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Forum Post: Worn out and freaking out! Hubby's DLBCL

Posted by Dusk
Posted 1 month ago

So, my hubby and I have had an extremely busy four weeks. We've had: -A surprise diagnosis of DLBCL after a routine wisdom tooth extraction. -GP appointment -A bone marrow biopsy -First blood tests -A PET/CT scan -A CT scan -Initial meeting with consultant haematologist, which...
Forum Post: Coping with B.E.P Chemotherapy

Posted by Danito
Posted 1 month ago

Hi everyone I was just wondering if anyone here has been through BEP (Bleomycin, Etoposide, Platinol) chemotherapy for Testicular Cancer? My younger brother is just about to start 3 months of it tomorrow at the Memorial Sloan Kettering Hospital in NYC and I'm really worried about the side-effects...
Forum Post: Re: After Chemo Therapy & Survival

Posted by JayV
Posted 1 month ago

Thank you Twirly and Debbie. Your responses are really helpful. I have just heard I am not to have chemo but am in the "control"group, so at least I will have additional checkups and will have less worries about energy levels for the time being - though I gather it can take a while to get fully...
Forum Post: Re: First R-CVP treatment today

Posted by Jannie
Posted 1 month ago

Hi there, Glad it is going well for you, and that the first step is over. I am currently having radiotherapy on my eyes, (that is all I will need for the moment, even though my lymphoma has spread to just under my ear, and in my stomach), but will eventually have to have R-CVP at some stage. Although...
Forum Post: Re: Fatigue

Posted by Stuey
Posted 1 month ago

Hi Pat , I have been having chemo every 21 days for the last 12 months and when I've had my radiotherapy I will be back on it . After about 3 days I get very very tired and everything is an effort this lasts a few days then I start to feel better by the second week I feel ok but the third I'm...
Forum Post: It's come back...

Posted by theotheralig
Posted 2 months ago

Almost exactly 2 years on from my initial diagnosis for Ovarian cancer, it has returned. My abdomen swelled hugely quite quickly. I spent 3 days in hospital having 5l of fluid removed and various other tests. The upshot is that my peritoneum has a covering of cancerous cells and my Ca 125 is 1100. I...
Forum Post: Hubby starting R-CHOP for Diffuse Large B-Cell Lymphoma next week - What about fertility?

Posted by Dusk
Posted 2 months ago

Hi, My OH is beginning chemo next week for Diffuse Large B-Cell Lymphoma next week. We've begun the referral process for sperm banking in case this affects his fertility but he's still not sure. We have no children and I know I would like the option for us to have some in the future but he's...
Forum Post: Time Off Work / Return to Work

Posted by pdjroberts
Posted 2 months ago

Hello I was diagnosed with T3 bowel cancel in June 2012 and selected to take part in the "Foxtrot Trial" which meant three courses of chemotherapy (Oxy and 5fu) before surgery, followed by a further nine adjuvant chemotherapy sessions I was able to continue working through most of my treatment...
Forum Post: Re: not responding well to abvd

Posted by tinnedfruit
Posted 2 months ago

ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
Forum Post: Re: Waiting....and waiting.... doesn't it cause more stress?

Posted by poemsgalore
Posted 2 months ago

Hi Lynne I to am on Fec T, but not bothering with Cold Cap. Don't really know whether you can use it with Tax, but I know several ladies who are using it with Fec, with mixed results. This quote from the booklet on Tax might help: "Docetaxel causes hair loss. Most people will lose all...
Forum Post: Re: FEC-T

Posted by poemsgalore
Posted 2 months ago

Hi Amber Today I lust had my 2nd Fec of Fec T, first one went well. I had no nausea or sickness, just a bit of oral thrush which made my mouth sore, but was soon sorted out. Slight constipation for which I used fresh apples, or dried raisins/cranberries and senna tablets. My biggest side effect...
Forum Post: A little information and some advice please?

Posted by Liquorish
Posted 2 months ago

Hello, I just signed up today after a bit of a devasting weekend. My Dad's been diagnosed with Small Cell Lung Cancer. After a tearful couple of days, I've decided to reach out and ask for some information and support. So basically my Dad started feeling unwell about a month ago, he got a really...
Blog Post: Operation Seek and Destroy

Posted by Bonnie2010
Posted 11 months ago

Starting to feel a bit apprehensive now and the realisation that I am having chemo tomorrow because the cancer is back is beginning to kick in. Not sure if I can go on the trial yet due to protein in my urine. Always runs with protein in due to urostomy but trial criteria is strict and won't find...
Blog Post: The littlest hobo of east lancs NHS trust

Posted by Ikkle_Miss
Posted over 1 year ago

Leah hit the nail on the head. I am a NHS bum. Bumming ( immature I know, but still funny) from hospital to hospital - tonight I referred to our house as Carl's. So I'm back in Blackburn having just completed a blood transfusion which znno electric bed ( this makes me think what am I gonna be...
Blog Post: Keeping sane!

Posted by Claire B
Posted over 1 year ago

Another steroid fuelled evening.... yes it is 2:30am... ridiculous! I will definitely be sleeping for 3 days once the steroids wear off! Apparently some people have no problems with steroids and feel no side effects, I am clearly not one of them.... and to be honest, I’ve yet to meet someone who...
Blog Post: New to blogging...

Posted by Claire B
Posted over 1 year ago

Hello, My name is Claire and I have never blogged about my cancer experience before... I was diagnosed with ovarian cancer in July 2009, a few months after my 30th birthday and well, as anyone who has been through this will know, it was a shock (to put it mildly!). Since then, I have had 4 surgeries...
Blog Post: THE MAN WITH THE SILVER HAIR !!!!!!!!

Posted by ruby500
Posted over 1 year ago

My annual check up is coming up this month with my breast surgeon who lets face it saved my life!!! I think he sees me as one of his many personal triumphs as he always calls me his star patient, I think that is because I was never one of those types to question anything, I just did as I was told...
Blog Post: Back to the Buddhism

Posted by Allmandy
Posted over 1 year ago

So I went through the slough of despond after chemo 4 as the veins in my left arm packed in and being left handed it was as if my world imploded. So the rest of the chemo was pumped into my right arm and I stayed home fighting the petty miserable side effects willing it all to be over. Now Im back...
Blog Post: Top tips for making BEP chemo manageable

Posted by gregm
Posted over 1 year ago

I guess we all react to BEP chemo differently, based on our biological make-up, age and general health. For me it was the stuff around the chemo that I could have andled better, as the chemo itself was ok. If I had to give advice to anyone about to start this regime, then it would be as follows: ...
Blog Post: Advent - Impermanence and being positive

Posted by Allmandy
Posted over 2 years ago

The weekend after session 3 of FEC, On the positives I still have my hair, my teeth, ny gums and most of my stomach contents. However I'm incredibly tearful at anything and nothing. Many of my friends seem to have lost parents over the ast few months and so I am very luckyt to have 2 able and fighting...
Blog Post: When should you demand answers?!?!?

Posted by in need of answers
Posted over 2 years ago

Well mum went into hospital today for her hickman line putting in :) treatment will be easier from here on in! She received her first treatment today - not chemo but a 3 hour radioisotope infusion to help with the pain in her bones. To be honest I have no idea if or when they will start chemo...
Blog Post: the power of a little pill!!!

Posted by in need of answers
Posted over 2 years ago

It's not often you want to rave about something. Anyone who has read my blog knows my mum recently has been controlled by pain to the extent a normally strong and stubborn woman has been reduced to telling us incessentally that she loves us and apologising for all she is putting us through, that...
Blog Post: ..hospital admission for husband

Posted by EmilyJay
Posted over 2 years ago

Thurs 25th Unfortunately Alan did have a bad night last night, he could not keep water down and was vomiting every hour. At 6.45am my son went off to his football tournament and at 8am we rang the line straight to the oncology ward. They said they were full and could we ring the GP. My daughter went...
Blog Post: A long day...

Posted by EmilyJay
Posted over 2 years ago

Weds 24th, I did not plan for a busy day but it turned out to be crazy . Alan had a restless night, but was not sick in the night.The puppy woke up at 6, everyone else laid in till 9. Alan had no appetite but drank more water which was good, he hates the taste of water and most squashes so it's been...
Blog Post: Another one!

Posted by lovelybones
Posted over 2 years ago

Today I had another adventure with my post chemo experiences....I was chatting to a friend while having lunch. She has been taking some pills and swalllowing them with water. When I was in hospital iI literally begged the nurses to give me injections instead of pills, as they just made me even more nauseaous...

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