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  • Forum Post: Just diagnosed...

    Hi I'm 23 and I was diagnosed with HL over the phone on Thursday, whilst at work. I was devastated at the time, but starting to feel a little bit more positive after reading some of the great advice available on the internet. I initially found a lump on my neck in July and this was removed...
  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Staging of HL

    I am posting this as i have spoken to people here before an merely updating.I have today received my staging and have been told I am a 1A nodular sclerosing type. I'm pleased with this as it obviously means the disease is limited. However I am making sure I don't become arrogant or blasé about...
  • Forum Post: Diagnosed with HL on 11/1/13

    Hi all. I have decided to join the forum after reading the very helpful posts. I have been diagnosed with HL on 11/1/13. I am awaiting confirmation of dates for scans and start of chemo. I do not yet know the stage of it. I am 25 years old and work as a firefighter. I have never touched a cigarette...
  • Forum Post: Currently receiving high dose chemotherapy (relapsed Hodgkin's lymphoma)

    It has been 36 hours of my first DHAP chemotherapy cycle. Chemo drug Cisplatin was given for 24 hours. The other chemo drug Cytosine was infused in two separate infusions about 12 hours apart for 3 hours. This chemotherapy is given with a lot of IV fluids, mannitol, steroids. Several blood samples has...
  • Forum Post: Re: Tests ongoing

    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...
  • Forum Post: Hypothyroidism after ABVD?

    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...
  • Forum Post: Re: newly diagnosed hodgkins lymphoma

    Hi Gayle I'm sorry to hear you've been diagnosed with HL. There's a range of really useful info on our website about treatment, living with HL and more: http://www.macmillan.org.uk/Cancerinformation/Cancertypes/LymphomaHodgkin/Hodgkinlymphoma.aspx There's also a great video (and...
  • Forum Post: Recurrent Hodgkin Lymphoma

    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...
  • Forum Post: RELAPSE - ANYONE HAD ESHAP?

    Hi I discovered last week that my Hodgkin's Lymphoma has relapsed - I was originally diagnosed in June 2010 with stage 4B and have 8 months of ABVD then went into remission. This time it's stage 2B (thankfully) and the first step in my journey is ESHAP chemotherapy which is due to start on...
  • Forum Post: Mumps/Tonsilitis & HL

    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...
  • Forum Post: Totally paranoid....

    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...
  • Forum Post: Fertility

    Im a 20 year old female. I was diagnosed with hodgkins lymphoma stage 4b. I started on ABVD and was told that it would possibly stop by period but they would more than likely return and my fertility would only have a small chancr of being affected, and i would more than likely have an early menopause...
  • Blog Post: Beginning the Fight Again

    Well, I thought this blog would be a great place for me to explore my emotions by writing about my second journey with cancer. I'm hoping that it will help motivate me prepare for surgery and do all the things that make me happy in life: playing and listening to music, cooking, gardening, reading...
  • Blog Post: Hodgkins lymphoma - Side effects of ABVD

    During prolonged chemotherapy (ABVD) for treating Hodgkin Lymphoma, apart from the usual unpleasant side-effects (loss of taste and hair being the first) I suffered from two serious ones: 1. Pulmonary fibrosis and interstitial thickening in lungs - resulting in pain during deep breathing, loss...
  • Blog Post: The Front Line...

    This is where I'll be updating my progress through a course of R-DHAP, BEAM, stem-cell transplant therapy and radiotherpay between October 2009 and March 2010. Friday 28th May Got a phone call from the gastro people yesterday, it seems that my haematology specialists have intervened to get...
  • Blog Post: Towing the line...

    The dreaded Hickman Line procedure under local is over and I now have a couple of new appendiges sticking out of my chest. Everything went well yesterday and even though I had to wait until late in the day for a bed it wasn't that bad. All in all I got myself into a bit of a nervous state and...
  • Blog Post: Sticking the boot in...!

    I got my biopsy results yesterday and they showed that as well as still having NLP Hodgkins Lymphoma, I now also have "Classic" Hodgkins Lymphoma and Diffuse Large B-Cell Non-Hodgkins Lymphoma. 3 at once... I don't appear to do things by half! My treatment will be two or three sessions...
  • Blog Post: Sticking the knife in...

    Well it seems a bit odd starting to write a blog at this stage but I guess it's better late than never. Here's what happened over the past 18 months to bring you up to speed: 2006? - Noticed a huge lump under my arm and spoke to my doctor about it. He said " ah, it's just fat!...
  • Blog Post: Hurrah! Treatment is over

    Hi All Well I finished radiotherapy to my right axilla last Thursday and apart from skin reaction and the occasional shoulder twinge I have survived it quite well. I have a back to work meeting next Monday and all being well I hope to go back to work, part-time, on the 23rd March. I am going to Coniston...
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