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  • Forum Post: just been diagnosed with dcis plus a small tumour

    Posted by
    Posted 13 days ago
    Hi , I've just been diagnosed with DCIS and also another site with a tumour on same breast . Meeting plastic surgeon tomorrow as having a mastectomy . Also due to have lymph node biopsy . Regarding being comfortable , trying to sleep etc . Does anyone have some advice regarding cushions etc ? ...

  • Forum Post: lymph node removal vs. radiotherapy

    Posted by
    Posted 27 days ago
    Has anyone else been given the choice of a full lymph node clearance or radiotherapy to treat the armpit. I have and I feel very confused! Am worried about making the wrong decision.

  • Forum Post: Avastin

    Posted by
    Posted 1 month ago
    My wife is about to start Chemotherapy for Bowel Cancer which has spread to Lymph nodes. The oncologist has got her onto the use of Avastin. It seems she is one of the lucky ones to be able to get the stuff. However when you look around the internet for information the results are pretty much the...

  • Forum Post: Re: Worrying if decision to have SNB is right

    Posted by
    Posted 2 months ago
    is it possible to check ones own groin for an "enlarged" lymph node instead of having to go back to see the surgeon?

  • Forum Post: New to all this.....

    Posted by
    Posted 2 months ago
    Hi all! I found a lump in my neck & thought I had mumps! went to doc. He refered me to ENT - thought I had blocked salivera gland. After numerous scans - ultersound, CT, & MRI, + byopsies, they think I have Lymphoma, they found 2 abnormal lymph nodes.. Then the scans found another mass...

  • Forum Post: Losing my beloved Grandma

    Posted by
    Posted 2 months ago
    Hi there, I've not posted on here before, so here goes. I think I just need to get it all out. I'm 23, and my beautiful 76-year-old Grandmother is dying from skin cancer. She's only got days left and I can't get my head around it. It's all happened way too fast. It all...

  • Forum Post: Coping with B.E.P Chemotherapy

    Posted by
    Posted 2 months ago
    Hi everyone I was just wondering if anyone here has been through BEP (Bleomycin, Etoposide, Platinol) chemotherapy for Testicular Cancer? My younger brother is just about to start 3 months of it tomorrow at the Memorial Sloan Kettering Hospital in NYC and I'm really worried about the side-effects...

  • Blog Post: Hello - my ramble into this blog

    Posted by
    Posted 3 months ago
    I so wish I had come across this site or thought about looking into it years ago. Now I'm here it will be a random stream of thoughts and experiences. I will be 45 on the 5th March - that's this Tuesday. I'm a self employed textile designer - lately it's been going really well....

  • Forum Post: Right supraclavical node enlarged

    Posted by
    Posted 4 months ago
    Hi noticed this yesterday. GP confirmed today. Pea sized. Got urgent appointment at the hospital Monday.Realise I will have to wait and see. Just wanted to share and see if others have had this thanks Triple negative breast cancer. Diagnosed 3/12. Age 46. 4.5 cm. 5/13 nodes. Stage 2...

  • Forum Post: Shoulder problems

    Posted by
    Posted 4 months ago
    Hi, it is almost one year since my mx and anc and I had to have some fairly instensive physio to my arm and shoulder to enable me to get it into position for radiotherapy. Over the past couple of months my shoulder, despite continuing with my exercises, is becoming less flexible and more painful. Has...

  • Forum Post: Just joined but been treated for Melanoma

    Posted by
    Posted 5 months ago
    Hi there. I was treated for Melanoma last year but I have just joined the online community today to gain some extra support. I have had an enlarged lymph node on the left side of my neck for a long time (very near the location of my melanoma tumour) and i am getting really worried about it. It is...

  • Forum Post: HIV positive + Hodkins Lymphoma = Unlucky but optimistic :)

    Posted by
    Posted 5 months ago
    Hey peeps - well, its only been 3 weeks since cancer diagnosis, so after having researched like mad "The Hodge" and ABVD I thought i would start chatting to some real people who have been there or going through the same "process" as I am. HIV was diagnosed back in 2007 and I have...

  • Forum Post: New member :)

    Posted by
    Posted 5 months ago
    Hi, This online community seems like such a great idea! Over the summer my mum was diagnosed with vulva cancer and Macmillan were so helpful. It's nice to just let things out rather then bottle them up. Thankfully my mums cancer was fairly early stage so she had some surgery (a wide local excision...

  • Forum Post: Re: Hi

    Posted by
    Posted 7 months ago
    Hi Macca,58 I am new to this board only signed up today and after reading your post felt that I should reply. I cannot comment on the effect the operation will have on your transplant or your Meds that is probably best discussed with your Surgeon. I had the Lymph nodes removed from under my left...

  • Blog Post: Cycle 1, Day 1 New chemotherapy treatment. ( Friday, October 22, 2010 at 1:08pm )

    Posted by
    Posted over 1 year ago
    Here we go again, I'm going to log it all down so I can remember what's happened. Appointment on Ward 3 at The Christie for 9am because I had my bloods done yesterday. Medicine wasn't here because Cisplatin is made up the same day as it only has a shelf-life of 24 hours. Went up to...

  • Blog Post: Advanced melonoma - Post op.Lymphendectomy

    Posted by
    Posted over 3 years ago
    My partner had his op on 23rd July. They were only able to remove 2 of the nodes. (They had planned to remove 4) he was discharged less than 24 hrs later into my care. None of his wounds were dressed. He had no disharge information (no post operative care) we are now waiting to hear about any follow...

  • Blog Post: Am I actually getting anywhere?!

    Posted by
    Posted over 3 years ago
    Well, we've raised the money for me to have treatment in London. Paid the deposit (£10,500), had the tests, now just waiting for test results from the bone marrow biopsy. MUGA heart scan results were fine. PET scan results.....not sure if it's good or bad news.........good news...

  • Blog Post: How bad can this 'thing' get!

    Posted by
    Posted over 3 years ago
    Hi Everybody, Long time again since last Blog and things don't get any better. Having had lots of problems with the Nephrostomy Tube fitted to my Husband's good kidney as he lost the use of the left side one during Chemo, we now face mets to the brain and 5 days of Radio in Liverpool. Also...

  • Blog Post: Anybody online 10.30pm Tues.9th Feb?

    Posted by
    Posted over 3 years ago
    Hi Everybody, A little 'background'. My friend, Bernie Quayle, is a presenter on our local radio station, www.manxradio.com (though listeners are worldwide via the Net). His programme is aired from 10pm - 1am Mon-Fri. I have asked Bernie to play a request for all of you at 10.30pm on...

  • Blog Post: Walking on eggshells.

    Posted by
    Posted over 3 years ago
    Well, my husband had his 10 days radiotherapy in Dec.09 (not Nov.as I said previously) which he sailed through with only minor tiredness. Christmas and New Year were spent very quietly, on our own. How difficult it is to make conversation when both are watching the same television programmes and only...

  • Blog Post: And more and more and more bad news

    Posted by
    Posted over 4 years ago
    It's been a long time since my last blog but life has been too horrendous to write about, not just for me but for anyone reading. So for all our sakes, I'm just going to write this quickly so that I don't have to think too much My husband got to his 3rd Cycle of chemotherapy, had an...

  • Blog Post: Update

    Posted by
    Posted over 4 years ago
    Sorry I havent been online for anyone who is a friend or been reading my blog. My laptop has been playing up at home so I think I finally got it resolved last night, at work at the moment and thought I would do a quick blog entry. Dad was at the physio last Thursday and she confirmed that it is the...

  • Blog Post: Stubborn dad

    Posted by
    Posted over 4 years ago
    Dads leg is sore all the time and swollen, he has a physio appointment at the hospice tomorrow, from what I have heard from some of my nurses they say they will strap his leg for the swelling build up which is caused by the blocked lymph node. His district nurse got in contact yesterday, she has just...

  • Blog Post: Mum into Hospital Tomorrow (if a bed available)

    Posted by
    Posted over 4 years ago
    Well mum goes into hospital tomorrow. She has been great up until today but was very weepy today - understandably so. She isn't afraid of the operation to remove the rest of her lymph nodes but of the results approx a week later, which we are all dreading. How will we cope if she gets bad results...

  • Blog Post: Another slide on the downhill slope

    Posted by
    Posted over 4 years ago
    We went to the pain management clinic yesterday, it seems that the tumour is blocking the lymph nodes in dads groin so his leg is swollen to double the size of his other leg. They are changing his medication he is being taken off the slow release and breakthrough morphine tablets and put on other kinds...

  • Blog Post: 25 September 09

    Posted by
    Posted over 4 years ago
    Just thought I would keep a blog of mum's illness. She was diagnosed with breast cancer through route screening and had her left breast removed approx 2 weeks later. They removed 3 lymph nodes at this time and we got the devestating news about 10 days ago that there was cancer there also. She...
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