Posted by
    Posted over 3 years ago
    Hi everyone, Nice to read about all your experiences. I haven't got to the stage of abnormally high doses of Levothyroxine yet as I am still on T3 waiting for RAI treatment, but it is something I have concerns over since our TSH levels will never be within the 'normal' range again and...

  • Forum Post: hyperthyroid

    Posted by
    Posted over 3 years ago
    Has anyone out there, who has had a thyroidectomy and is now on TSH suppressing doses of Levothyroxine, experienced any symptoms of hyperthyroidism? And if so, how are you coping? I met someone the other day who's mother had had Thyroid cancer and was now having the eye problems associated with Grave's...

  • Forum Post: Re: awaiting radioactive iodine treatment

    Posted by
    Posted over 3 years ago
    Dear Mrs.P, RAI is very effective and side effects do vary. Drinks loads and have some boiled sweets. You may feel a bit crap from time to time in the weeks following, but it has a high success rate. I don't know haow it affects fertility in women, but my oncologist told me if I had any further plans...

  • Forum Post: Re: Salivary Gland problems after RAI

    Posted by
    Posted over 3 years ago
    Hello Nichole. I had thyrodectomy mid March for a papillary and also a follicular cancer, and 8 weeks later went through the RAI routine. I did get some good advice at the time here about plenty of liquid and boiled sweets etc. It did appear to go well for me, and I had an exceptionall vigilant and friendly...
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