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  • Forum Post: Re: Inquests - anyone been down this route?

    Im so sorry to hear of your mothers death but the inquest is an automatic part for Mesothelioma as it is a death from an Industrial disease so it has to be carried out. They do treat you with a lot of respect and are very sympathetic, although a sad time.
  • Forum Post: Re: Meso Trials.

    I have found that you have to research your own trials as they are carried out mainly through Universities etc etc http://clinicaltrials.gov/ct2/results?term=mesothelioma a good site for Goverment trials
  • Forum Post: Meso Trials.

    Anyone been on a trial? We are interested in the goings on. Ups and downs of one. Thanks, Bryan and Roger
  • Forum Post: ABC's of CANCER C, D & E

    C is for cry. Why or why is crying not a way to lose weight? Life is not fair. For if it was, when I sat down, I’d be sitting on the front of my legs. C is also for chemo. It is our magic bullet that we are told, and hope, will give us time. D for drugs. Our table looks like a drug store...
  • Forum Post: ABCs of CANCER. A & B

    A is for the last name of a doctor we dealt with. Usually when we go into an office for the first time, the person will say, hello I’m so and so and you must be Roger and you are? And I’ll say, Bryan the other half or the conversation goes something along those lines. This time, the doctor...
  • Forum Post: Re: My husband lost his fight

    Hello Lisa, my partner was diagnosed a year ago and just wanted to say I know what you mean by jelly in your tummy. I felt light headed mainly because I just couldn't take in the enormity of the diagnosis I think. Had whole days when I felt as though I was walking through treacle, literally putting...
  • Forum Post: THE ABCs of CANCER

    MY ABC’S OF CANCER By BRYAN MURPHY We are Bryan, me, and my honey, hubby, cutie, husband, sweetie, Roger. We’ve been together for 18 years. Roger is a Brit and I am a Yank from Noo Yawk. We spend most of our time in the UK where we live or on the water. We love to cruise. It’s...
  • Forum Post: Re: Why are some consultants so cruel in the way they tell patients their future!

    Hi Susie, we have had mixed experiences on this. The consultant at the first hospital, basically patted us on the hand, gave us a leaflet to read and said we would probably have 3 months. The first surgeon, was a total nightmare, in fact you way you describe your experience was so similar I actually...
  • Forum Post: Re: Dad started chemo today

    Hi Susie, my partner went through the chemo. The first one wasn't too bad initially, the steroids helped the sickness . although he did feel exhausted after about 4 days. The second two sessions were progressively harder, in terms of nausea and tiredness, with all sorts of funny side effects ...
  • Forum Post: Re: Just got the dreaded diagnosis.

    lisa, sorry for your news. My partner was diagnosed a year ago aged 48 , very fit and healthy up until the diagnosis. There are a few people who seem to make it more than 2 years, but there aren't many . Strangely all the ones I know of seem to be women! He has scans every three months to monitor...
  • Forum Post: Re: My mum has been diagnosed with Mesothelioma :(

    my partner was diagnosed jut over a year ago. After he had the radiotherapy, he was totally washed out and he is only in his forties and was really fit before this nightmare started. We both know this is a one way road, but there are still some good days. We have both learnt to make the most of those...
  • Blog Post: http://rayandmave.wordpress.com/ updated Blog as Im doing well on the trial for Mesothelioma

    http://rayandmave.wordpress.com/ Phase III trial, expecting to enrol 400 adult patients affected by malignant pleural mesothelioma with disease progressing after a pemetrexed-based chemotherapy. The trial investigates the administration of NGR-hTNF plus best investigator’s choice (BIC) versus...
  • Forum Post: Somewhere else to get advice and support

    If we can help in any way, please get in touch. We offer support services, legal advice and assistance with state benefits for mesothelioma sufferers and their families - all from our small team of experienced mature advisors. National Asbestos Helpline - free phone 0800 043 6635
  • Blog Post: My Blog Update as a Mesothelioma Patient now going into a trial

    i have updated my blog as Im now officially in a Trial at Maidstone hospital http://rayandmave.wordpress.com/2011/10/05/mesothelioma-my-diary-my-interview-has-been-printed-in-the-usa-new-car-and-appointment-for-chemo-and-trial/
  • Blog Post: http://rayandmave.wordpress.com/

    My blog We have been to London this weekend to the Mesothelioma uk 2011 Conference at the Novotel Hotel
  • Blog Post: Mesothelioma My Diary update Monday 26th Sept 2011

    http://rayandmave.wordpress.com/ Read on to see my day and photos as I have updated my blog
  • Forum Post: 65 and still alive?

    My husband passed away in August, but wrote a book on his experiances on living with mesothelioma, inorder to help others and raise money for macmillan nursing and cancer research into this terrible disease. If you would like a read please visit www.livingwithmesothelioma.co.uk All proceeds will...
  • Blog Post: http://rayandmave.wordpress.com/2011/09/22/mesothelioma-diary-what-a-week-but-i-have-made-the-trial/

    My Diary blog
  • Blog Post: Mesothelioma Diary a really long walk today and i did it

    http://rayandmave.wordpress.com/
  • Blog Post: Mesothelioma My Diary a day in Deal trying to do so much before i start Chemo again

    http://rayandmave.wordpress.com/
  • Blog Post: Mesothelioma Diary A New Trial for me yipee!!!

    http://rayandmave.wordpress.com/2011/09/12/mesothelioma-diary-im-on-my-way-to-maidstone-hospital-for-another-trial-yipee-i-feel-good-and-so-cared-for-by-the-nhs-xx/
  • Blog Post: Mesothelioma and the Asbestos in Schools

    http://rayandmave.wordpress.com/2011/09/08/mesothelioma-diary-christmas-shopping-today-and-the-continued-awareness-of-asbestos-in-our-schools/
  • Blog Post: Mesothelioma diary goodbye to my Australian friend

    http://rayandmave.wordpress.com/2011/09/07/mesothelioma-diary-goodnight-to-our-australian-meso-warrior-julia-xxx/
  • Blog Post: Mesothelioma and my Birthday bash

    http://rayandmave.wordpress.com/
  • Blog Post: mesothelioma Diary

    http://rayandmave.wordpress.com/2011/08/27/mesothelioma-diary-my-70th-birthday-has-been-such-fun-all-day/
  • Blog Post: Mesothelioma Survivor a surprise report has helped me to understand

    http://rayandmave.wordpress.com/2011/08/21/mesothelioma-survivor-my-diary-gardening-then-slept-for-a-long-time-oh-dear-over-did-it-again-ha-ha/