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  • Forum Post: Re: Not feeling too good...

    Posted by
    Posted 4 months ago
    Hi Smurf Big hugs to you, its really not an easy time. As everyone has said it really is the madness of it all and the speed at which things happen, you don't quite have the time or frame of mind to take it all in. I had tests and results in a week, no time to take it in at all. Then when things...

  • Forum Post: Re: just diagnosed

    Posted by
    Posted 6 months ago
    Hi Crazyk Its all a bit mad, I had TT and right radical neck dissection 37 lymph nodes removed. How do you deal with it? gosh I still don't know, I suppose you just do what you normally do and it just always comes into your thoughts, time passes and suddenly you have had the surgery and everything...

  • Forum Post: Re: Initial Diagnosis

    Posted by
    Posted 6 months ago
    Hi Lee I had my surgery 14 June. Nearly 5 months. I had a TT and right radical neck dissection. Getting there slowly, I am not good at being sick, I have never been ill, I find it hard to deal with at times. I can see things moving on now, which is great. If you make sure you write a list of questions...

  • Forum Post: Re: Initial Diagnosis

    Posted by
    Posted 6 months ago
    Hi Lee Usually it will just be a pre-op assessment, a load of questions about your health and bloods are done usually. You need to be fit and well to have the op, it is major surgery. Some people have had MRI's or CT scans, but that is usually to find out what it was etc. I had a CT scan 1st then...

  • Forum Post: Re: Partner diagnosed with thyroid cancer

    Posted by
    Posted 6 months ago
    Hi Lee Oh yes surgery is something I never thought I would have to deal with in life, it became the focus not the cancer. Before all this I was never in hospital, never needed stitches, never broken anything or even have fillings in my teeth, I only ever had blood taken once before and that was about...

  • Forum Post: Re: Coping emotionally?

    Posted by
    Posted 8 months ago
    Hi Kim Don't worry at all about being here, you need just as much help and having to watch your child is a very hard thing. At least you can come on here and find out things which help you understand whats happening. I finally got date for RAI, I go in 7th September. Going to see the oncol...

  • Forum Post: Re: It's all gone quiet over here......

    Posted by
    Posted 8 months ago
    Hi Barbara Went to see the doctor, eye thing not usual, he said something might have been pressed during surgery but he can't say as he didn't do it. He will discuss with surgeon when he is back from hols. Going to refer me on to eye person at hospital, honestly how many different referrals...

  • Forum Post: Re: It's all gone quiet over here......

    Posted by
    Posted 9 months ago
    Hi Barbara Thanks, all you have said is so right. I would love a fast forward button, I am usually a very very busy bee and always on the go, now I am at a full stop. I think I am finding it so hard as I am having all these other problems that I never expected. I am off tomorrow to the hospital...

  • Forum Post: Re: Newly diagnosed and feeling lost

    Posted by
    Posted 9 months ago
    Hi Vintage There are different types of neck dissection, it basically means cutting out the lymph nodes (glands as we would know them as) in the side of the neck or around the thyroid at the front if they know its spread to the lymph nodes. Mine was a right neck dissection so I had to have a cut from...

  • Forum Post: Re: Newly diagnosed and feeling lost

    Posted by
    Posted 9 months ago
    Hi Vintage Don't feel lost, just ask any questions you need to here. I was taking to a friend today who was saying she remembered us chatting over lunch before I had been to see about my lump and was like don't be silly it will be nothing. It was such a shock to find out it was thyroid...

  • Forum Post: Re: Loss of Voice after TT

    Posted by
    Posted 9 months ago
    Hi Sorry to hear you are having so much trouble with your voice. I am just going into week 7 post op from a TT and right radical neck dissection and I haven't had any voice issues as such, maybe just that I can't quite sing just yet, talking is ok. I think you are probably are being anxious...

  • Forum Post: Re: Newly diagnosed son

    Posted by
    Posted 10 months ago
    Hi No worries at all, its good to ask questions. I only had one side done, as ChelleT says, you don't remember much after you come round, the surgeon had said he was going to go further up the left side when I was a asleep to make sure, but he must of thought it wasn't needed. The path report...

  • Forum Post: post op questions

    Posted by
    Posted 11 months ago
    Hi all Surgery is all over now thank goodness and I got home on Monday. The going to sleep part was calm in the end thanks to a lovely anesthetist who give me a pre-med and numbed the back of my hands, as he said I had fine veins (veins you can never see, fine sounded like a good description). Looked...

  • Blog Post: Husband just started sutent - after advice and experiences

    Posted by
    Posted over 3 years ago
    Hi everyone, cor where do I start. My 47 year old husband was diagnosed with a brain tumour (further tests showed mets from Kidney) and had it removed in April. He then had the cancerous kidney and adrenal glands removed in May. Had a clear scan in July but found out in October that it has come back...
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