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  • Forum Post: Re: First R-CVP treatment today

    Posted by
    Posted 2 months ago
    Hi there, Glad it is going well for you, and that the first step is over. I am currently having radiotherapy on my eyes, (that is all I will need for the moment, even though my lymphoma has spread to just under my ear, and in my stomach), but will eventually have to have R-CVP at some stage. Although...

  • Forum Post: Re: I am itchy and your thoughts please.

    Posted by
    Posted 3 months ago
    Hi Sonya - welcome to the site! Personally I find that it is best to say to anyone who asks, as my consultants have told me "it is to be seen as a chronic illness, like high blood pressure, diabetes, etc; which can be managed, at the moment I'm in remission, so thinking positive". I...

  • Forum Post: Cancer patients and the feeling of 'Otherness'

    Posted by
    Posted 4 months ago
    My name is Alex Reitemeier, I'm a psychology student at Nottingham Trent University doing some research into cancer. I want to find out if other people's reactions to a person's cancer shapes and changes their self-perception. I have emailed and received permission form the Macmillan...

  • Forum Post: Chemo done - Now 'watch and wait' or get zapped!?

    Posted by
    Posted over 1 year ago
    My 72 year old Mum has follicular lymphoma, mediastinal area. She's done her 6 cycles of RCHOP, during which she fought off a fungal chest infection that nearly killed her, then a few months later caught C-Diff. She's been left weak, depressed and because of the Vincristine, has peripheral neuropathy...

  • Forum Post: I think its returned and he wont do a scan!

    Posted by
    Posted over 3 years ago
    High Grade-Diffuse large B cell Mediastinal NHL Age 32 Female Completed 8 cycles RCHOP and 15 Radiotherapys in January 2010 Hi all, im experiencing similar symptoms, but not as bad, to when i was 1st diagnosed. I told my oncologist when i seen him in July and he said "unfortunately i will...

  • Forum Post: Basiliximab.....anyone had it?!

    Posted by
    Posted over 4 years ago
    I'm trying to find anyone who has had the treatment 'Basiliximab'. I go to the Christie hospital in Manchester, but I am being refered to The Royal Free Hospital in Hampstead, as they do this treatment there. The treatment is coming to the Christie, but not until at least April next...

  • Blog Post: Feeling Better

    Posted by
    Posted over 4 years ago
    Can't thank staff at St James Hospital enough, from being in a lot of pain when breathing over the weekend I am now almost pain free :-) Went for my radiotherapy treatment on Monday and told them how I had fared over the weekend and they sorted out a doctor straight away who prescribed me dexamethasone...

  • Blog Post: Radiotherapy week 1

    Posted by
    Posted over 4 years ago
    Well that's 5 down 10 to go. Appointments run until 2nd September and are on LINAC 7. On first day I came out with circles in a line down my nose from the mask, was oblivious to this until my hubby started laughing and then told me that I looked like a ferengi or something out of star trek and then...

  • Blog Post: Radiotherapy

    Posted by
    Posted over 4 years ago
    Just got back from Jimmys and my appointment with the radiographer, after all the fretting over what decision to make and sorting questions to ask she recommended that I have radiotherapy............so that was it decision made and no more pros, cons and the kitchen sink whizzing about in my head! She...

  • Blog Post: Living with Follicular NHL (Indolent)

    Posted by
    Posted over 5 years ago
    I am 46yrs of age and live in Dunedin, New Zealand. I have four adult children and work in a large call centre. I was diagnosed with Follicular NHL (Indolent) in August 2003 after more than 12mths and many visits to the Doctors with what seemed like a bout of the flu that would never go away, I also...

  • Blog Post: Living with Follicular NHL (Indolent)

    Posted by
    Posted over 5 years ago
    I am 46yrs of age and live in Dunedin, New Zealand. I have four adult children and work in a large call centre. I was diagnosed with Follicular NHL (Indolent) in August 2003 after more than 12mths and many visits to the Doctors with what seemed like a bout of the flu that would never go away, I also...
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