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  • Forum Post: The unknown

    Posted by
    Posted 11 months ago
    Hi everybody, my name is Elaine and my wonderful husband Peter was diagnosed with this horrid mesothelioma last December. We had been on holiday late September when the first symptoms appeared. By November he had been in to Guys under the care of Miss King who performed a biopsy and pleurodesis. A lot...

  • Forum Post: mesothelioma advice

    Posted by
    Posted over 2 years ago
    Hi , I am new to this site and dont really know what I am doing, a member of my family has been diagnosed with plural mesothelioma they have had this for over a year now, they have had the talc op and some of the lining removed and radiation treatment the tumor is still there, but they wont give chemo...

  • Forum Post: ABC's of CANCER. T,U, & V.

    Posted by
    Posted over 2 years ago
    T for thief and time. Time steals so much from you. We have always tried to use it to our best advantage. U is the unknown. Roger and I don’t know what is ahead but we keep on going. Just like that bunny that keeps going and going and going. We are going. I know I am planning our next cruise...

  • Forum Post: ABC's of CANCER. N & O

    Posted by
    Posted over 2 years ago
    N for NHS. Again for the non-UK people. The National Health Service. With the exception of that one “doctor”, see above under “M”. Just great to us. O is for overwhelming. How anyone can do this alone, I’ll never know. Especially in the beginning. There is so much...

  • Forum Post: ABC's of CANCER K, L, & M

    Posted by
    Posted over 2 years ago
    K Karma. If one wants to look at it this way, our lives were so fantastic, karma almost had to make it go the other way to compensate. L . Lister Hospital. Ten minutes away. Where all of this started and where Roger goes for his chemo treatment. The name Lister we’ve been lead to believe is...

  • Forum Post: ABCs of CANCER. F,G,H.

    Posted by
    Posted over 2 years ago
    F Friends and family. Thank you. We thank you. We just thank you. G is for grooming. Something I’ve forgotten about. One day I looked into the mirror and realized I hadn’t shaved in over 3 weeks. I knew when the flowers in the garden would wilt as I passed by. Or when the neighbour’s...

  • Forum Post: ABC's of CANCER C, D & E

    Posted by
    Posted over 2 years ago
    C is for cry. Why or why is crying not a way to lose weight? Life is not fair. For if it was, when I sat down, I’d be sitting on the front of my legs. C is also for chemo. It is our magic bullet that we are told, and hope, will give us time. D for drugs. Our table looks like a drug store...

  • Forum Post: 65 and still alive?

    Posted by
    Posted over 2 years ago
    My husband passed away in August, but wrote a book on his experiances on living with mesothelioma, inorder to help others and raise money for macmillan nursing and cancer research into this terrible disease. If you would like a read please visit www.livingwithmesothelioma.co.uk All proceeds will...

  • Forum Post: Compensation

    Posted by
    Posted over 2 years ago
    My husband was diagnosed in July last year (how well we remember the date), at the moment he's not too bad. He can do a certain amount still which helps him but he does get fed up because he's not as fit as he was and he gets tired quickly. He's 68 and was a build which is where he picked...

  • Forum Post: Re: His fight is over

    Posted by
    Posted over 2 years ago
    Dear Sue I m so sorry about your loss my husband lost his fight against this terrible decease on the 15th November. There is no words that anyone can say that will make you feel better, just remember he is no long in pain. Big hug Georgina x

  • Forum Post: Re: MesoVats Trial

    Posted by
    Posted over 3 years ago
    Hi Nikki I have mesothelioma and was diagnosed in april 2009. I writie a blog about my experience, warts and all. Here is the link http://ronnywhite.blogspot.com/ It may answer some of your questions. Do come back to me if I can help.
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