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  • Forum Post: terminal ileum cancer - Mum's tumour is not inoperable but SHE IS!

    Posted by
    Posted 1 month ago
    My mum (73) has not been eating for a long time, getting weaker, losing weight and refusing to see a doctor. On February 4 she had a fall and broke an arm, so had to go to hospital where after four weeks of increasing weakness they diagnosed (through scan, too weak for colonoscopy) a large tumour on...

  • Forum Post: How to get a second opinion? I need help please.

    Posted by
    Posted 11 months ago
    Hello, Follwoing from my recent posts, we have now had a meeting with my granddads oncologist who in my opinion was useless. She reeled off all the WORST CASE SCENARIOS with no positives. As we are all aware there is ALWAYS hope when it comes to cancer. Thats what keeps us alive and positive. She...

  • Forum Post: FINISHED CHEMO AND PICC LINE REMOVED.... HOORAH! NOW THE WAITING GAME..?

    Posted by
    Posted over 1 year ago
    HELLO TO YOU ALL, MY NICK NAME IS DOLLY AND I AM SO IN NEED OF FRIENDS THAT COULD TELL ME WHAT TO EXPECT NEXT? I HAVE NO CHILDREN AFTER 37 YEARS OF BEING WITH HUB I FINALLY THINK THAT WE ARE STRUGGLING THROUGH, OTHER FAMILY HEARTACHE - AND THE LOSS OF OUR 2 OLD BORDER COLLIE DOGS AND HERE WE HAVE THIS...

  • Forum Post: Surgery not complete success - so disappointed...

    Posted by
    Posted over 2 years ago
    HI all - as some of you may have read, I had a huge surgery on 30th June and they said at the time they thought they had got all of the tumour out (plus the affected 10% of my liver). A few weeks ago we were copied in on a letter between surgeons and discovered that tests taken at the time of my surgery...

  • Forum Post: Re: Bowel cancer

    Posted by
    Posted over 2 years ago
    Hi John. I am sorry to h ear about your prostrate cancer and the bowel symptoms. I certainly understand how you must be feeling and how frustrating it is. I was diagnosed with Rectal cancer two years ago. In my experience the doctors who dealt with me were brilliant. I had similar symptoms in the...

  • Forum Post: Re: capecitabine chemo tablets

    Posted by
    Posted over 2 years ago
    Hi MEJ, I had Rectal Cancer two years ago, and took capecitabine tablets, but didnt suffer any side effects with this drug apart from a slight sore throat which I remedied with Manuka Honey. I know that I have had bad stomach pains in the past which were diagnosed as IBS, and that was something I thought...

  • Forum Post: Re: My generation

    Posted by
    Posted over 2 years ago
    Thank you Pam - that's really kind of you - and I mean that sincerely. I want all of you 'youngsters' out there to know that it's not as rare as we think - just misdiagnosed by GPs - since I started this post I have met/been in touch with 2 44 year old ladies, 1 51 year old lady and...

  • Forum Post: New stoma support forum on here

    Posted by
    Posted over 2 years ago
    Hi - I took the plunge and set up an ileostomy and colostomy discussion group on here - please look for it under members' groups if you think it would be helpful. Please post a 'hello' and introduce yourself. Thank you! Jules

  • Forum Post: Re: To All New / Recent Members

    Posted by
    Posted over 2 years ago
    Hi Tim - well you are the voice of experience compared to me! I have had 5 weeks daily radiotherapy/oral chemo and am now 2 cycles into oxylyplatine/5FU + cetuximab. My oncologist wants another 2 cycles before she does MRI scan and CT scan and refers me back to the colorectal surgeon in June.

  • Forum Post: Re: bowel cancer

    Posted by
    Posted over 3 years ago
    Hallo Patrick just read your very informative post, and I do agree with everything you say , but just one thing strikes me - if a tumour blocks the bowel the patient could be in real trouble (please see my post about local recurrence in the bowel cancer group forum) so one would be stuck between a rock...