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  • Forum Post: Help - worried about thyroidectomy !

    Hello I had a lobectomy 5th March which confimed follicular thyroid cancer. It was a 3cm nodule stage 1 T2 minimally invasive. So very low risk. (I am 42, female and otherwise healthy). After the lobectomy I had a meeting with the Surgeon to confirm the diagnosis. He explained that we would meet...
  • Forum Post: Liothyronine to Levothyroxine...Swollen tingly feet...overwhelmed :(

    Hello, I met with my oncologist yesterday and she wanted to change me from the liothy 60 mcg per day to levo 125 per day in order to get my TSH supressed.....Has anyone been thru this? Are there side effects? I personally am doing it gradually...Today I took 75 mcg of the Levo. I just know how...
  • Forum Post: Thyroglobulin levels

    For the three years since my thyroid was removed and the tumour in my chest bone removed as it had spread there I have had rising thyroglobulin levels which now stand at 253. Despite yearly scans, bone, CT and PET Ct nothing has been found. Anyone got any ideas or similar experiences?
  • Forum Post: Newbie to thyroid cancer

    Hi I am new here. I was diagnosed with thyroid cancer a few months ago. I am only 27 years old and thankfully I should be ok. I had huge surgery a few months ago as the cancer had spread to all the lymph nodes in my neck but I think they managed to remove it all. I am going for radioactive treatment...
  • Forum Post: Re: Any one who might know??

    Hi Clare, After being diagnosed with cancer and having your thyroid removed you have been through a difficult time. With levothyroxine you replace the natural missing hormone your body used to make in the thyroid. If you stop taking your medication you will become hypothyroid but it takes a while...
  • Forum Post: devastated :'(

    hi all. my name is sarah. to be honest i dont really know why i am posting on here, i dont really have any questions to ask i just wanted someone to talk to who is going through or has been through what i am. i found a lump in october 2013. had 2 biospys done. first one came back clear...
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    [Edited by admin]
  • Forum Post: Hallo. LID and E127 - I just discovered this and wanted to share in case it's useful

    Hallo, I'm new here. :-) I was diagnosed with thyroid cancer last autumn, have had the surgery and am waiting for a date to go into the Christie for radioiodine. I've semi-started the LID, reducing the foods I love before cutting them out completely so I don't feel as if I'm going "cold...
  • Forum Post: RAI - 2nd Time

    Hello All, Just wanted to ask couple of questions re RAI. Bit of background about myself.... I was diagnosed with Follicular variant of papillary carcinoma in March this year. Had TT in April followed by RAI in June. 2 operations and RAI all went well. Had no major side effects and was back...
  • Forum Post: Post op rant!!!

    Hi all Hope everyone is doing well.. Im now 1 week and 2 days post op :) ( total thyroidectomy and a left neck dissection). Op went well although took 7 hours.... I have bilateral neuropraxia of the vocal chords but the nerves were saved but are bruised hopefully my voice will come back to normal...
  • Blog Post: Better late than never

    Firstly welcome, please accept my apologies for not doing this sooner, be prepared to read exactly how it is, every little meltdown, I have decided already that the meltdowns will appear as they happen and then I will also write a reflection as the two are very very different. as when they happen...
  • Forum Post: Re: Transition from T3 to T4

    Hi Mazzamo Gosh what a time of it your having and you must feel all over the place. I have just been on T4 now 2 and half weeks and it seems to be going ok. I had thyrogen too for my scans there in Jan, so never came off the T3 like yourself. I think that has made the swap to T4 so much easier...
  • Forum Post: Re: New Diagnosis

    Hi Munky Boy Sorry you have to join us here, but welcome and come along anytime with your questions etc. I found out within a week of tests at the start, so it can be a bit of roller coaster. You can read my profile and see that even though I have been through alot, the outlook is great and now...
  • Forum Post: Re: Feeling really poorly after RAI last week- help!

    Hi Powergrrl Sorry your not feeling great after RAI. Most people never feel anything having it, but I was really sick too. The morning after the capsule I was wrenching so bad I could hardly breathe and felt nauseous and had some vomiting the 3 days I was in. When I got home I had a wee bit of wrenching...
  • Blog Post: A Lifetime of cancer - Sometimes

    It's funny where your brain takes you at 4 in the morning, this is what my brain decided to do at that time last night: SOMETIMES Sometimes we laugh, Sometimes we cry, Sometimes we wonder oh why, oh why, Sometimes we moan, Sometimes we mope, Sometimes it’s because...
  • Blog Post: A lifetime of cancer 02 October

    Still feel exhausted by the last few months and think it feels worse as the dark nights draw close. Where did our summer go again? I think this is the worst part, when you are back and forth to the hospital for treatment you seem to go from one day to the next not realising what day it is. Feel bad because...
  • Blog Post: lifetime of cancer 30/09/2009

    Well October is nearly upon us and I cannot get my head round where another year has gone. Way back in Dec 1995 the docs told us it would be a couple of weeks chemo after the first op then another op and then it was highly unlikely that it would ever return. The words - if you had to pick a cancer then...
  • Blog Post: Low Iodine Diet Help - www.thyca.org

    Hi, I was reading the messages and found myself somewhat relieved to see the term "Hurtle", as I too had the diagnosis of Hurtle Cell Cancer about 4 months ago. So I guess it was a comfort. I had my RAI just over a month ago. I have worked in between my surgeries (two) and I am back at work...
  • Blog Post: THYROGLOBULIN TEST RESULT PLEAS HELP

    Hi All just had Thyoglobulin blood test result. It was 5.0. Does this mean cancer still active? as i thought it should be nearly undetectable after TT and RAI. Love Fairy xx
  • Blog Post: NEGLIGENCE

    Hi Everyone Hope you all having a decent long weekend xx I am in a real pickle at the moment. Need advice please. I have had 5 lots of bloods taken for thyroglobulin for the oncologist as they need to know levels. 5 times lab have now lost it or said they didn't get it or in wrong coloured topped...
  • Blog Post: Turn myself inside out

    The one comment that gets e down and i know this sounds so silly is when someone says you look well or you look better. Grrrrrrr if i turned myself inside out nobody would sit near me let alone talk to me. I know they mean well but personally i feel like they are saying there is nothing wrong with...
  • Blog Post: Feel like I have been put in a Dustbin!!!

    grrrrrrrr Given Up.
  • Blog Post: any one had something similar

    Has anyone else had something similar ! my neighbour says to hubby, whoooo jan doesn't look well at all. so hubby thinks ! i'll mention that shes got thyriod cancer and shes having her third treatment, she used to work at hospital, so she knows abit about it. anyway i come home on thursday, washed...
  • Blog Post: My story...

    Hello My name is Marnie and I just want to say Im sorry that your husband dies of cancer. I hate CANCER!!! I experienced thyroid cancer and it made me so chemically out of balance that I have to take six different drugs plus Vitamins to stay sane. Didnt know this was gonna be a such a long journey considering...
  • Blog Post: radio oidine

    Here i go again ! it's my third round of radio iodine treatment, i've just started a two week low iodine diet and i'm trying to put myself in mind to do what i need to do, i'm finding it hard a the moment coping with everything.you'd think after going through it twice before it wound...
  • Blog Post: A Lifetime of cancer - Today

    Well hubby is back in hospital for his second cycle of this regime ( never thought I would be hearing myself say that 14 yrs ago), which is now having ITs dreaded effects, you know, nausea - vomitting - sore mouth - piles etc etc. The two of us are feeling pretty low at the moment, this is something...
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