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  • Blog Post: Mesothelioma and my Birthday bash

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/

  • Blog Post: mesothelioma Diary

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/2011/08/27/mesothelioma-diary-my-70th-birthday-has-been-such-fun-all-day/

  • Blog Post: Mesothelioma Survivor a surprise report has helped me to understand

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/2011/08/21/mesothelioma-survivor-my-diary-gardening-then-slept-for-a-long-time-oh-dear-over-did-it-again-ha-ha/

  • Blog Post: Mesothelioma Diary update friday and saturday

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/

  • Blog Post: Mesothelioma -My Diary feeling nervous

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ I have updated my diary as Im getting very down as the results of my BI-Op are on Friday whether its the ADAMs trial or Chemo. I so want the trial Love Mavis

  • Blog Post: Mesothelioma My Diary

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ I have been updating my blog but forget to put it here. But Im soon to know if I go into the ADAMs tial as i have had another Bi-Op and all results will be known next Friday 19th. If good i will be in the trial on the wednesday if not its 2nd line Chemo for...

  • Blog Post: Mesothelioma My diary--it gets worse -another big fight on my hands

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/2011/07/22/mesothelioma-patient-my-diary-the-bad-news-was-given-to-me-today-mr-nasty-wants-another-fight/

  • Blog Post: My blog has been updated I was on Meridien TV

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ What a journey so many highs and a few lows

  • Blog Post: Mesothelioma My diary update

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/

  • Blog Post: Mesothelioma Survivor -My Diary- A wonderful Sun Rise, Ray is showing his rash off, Sad news from a cousin .

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ My cousin has died not of a cancer but she had a leg off and then the second one was neede to come off so really the shock was all to much xxx just a sad day xx

  • Blog Post: Mesothelioma Diary update

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ What a hot day its been !!!

  • Blog Post: Mesothelioma Survivor My Diary

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/

  • Blog Post: Mesothelioma Diary of a Survivor A Postcard from The new forest and dorset

    Posted by
    Posted over 2 years ago
    http://rayandmave.wordpress.com/ And now Im home to go to St Barts On Wednesday for talks on the ADAMS Trial

  • Forum Post: Vinorelbine

    Posted by
    Posted over 2 years ago
    My husband has pleural mesothelioma and is about to start Vinorelbine chemotherapy. This will be his 4th line chemo. Would like to hear from anyone who has experienced this type of chemo. Many thanks, Heather

  • Forum Post: Re: Vorinostat trial

    Posted by
    Posted over 2 years ago
    Hi, sorry to take so long to reply to you.I have been on Voronistat trial in Manchester since May 2010 my wife and I think that I could be on the drug rather than the placebo.I feel tired quite a bit but get over this by going to the gym and swim for 30 mins also my stomach feels a bit queasy when i...

  • Forum Post: Re: Mesothelioma and secondary Brain Cancer

    Posted by
    Posted over 3 years ago
    Hello Honda I am sorry to read that your husbands meso has spread to the brain. We don't have experience of that but my husband put on weight when he took steroids on the chemotherapy. He had a huge appetite and the weight took a while to shift but it has come off now. All the best, Heather

  • Forum Post: Re: Pleurodesis

    Posted by
    Posted over 3 years ago
    Hi Amanda, I'm so pleased the pleurodesis went well, and hope your husband will soon be hme with you. I do so agree with your comment about the medical profession. We found that G's local oncoligist was particularly negative. We later found that he was only a "general" oncologist...

  • Forum Post: Re: Pleurodesis

    Posted by
    Posted over 3 years ago
    HI AJW4 I’m so sorry you and husband are having to suffer this vile disease. For the first few months after G was first diagnosed, he too was very angry; although I could understand how he felt, I was angry too, it was very hard to take the full force of his anger. Gradually he came...

  • Forum Post: Re: Very mixed emotions

    Posted by
    Posted over 3 years ago
    A quick update. G came home on Sunday evening. The discharge was by far the most traumatic part of his treatment. Having been told that his sodium was high enough to come home at one thirty, it was gone six before a doctor could be found to complete his paperwork! So on dark rainy night he was released...

  • Forum Post: Re: Very mixed emotions

    Posted by
    Posted over 3 years ago
    Thank you all for your support and kind words. I am feeling a little calmer now. From the start, G said he never wanted to be a burden to the family or me. When the time came, he would in his words "take myself off to the hospice". I had to explain that hospices don't work like hotels...

  • Forum Post: Re: sorafenib

    Posted by
    Posted over 3 years ago
    Hello I think this is one of the drugs that Mary O'Brien (Royal Marsden) spoke of in her presentation. Her presentation is available on the meso uk site if that helps. Take care, Heather

  • Forum Post: Re: Mesothelioma and polyps

    Posted by
    Posted over 3 years ago
    Hello Jojo I am afraid I don't know/or heard of anyone that has experienced this but I am posting to keep it up there! My husband was diagnosed 4 years ago. I found a site in America called 'cancer grace' there is a forum on there and as well as patients responding with their experience...

  • Forum Post: Re: Mesothelioma petition

    Posted by
    Posted over 3 years ago
    http://www.gopetition.com/petitions/chemoembolisation-for-mesothelioma.html

  • Forum Post: Mesothelioma petition

    Posted by
    Posted over 3 years ago
    Could I ask you to read and sign our Petition as we would like to get Trials of Prof Vogl here in UK started.

  • Forum Post: Re: 5th Mesothelioma UK Patient & Carer Day 2010

    Posted by
    Posted over 3 years ago
    http://www.gopetition.com/petitions/chemoembolisation-for-mesothelioma.html Would you sign this Petition as we are trying to get Prof Vogl's treatment to the UK. Love mavis

  • Forum Post: Re: Pleurectomy

    Posted by
    Posted over 3 years ago
    Hello Helen and Val Regarding the chemo, my husband had the alimta with cisplatin (instead of the carboplatin) , the best thing was getting the right anti-sickness tablet for him. He tried domperidone and cyclazine but the only one that really helped was ondansetron. However, everyone is different...
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