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  • Forum Post: Re: Nearly 39 years since my Hodgkins lymphoma diagnosis and still going strong ... up to a point

    Posted by
    Posted 7 days ago
    Hi Petalmore, Thank you for your post! Although it was a while ago now so I don't know if you still come online? I am so grateful to see some information from someone else who has had Hodgkins Lymphoma and is a long term survivor. I had Mantle Radiation and then Chemo' (I cant remember the...

  • Forum Post: Re: chemo

    Posted by
    Posted 9 days ago
    Usually about an hour to feed through the drugs.....just depends on how busy the nurses are getting you set up/warmed up etc...I have been there for about 2 hours before! Goes quite quick though as the nurses keep you engaged. Will this be your 1st ever chemo?

  • Forum Post: To Chemo or not to Chemo...that is the question. (Chemo during radiotherapy advice needed)

    Posted by
    Posted 12 days ago
    Hi everyone. I am looking for some advice for my closest friend. I know whether he decides to have chemo or not is his own choice. But I have promised to gather as much information for him as I can find, to help him through this and help him make the best decision for him. What ever his decision I...

  • Forum Post: Is there an answer?

    Posted by
    Posted 13 days ago
    Hi everyone, I have joined here as I very recently found out my aunt has lung cancer. Now I don't know the specifics, I don't know much at all about cancer, but what I do know is it started in the lung but spread to the pipe just before it splits into two entering each lung (is this the trachea...

  • Forum Post: Concerned about upcoming chemo...

    Posted by
    Posted 20 days ago
    Hi all, I recently had surgery to remove a tumour from my colon, and was told I was a Dukes B. I am just out of hospital and recovering from surgery, and my oncologist wants to get me going on adjuvant chemotherapy this week (2 weeks after surgery). I have some questions... Firstly, I would imagine...

  • Forum Post: Starting chemo in May

    Posted by
    Posted 23 days ago
    Hi, I've joined this site and I have breast cancer. I'm starting my chemo on 10th May FEC-T and am looking to chat to other people in a similar situation to myself. Thanks

  • Forum Post: Re: Don't think decorating and chemo mix

    Posted by
    Posted 27 days ago
    Just had one cycle of Tax, couldn't hack it. Ended up in hospital with neutropenic sepsis!! Felt awful with the pains and exhaustion. Oncologist is putting me back on Fec which I tolerated well. Admire anyone who can manage the whole Tax thing.

  • Forum Post: Re: Chemo decision, advice required

    Posted by
    Posted 27 days ago
    Hi HilaryAnne My situation was similar to yours, tumour 3cm, Grade 3, but was ER+, PR+, HER2-. Three nodes removed, one of which was affected by cancer. By choice I am having chemo. Originally FEC-T, but my one and only experience of TAX was a bit of a disaster so my oncologist has put me back on...

  • Forum Post: My dad's lost appetite

    Posted by
    Posted 29 days ago
    Hello everyone, I am new to this site as my lovely dad was diagnosed with lung cancer a few weeks ago. To be totally honest it feels like my whole world has come crashing down, things have happened so quickly and he has gone downhill so much in such a short amount of time. We don't know the full...

  • Forum Post: peripheral neuropathy trials - duloxetine

    Posted by
    Posted 1 month ago
    Hi - its a while since I posted. I wondered if anybody else had been offered to go on the duloxetine trial. my Oncologist has just prescribed the tablet an anti-depressant which offers benefits for those of us who are suffering with peripheral neurapathy (numb fingers / toes and in my case 'bum'...

  • Forum Post: Keeping your head warm at night when losing your hair

    Posted by
    Posted 1 month ago
    My Hubby is beginning to lose his hair after his first round of R-CHOP (we're now on day 18) and I'm worried about his head getting cold at night. Has anyone got any recommendations or tips on hats, caps and other methods of keeping your head warm at night? At first I thought a fleece hat might...

  • Forum Post: Keeping your head warm at night during chemo

    Posted by
    Posted 1 month ago
    Hi, has anyone got any recommendations or tips on hats, caps and other methods of keeping your head warm at night. My Hubby is beginning to lose his hair after his first round of chemo and I'm worried about his head getting cold at night. At first I thought a fleece hat might be a good idea but then...

  • Forum Post: Keeping your head warm at night during chemo

    Posted by
    Posted 1 month ago
    Hi, has anyone got any recommendations or tips on hats, caps and other methods of keeping your head warm at night. My Hubby is beginning to lose his hair after his first round of chemo and I'm worried about his head getting cold at night. At first I thought a fleece hat might be a good...

  • Blog Post: Ovarian Cancer

    Posted by
    Posted 2 months ago
    I have not blogged for quite a while so to fill you in. I had Topotecan in May it was a weekly infusion again. At first the chemo looked like it was working then my blood count was too low every third week so would have a week off even though the dose was lowered. For the Chemo to work I needed it...

  • Blog Post: Could have been better...

    Posted by
    Posted 2 months ago
    I’ve not been writing… I’ve been grumpy…. basically I’ve been awaiting a CAT scan and then the results of said scan, to find out ‘what next’. Its proper horrid when your life is up in the air and you’ve no idea how to plan for the months or weeks...

  • Blog Post: phew...only a registrar

    Posted by
    Posted 2 months ago
    …so that’s okay then. That explains my overlong visit and descent into worry… the person I saw on Monday is a new(ish) and enthusiastic registrar. No wonder I was in there so long. Yesterday was R-CHOP (chemo) number 5. Having had a vomiting session the day before (very...

  • Blog Post: egads… this glass may not be totally full but actually half empty

    Posted by
    Posted 2 months ago
    You know what I hate? When medical bods disagree with each other. I’m up for my 5th R-CHOP chemo on Thursday and then my consusltant had me down for a CT scan…. and after that they’d make a decision as to whether I’ll be having the rest of a 6 cylce course (ie one more...

  • Blog Post: Week/Weak 1

    Posted by
    Posted 3 months ago
    I'm one week into my treatment for Hodgkin Lymphoma and in all honesty not feeling half as bad as I expected. I'm aware that this will probably change and I won't be able to carry on "as normal" as I have been this last week, however I'll try to as long as I can. This week...

  • Blog Post: 2013

    Posted by
    Posted 3 months ago
    Little update of what happened, even though i still dont know details. Lots of concern in me as first big batch of cancer n chemo i coped fine with, this second lot has taken my year away. In Dec they wanted to give me 5fu for the secondary sore breast that turned up after bowel shrunk. So couldnt get...

  • Blog Post: run up to third chemo session

    Posted by
    Posted 4 months ago
    Someone sent me a note of slight concern today as I’ve not been blogging… they were worried about me being bogged down by my chemo. Actually its quite the contrary… the last few days (maybe as much as a week – lucky me)! I’ve felt pretty much normal… the...

  • Blog Post: What a pain

    Posted by
    Posted 4 months ago
    (24 Nov, 2012) s’been a wobbly week painwise… being sent home with paracetamol from the hospital… having it upped by a GP to low strength co-codamol…. followed the next day by my usual GP upping it to high strength co-codamol. By Thursday I hadn’t had much...

  • Blog Post: Oh happy news!

    Posted by
    Posted 8 months ago
    I am feeling much more positive and thought after my last blog update I should post another as a result. Was in quite a low place when I posted last time. I think hearing news of others losing their battle always affects you and with chemo zapping all my white blood cells, platelets, energy and optimism...

  • Blog Post: Chemo - I hate you almost as much as i hate cancer... almost...

    Posted by
    Posted 8 months ago
    I know chemo is my friend but today i still have that disgusting taste in my mouth, i've had to drop the painkillers as I reacted badly, I still have stomach ache and now nausea. My mouth is getting better but the same cold sores are visiting again. and sleep is apparently visiting someone else!...

  • Blog Post: Not so bad this time round! Take heart...

    Posted by
    Posted 8 months ago
    Its now day 7 after my 5th chemo (Docetaxel) and i am so encouraged its better than the last one where I literally wanted to die! The limb pain is there but being numbed by painkillers, the mouth is just starting to get sore, and the numbness in my toes isnt scary once you know it wont last. feeling...

  • Blog Post: week 5 chemo

    Posted by
    Posted 8 months ago
    just got back from my fifth and penultimate chemo. i suffered horrendously after the last one and the doc couldnt say it wont happen this time but i now own a small pharmacy with detailed instructions for all the 'if this happens..' scenarios. was booked in at 9.15 and as i had bloodtest tues...

  • Blog Post: Helping my MIL through her treatment

    Posted by
    Posted 9 months ago
    Hi My MIL has just started her chemo (yesterday). She was very upbeat and was, pleasantly suprised at how much better it was than she had feared and initillly thought. She returned home after 2 hours drip feed treatment with steroids and was very positive. Today, she has woken in a very different...
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