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  • Blog Post: Standing with our American friends to help combat mesothelioma

    Posted by
    Posted 22 days ago
    A short while ago, I was contacted by Susan Vento whose husband Bruce - a serving congressman for the state of Minnesota - died as a result of mesothelioma. Susan is a spokesperson for the Asbestos Cancer Victims Rights Campaign (ACVRC). Recently in the states, asbestos companies have been using their...

  • Forum Post: Re: Last Days

    Posted by
    Posted 1 month ago
    so sorry to read about you and your mum and your situation. my partner has incurable cancer, but it isnt anywhere near as advanced as your mums. he tries not to show how sad he can be sometimes, but i say to him it's ok to cry whenever he wants to - just so long as he doesnt let his emotion...

  • Forum Post: Re: Caring for my dad

    Posted by
    Posted 2 months ago
    Hi Hiloa, Thankyou for replying to my message. Sometimes I am lost for words to say to people. I think most of it is exhaustion on my part. If you don't mind telling me, what is your story? How the hell do we get through this. I took my dad with me on Monday to my bible study/church group. Its...

  • Forum Post: Caring for Dad - is it the end?

    Posted by
    Posted 2 months ago
    Hi My dad has advanced stomach cancer with mets to the liver and lymphnodes. He was near the end of his second round of chemo (he had 6 cycles of HCX first time round and then he was in middle of cycle 5 of 6 of EOX) and he suffered a major bleed. He has been on Tinzaparin to thin his blood due to...

  • Blog Post: An update on the NGR-hTNF and ADI-PEG trials for mesothlioma in the UK

    Posted by
    Posted 3 months ago
    NGR-hTNF This is a study in second line treatment for patients with advanced mesothelioma who have been pre-treated with no more than one pemetrexed (aka Alimta) based chemotherapy regime. It's currently recruiting in Manchester, Maidstone, Leicester, Northwood, Glasgow, Sutton and London. The trial...

  • Forum Post: Re: A thread for anyone needing support over Christmas

    Posted by
    Posted 4 months ago
    My heart goes out to anyone who has just been given bad news for themselves or a family member.The numbness and shock does subside in time.Bizzarely Mum and Dad being terminal has made this one of the best christmass ever.! The fact they are "well ish" and in good spirits is enough of a prezzie...

  • Blog Post: It's over

    Posted by
    Posted 5 months ago
    The cancer's gone...and with it, it took my lovely John. He went only five days after my last post. There are good days and bad days, since last Thursday. It's all so fresh still. Funeral doesn't happen for over a week. I'm finding it very difficult to talk about things. Everyone...

  • Blog Post: so little time...so much change

    Posted by
    Posted 5 months ago
    It was only two and a half months ago that I turned 39. My birthday "bash" was great. Cancer was pretty much put to one side, and we all partied like it was 1999, haha. Photos of john and his brothers and me and my ex-workmates. Everyone looked so cheerful and we all really enjoyd each others'...

  • Blog Post: News of a nine year mesothelioma survivor

    Posted by
    Posted 6 months ago
    The case of a German man who has lived more than 9 years with malignant mesothelioma is bringing attention to the drug that may have helped him defy the odds. The 67-year-old former German asbestos worker who is the subject of a new published report has stable mesothelioma, almost a decade after his...

  • Blog Post: T cells bouncing back after chemo good sign for immunotherapy success

    Posted by
    Posted 8 months ago
    Mesothelioma patients whose T-cell counts bounce back quickly after a round of chemotherapy have a better chance of survival. They are also most likely to benefit from the addition of immunotherapy. That’s the conclusion of a British study looking for prognostic indicators in mesothelioma patients...

  • Blog Post: Good news scan stable

    Posted by
    Posted 8 months ago
    Good news the scan shows no progression, still have the usual inflamation but no development in anything nasty since the last one six months ago. Here’s hoping everybody elses scan results are as good and thanks to everyone for their best wishes. We had the usual walk of doom to the appointment...

  • Blog Post: One more day to scan results

    Posted by
    Posted 8 months ago
    Even more nerve wracking than exam day results, given the stakes involved, puts waiting for your GCSE’s in the shade- no retakes allowed with this one unfortunately. Have been majoring on distraction techniques the last couple of days, on Sunday we went to the Chelsea Autolegends show –...

  • Blog Post: notes for today

    Posted by
    Posted 8 months ago
    So the past few weeks have been hectic and eventful. So many extraneous things going on in the family, i.e., legal issues with visitation for ex's parents with the children; family visiting from Los Angeles; new splint issues for poor little Emmie, which included having to buy a pushchair on the...

  • Blog Post: Mixed results

    Posted by
    Posted 9 months ago
    So, the past few days, John's been feling really well. Not cranky, not moody, not bumping into things, not exceptionally tired. It's been really good. On Tuesday, we saw the oncologist and asked to see the scans - compare/contrast old vs new ones and to see, for the first time, exactly how...

  • Forum Post: Re: The worst news

    Posted by
    Posted 9 months ago
    Oh, yes! The voracious steriod diet! Lord, I can tell you our John eats so much sometimes that I wonder why his stomach doesn't just burst! But we've sat in chemo rooms with other patients and had a right laugh about the things people keep in their bedside tables and bureaus for those late-night...

  • Blog Post: Sad news as Canada prepares to reopen asbestos mine

    Posted by
    Posted 9 months ago
    I’m amazed that for two countries who have access to all the info on asbestos this is actually happening. Firstly that Canada can be exporting something that is banned in their own country. Even more astonishing given the millions the USA is thankfully spending on research into mesothelioma that...

  • Blog Post: on the upswing

    Posted by
    Posted 9 months ago
    Things are getting a bit better today. His personality/intellectual competence has been ever so slightly waning for the past couple motnhs and he's similar to a 14-year-old version of his older self. Just less aware of nuances; not as emotionally mature; stuff like that. But at leasthe's been...

  • Forum Post: Cannabis, THC, Rick Simpson, Hemp Oil.

    Posted by
    Posted 9 months ago
    I am looking to take my Mum to California, Arizona or the the Netherlands for treatment with cannabis, i totally believe this may work for her and could help 'Kill' the cancer. Mum was diagnosed last year with Lung cancer and secondary liver cancer, just 3 weeks ago we were told it had spread...

  • Forum Post: Re: 3 weeks left......

    Posted by
    Posted 10 months ago
    Dear brunei; I'm so sorry for what you, your boyfriend, his mother, and the rest of the family are going through. I can't really say what's best for you to do, but I can say that when I found out John had 3 months to a year (also brain cancer), I decided that people's reactions are normal...

  • Forum Post: 3 weeks left......

    Posted by
    Posted 10 months ago
    I really dont get it, how can a person be given only 3 weeks left to live. My boyfriend's mother has coped with several different cancers over the 8 years and beat most but this time it has gone to the brain. After having a quite serious fit and then not being able to walk, feed herself, and then...

  • Blog Post: Immunotherapy shows promise for mesothelioma treatment

    Posted by
    Posted 10 months ago
    A growing number of studies have pointed to the value of unconventional treatments like immunotherapy for mesothelioma.Immunotherapy refers to any treatment protocol which aims to harness the body’s own immune system to fight cancer cells. In a recent article in The Lancet Oncology , two National...

  • Forum Post: Looking for advice on helping give bad news to a grand child

    Posted by
    Posted 10 months ago
    I am a children's social worker. Right now i am working with a beautiful 9 year old girl. This little girl's grandmother has been diagnosed with terminal cancer and mum has asked me to help deliver this news. Right now the little girl is in care and will be reunited with her mum, but at the mo...

  • Forum Post: Roger

    Posted by
    Posted over 1 year ago
    He is in a hospice. I'm losing him. Bryan

  • Forum Post: HOLIDAY INSURANCE

    Posted by
    Posted over 1 year ago
    Good Morning to everyone, It's that time of year and we are looking forward to our holiday's so I rang at least six cancer insurance specialist's. How they can call themselves cancer specialist I will never know.I have Mesothelioma ( a terminal cancer) and without exeption they wanted to...

  • Forum Post: Re: My husband lost his fight

    Posted by
    Posted over 1 year ago
    Hi Chris, I was diagnoesd in October2009 and also won my compensation case against my employer at least it has give us some bit of life without the worry of paying for all the hospital visit's, holiday's (if i feel well enough) and other bill's that still have to be paid. My wife said the...

  • Forum Post: ABC's of CANCER. T,U, & V.

    Posted by
    Posted over 2 years ago
    T for thief and time. Time steals so much from you. We have always tried to use it to our best advantage. U is the unknown. Roger and I don’t know what is ahead but we keep on going. Just like that bunny that keeps going and going and going. We are going. I know I am planning our next cruise...
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