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  • Forum Post: Re: Recent Diagnosis of Gullet Cancer

    Posted by
    Posted 4 months ago
    My mum had her first 8 hour session of chemotherapy today and I am pleased to say she doesn't seem to be affected by it. It has not made her feel sick or diarrhoea but has been given tablets for both in case. She also had a series of tablets to start taking on different days? Is this normal for her...

  • Forum Post: Stable results after EOX. Husband wants a break in treatment, I'm worried.

    Posted by
    Posted 8 months ago
    Hiya all, We received my husband Russells scan results yesterday and we were told that after three infusions of EOX that his cancer of oesophagus and lung secondaries, are the same, no bigger, no smaller. So he has decided to have a six week break from Chemo, although he was supposed to be having...

  • Forum Post: Travel insurance

    Posted by
    Posted over 1 year ago
    advice needed - I have recently been diagnosed with Oesophagael cancer and secondary liver cancer. I am usually fit and well, so this has come out of the blue. Whole family devastated. I have attempted to obtain Annual worldwide travel insurance but without success. Can anyone help?

  • Forum Post: OC no surgery possible. Any sickenss/pain relief advise

    Posted by
    Posted over 2 years ago
    Hubby's tumour has grown back (4cm) and they can offer no more treatment.except for a stent in the future when the 'shape' is right. They've tried once but it wouldn't hold so abandoned it. If you've time, please read my profile where it's all explained). Now that rotten...

  • Forum Post: Re: It's back with a vengenace

    Posted by
    Posted over 2 years ago
    Ironically, the chemo unit just said the domperidone was 'to combat nausea from the chemo.' It was actually on the advice of the lovely lady I spoke to at the Oesophageal Patients Association who understood about the 'foam' and said to take two 30 mins before eating/ And, while there...

  • Forum Post: Re: It's back with a vengenace

    Posted by
    Posted over 2 years ago
    Hi Tony: thanks for that - I shall certainly ask for the Antepsin as well as Domperidone when we go to chemo 2morrw. It's nearly 2a.m. and I'm up cos hubby, having had a 'no food problems' day (haven't had pleasure of one of those for several weeks), woke up coughing and upchucked...

  • Forum Post: Re: It's back with a vengenace

    Posted by
    Posted over 2 years ago
    Dear Steve: Thanks for your words. In fact, so far, he only gets the pain after an 'episode' bringing up the frothy stuff and, thank goodness, the pain doesn't last for too long. I know that as things get worse, he will need serious pain relief - but right now, time the med kicked in, the...

  • Forum Post: It's back with a vengenace

    Posted by
    Posted over 2 years ago
    I haven't posted for ages. I won't bore you with details here (but have updated profile). Hubby's OC is back (4cm but no apparent spread 'scope showed) and begins chemo (3rd time lucky...) on Monday (31st), docetaxol this time; oncologist has said it's palliative but hubby says "it...

  • Forum Post: Re: My father has just been diagnosed with cancer of the Oesohpagus

    Posted by
    Posted over 2 years ago
    gaynor, my dad was diagnosed just over 1 month ago, he was told that the cancer was too advanced now to to operated on. i saw him about a week before it was diagnosed and since then his voice has got much quieter...they are going to do a bronc to look at his voice box tommorrow. I seem to be able to...

  • Forum Post: My father has just been diagnosed with cancer of the Oesohpagus

    Posted by
    Posted over 2 years ago
    hi I am feeling pretty sad that I had to become a member , but my dad who is 73 has been diagnosed with unoperable cancer of the oesophagus. I live a way from my parent and have only been told by my mum that its inoperable and they are going to put in a tube to help Dad with food.. Dad has a apointment...

  • Blog Post: I think it's back .....

    Posted by
    Posted over 2 years ago
    2005 hubby had surgery to correct abdominal aortic aneurysm. Two years recouperation, then diagnosed oesophageal cancer (where meets stomach) in 2009. At first had pre-op chemo only to be told one week before surgery that tests showed his heart wouldn't withstand it. So (only other option) January...

  • Forum Post: What to expect post op??

    Posted by
    Posted over 2 years ago
    My grandad is currently fighting oesophageal cancer (9cm tumor with lymph nodes) and is having an op next week. He has had chemo which has made him weak and is now about to have the entire gullet removed and his stomach moved into his chest cavity! I have done some reading into the op and i think i have...

  • Blog Post: Me & It, my cancer journey

    Posted by
    Posted over 2 years ago
    This is a link to my blog ' Me & It ': http://me-and-it.blogspot.com/

  • Blog Post: Funeral Tomorrow :(

    Posted by
    Posted over 3 years ago
    Monday is the day of Tony's Funeral. I am feeling a bit weird because I am strangely looking forward to it. There have been so many lovely gestures - peole writing and reading tributes, a friend playing bagpipes, army collegues in uniform and playing the trumpet, many many guests attending and a...

  • Forum Post: Increasing pain since completeion of RT - Head & Neck

    Posted by
    Posted over 3 years ago
    Hi, Am I peculiar ? Completed 35 xRT, got through the pain and spitting stages and pain receded. The pain is now back and quite severe on RH side of neck at rear.Co-codramaol no longer works, neither does Tramadol. At my 2nd post RT (ended 18 Jun) review last week I was told everything was going to plan...

  • Forum Post: Post Ivor Lewis - feel like going backwards

    Posted by
    Posted over 3 years ago
    Hello, this is my attempt at a forum post - i have also (accidentally!) posted the same as a blog. I was diagnosed with oesophageal (gullet) cancer in September 2009. After 2 sessions of chemo in December 2009 and January 2010 I had the Ivor Lewis procedure on 17 February 2010. Due to complication...

  • Blog Post: one year after OC diagnosis

    Posted by
    Posted over 3 years ago
    I haven't posted for a while but thought I would share some news that I hope will give encouragement to those who, like my husband, cannot have the surgery (see my earlier blogs/posts). It's a year this month since diagnosis. Radical radiochemo finished end this Feb & a subsequent CT was...

  • Blog Post: Oesophageal cancer.How things change ...

    Posted by
    Posted over 3 years ago
    Husband is 75 and for a few months had suffered from excessive burping when eating/drinking. July 2009 Went to GP after suddenly almost choking one day. GP (bless him) immediately arranged for camera-down-throat job at Southend hospital. We had thought they'd say hiatus hernia or similar...... However...

  • Blog Post: wed 11th nov 09

    Posted by
    Posted over 4 years ago
    I wasn't gonna go and see my dad tonight but i wanted to after him having his stent fitted. my mum came and sat with matthew so i could go. Stent in and now its just recovery from it. Dad's friend charlie was there when i got there, he said dad had been sick after tea and dad said he'd...

  • Blog Post: tues 10th nov 09

    Posted by
    Posted over 4 years ago
    well today was my first day back at work after my 2 weeks off sick with stress. actually fely good to be busy doing other stuff. i went to see my dad after work today and yeay he's havinh his stent fitted tomorrow, hopefully he'll start eating again. he was so tired as he's not sleeping at...

  • Blog Post: mon 9th nov 09

    Posted by
    Posted over 4 years ago
    well today i went to see my dad with my sis. he was ok but in pain. said the physio had worked him too hard but was saying it all getting too much. he said he's always been able to cope with pain but not this much. he hadn't eaten much today but at least he'd tried. had a good chat about...

  • Blog Post: sun 8th nov 09

    Posted by
    Posted over 4 years ago
    hi all Dunno if this is right but im gonna start this blog as a bit of a diary of my life at present, especially my dad's fight with cancer. Im gonna try and put an entry in for every day, so i can look back at any good times and can remember when things happen. A quick run down of life...

  • Blog Post: Oesophageal cancer ECX then surgery

    Posted by
    Posted over 4 years ago
    Husband is 75 and for a few months had suffered from excessive burping when eating/drinking. Went to GP after suddenly almost choking one day. GP (bless him) immediately arranged for camera-down-throat job at Southend hospital. We had thought they'd say hiatus hernia or similar...... However,...

  • Blog Post: A cry for strength

    Posted by
    Posted over 4 years ago
    Hey - SO, David went for his CT today to inform his tatoo markings for radiotherapy just approved by Army hierarchy here in Germany. SO, Dr told us from results no radiotherapy as he now has 10 mestastisis in his lungs (only 6 weeks post oesophagectomy). So, urgent medical repatriation to UK next step...

  • Blog Post: Need Your Help Please...

    Posted by
    Posted over 4 years ago
    Does/has anyone out there suffer/is a carer of a sufferer of sleep apnea following surgery? Husband has had esophogectomy and from all I have read, he should be sleeping like a baby pretty much most of the time in this post-op recovery stage!!! However, he can't even sleep at night (sleeping pills...

  • Blog Post: Husband home but Pathology brings it home!

    Posted by
    Posted over 4 years ago
    Hey Blog Buddies - 1 x 7-hour operation, 1 week in ICU, 1 week on the ward, 1 HIDEOUS first day and night of pain at home, 1 pathology result that was not good news, 1 session of acupunture to 'release energy' trapped by surgery...amazing (good to watch though), 1 infusion cocktail of vitamins...
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