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Forum Post: After effects of R Chop chemo for LDBCL

Posted by wifeywoo
Posted 22 hours ago

Hi This is my first post on behalf of my Mum, in her eighties, who finished 8 cycles of R Chop four weeks ago. She is still feeling ill all the time and is also having trouble with her bowels. She has to go frequently and has abdominal pain. This has been since the last chemo. She has also had lots...
Forum Post: Re: Nearly 39 years since my Hodgkins lymphoma diagnosis and still going strong ... up to a point

Posted by Yessie
Posted 10 days ago

Hi Petalmore, Thank you for your post! Although it was a while ago now so I don't know if you still come online? I am so grateful to see some information from someone else who has had Hodgkins Lymphoma and is a long term survivor. I had Mantle Radiation and then Chemo' (I cant remember the...
Forum Post: peripheral neuropathy trials - duloxetine

Posted by Bantam Paul
Posted 1 month ago

Hi - its a while since I posted. I wondered if anybody else had been offered to go on the duloxetine trial. my Oncologist has just prescribed the tablet an anti-depressant which offers benefits for those of us who are suffering with peripheral neurapathy (numb fingers / toes and in my case 'bum'...
Forum Post: Keeping your head warm at night when losing your hair

Posted by Dusk
Posted 1 month ago

My Hubby is beginning to lose his hair after his first round of R-CHOP (we're now on day 18) and I'm worried about his head getting cold at night. Has anyone got any recommendations or tips on hats, caps and other methods of keeping your head warm at night? At first I thought a fleece hat might...
Forum Post: Re: First R-CVP treatment today

Posted by Jannie
Posted 1 month ago

Hi there, Glad it is going well for you, and that the first step is over. I am currently having radiotherapy on my eyes, (that is all I will need for the moment, even though my lymphoma has spread to just under my ear, and in my stomach), but will eventually have to have R-CVP at some stage. Although...
Forum Post: Re: Coming off thyroid tablets before RAI

Posted by lolabean
Posted 2 months ago

Hi Woodpecker Sorry your feeling so rubbish, it really is crap coming off the T3. I only felt normal about 5 weeks after going back on them. It will get better after the 1st few weeks and then even more better after that. Take care of yourself, sleep when you need to if you can and just take it...
Forum Post: Re: not responding well to abvd

Posted by tinnedfruit
Posted 2 months ago

ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
Forum Post: Re: sore mouth

Posted by poemsgalore
Posted 2 months ago

Hi, I think pineapple chunks (fresh or tinned) are supposed to help with bad taste in mouth. Haven't tried it myself though as it hasn't happened to me yet. Maybe worth a try? Poemsgalore.
Forum Post: small cell cervical cancer

Posted by a12x
Posted 3 months ago

hi has anyone ever had any experience with small cell cervical cancer at all xx ? my gf has been diagnosed with this rare type of cervical cancer and just been so worried for her xx
Forum Post: Shoulder problems

Posted by Scaredy Cat
Posted 3 months ago

Hi, it is almost one year since my mx and anc and I had to have some fairly instensive physio to my arm and shoulder to enable me to get it into position for radiotherapy. Over the past couple of months my shoulder, despite continuing with my exercises, is becoming less flexible and more painful. Has...
Forum Post: EOX chemotherapy

Posted by Pip1981
Posted 3 months ago

Hi My mum was recently diagnosed with stage IV oesophageal cancer with a small spot on her liver. She had her first chemotherapy session yesterday where she received epirubicin and oxaliplatin. By the time we left the hospital she was already experiencing pain from touching anything cold and despite...
Forum Post: Re: Feeling really poorly after RAI last week- help!

Posted by lolabean
Posted 3 months ago

Hi Powergrrl Sorry your not feeling great after RAI. Most people never feel anything having it, but I was really sick too. The morning after the capsule I was wrenching so bad I could hardly breathe and felt nauseous and had some vomiting the 3 days I was in. When I got home I had a wee bit of wrenching...
Forum Post: taste buds (pasted this from my blog, thanks for the tip Joycee)

Posted by len
Posted 3 months ago

My situation with this disease consisted of a primary cancer in a tonsil and 3 secondaries in neck lymph nodes. The tonsil was removed surgically and the lymph nodes treated with chemo and radiotherapies. The radiotherapy sessions, of which there were 35, following weeks of chemo, ended early in November...
Blog Post: Guest post: Jellytot83’s chemotherapy survival guide

Posted by Priscilla - admin
Posted 5 months ago

Jellytot83 is an Online Community member who posts regularly in the Breast Cancer group . She also has her own blog: http://thelittlestjojo.blogspot.co.uk . I was diagnosed with breast cancer aged 28. To say it was something of a shock would be a massive understatement. I’m part way...
Blog Post: Coping with hair loss

Posted by Abi - Macmillan
Posted 6 months ago

Bengu says that her first reaction to finding out that she had cancer was: “Am I going lose my hair?” It’s a question a lot of people ask – losing your hair is one of the most well-known side effects of cancer treatment . But how much and for how long varies from person...
Blog Post: Guest post: Back in control, back in shape

Posted by Abi - Macmillan
Posted 6 months ago

Our intern Aurélie talks about her own personal cancer experience and how complementary therapies helped her through it. I am typing these words from Macmillan’s offices in London. My name is Aurélie. This week I am doing an internship in Macmillan’s editorial department...
Blog Post: Chemo - I hate you almost as much as i hate cancer... almost...

Posted by kazzle
Posted 8 months ago

I know chemo is my friend but today i still have that disgusting taste in my mouth, i've had to drop the painkillers as I reacted badly, I still have stomach ache and now nausea. My mouth is getting better but the same cold sores are visiting again. and sleep is apparently visiting someone else!...
Blog Post: Life after caring for someone with cancer

Posted by Libby - Macmillan
Posted over 2 years ago

The final piece of advice we have about caring for someone with cancer is about life after caring. This advice has been written by other carers of people with cancer and has been taken from our booklet Hello, and how are you? A guide for carers, by carers . You can download the full booklet...
Blog Post: Practical issues when you're caring for someone with cancer

Posted by Libby - Macmillan
Posted over 2 years ago

Hello everyone. Today’s post has advice about some of the practical issues you might have to deal with as a carer. There are quite a lot of topics covered, so you might find it helpful to skip to the sections that are relevant to you. Within the Cancer information section of the Macmillan...
Blog Post: Side effects to MM treatment

Posted by Etta
Posted over 2 years ago

Just been diagnosed with Multiple Myeloma. I had never even heard of it before I got the news, and everything just seems to have happened in a rush, 3 weeks from diagnosis to start of treatment! Hubby is typing this as, at the moment, I'm feeling crap and he can type faster than me! I'm...
Blog Post: The side effects of cancer treatment: Answers

Posted by RebeccaC - Macmillan
Posted over 2 years ago

Q: I've just finished pelvic radiotherapy, and have internal radiotherapy to do this week. What can I do to help the recovery process? My MDT doesn't give me any clues! A: Following treatment for cancer you're likely to feel relieved and keen to get back to normal. However recovering...
Blog Post: Macmillan's recent report Move More shows the importance of exercise

Posted by pioneer
Posted over 2 years ago

See the Home Page for news of Macmillan's report which shows cancer patients have less recurrence if they exercise and it can also help reduce side effects.The side effects of cancer treatments (radiotherapy, surgery) can damage lymph nodes and patients then have a lifelone risk of developing lymphoedema...
Blog Post: How much exercise have you done this week?

Posted by RebeccaC - Macmillan
Posted over 2 years ago

Today marks the start of our Move More campaign, which aims to encourage every cancer patient to undertake 150 minutes of exercise a week. Not only does exercise lift your mood and make you feel better, it can also stop your cancer coming back, minimise side effects of treatment, and reduce the risk...
Blog Post: The side effects of cancer treatment: Q&A

Posted by RebeccaC - Macmillan
Posted over 2 years ago

This month we’re covering the subject of side effects of cancer treatment and we’d like you to post your questions in the comments section after this blog. Then at the end of the week we’ll collect all of your questions and send them to our team of nurses who will answer them for you...
Blog Post: Treatment

Posted by ollyecc
Posted over 2 years ago

hi i have just been diagnosed with secondary liver cancer after having bowel cancer. I am not sure if I should have chemotherapy or not. I have been offered Xeloda, Campto and Avastin as treatment. this will give me a bit longer but not cure the cancer. Is anyone else being treated with these chemotherapy...
Blog Post: My Brave Mum

Posted by vics313
Posted over 2 years ago

Hello to anyone reading this. My mum started complaining of shoulder pain in September 2010 it was stopping her playing golf and it was really getting her down She went to the doctors and was sent to physiotherapy and given steroid injections for tennis elbow. The pain increased and mum looked tired...

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