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Forum Post: Worn out and freaking out! Hubby's DLBCL

Posted by Dusk
Posted 1 month ago

So, my hubby and I have had an extremely busy four weeks. We've had: -A surprise diagnosis of DLBCL after a routine wisdom tooth extraction. -GP appointment -A bone marrow biopsy -First blood tests -A PET/CT scan -A CT scan -Initial meeting with consultant haematologist, which...
Forum Post: Re: First R-CVP treatment today

Posted by Jannie
Posted 1 month ago

Hi there, Glad it is going well for you, and that the first step is over. I am currently having radiotherapy on my eyes, (that is all I will need for the moment, even though my lymphoma has spread to just under my ear, and in my stomach), but will eventually have to have R-CVP at some stage. Although...
Forum Post: Re: not responding well to abvd

Posted by tinnedfruit
Posted 2 months ago

ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
Blog Post: Week/Weak 1

Posted by trean
Posted 3 months ago

I'm one week into my treatment for Hodgkin Lymphoma and in all honesty not feeling half as bad as I expected. I'm aware that this will probably change and I won't be able to carry on "as normal" as I have been this last week, however I'll try to as long as I can. This week...
Blog Post: run up to third chemo session

Posted by eclectic chicken
Posted 4 months ago

Someone sent me a note of slight concern today as I’ve not been blogging… they were worried about me being bogged down by my chemo. Actually its quite the contrary… the last few days (maybe as much as a week – lucky me)! I’ve felt pretty much normal… the...
Forum Post: RELAPSE - ANYONE HAD ESHAP?

Posted by sazzmo
Posted 10 months ago

Hi I discovered last week that my Hodgkin's Lymphoma has relapsed - I was originally diagnosed in June 2010 with stage 4B and have 8 months of ABVD then went into remission. This time it's stage 2B (thankfully) and the first step in my journey is ESHAP chemotherapy which is due to start on...
Forum Post: Re: New to CLL & new to talking to strangers about my problems

Posted by Cymro
Posted 10 months ago

Hi All, First post so I thought this was the best thread to start in. I'm 46 (just) and was diagnosed with SLL a few weeks ago. Initially it looked like Mantle Cell Lymphoma until the biopsy results came in then I was told its SLL. P53 negative but progressive Stage A and so treatment seems the...
Forum Post: Anyone had headaches as a side effect from chemo??

Posted by AliM
Posted 10 months ago

Hi Everyone, hope you are all well! My husband is due to have his 4th cycle of chemo this coming Friday. He has been suffering from headaches for the past few weeks (almost every day). I was wondering would this be a side effect from his chemo and had anyone else experienced this? I have looked on...
Forum Post: Hello guys, any help appreciated

Posted by Tina 1966
Posted over 1 year ago

Hi everyone, My husband Kev has had Non Hodgekins Lymphoma for the last twelve years and has had six relaspses with chemo treatments and a stem cell transplant four years ago. The latest relapse started last year and has transformed to high grade follicular Lymphoma for which he's had mini beam...
Forum Post: MacMillan Christmas Balloon at One O'Clock

Posted by JoansDaughterLiz
Posted over 2 years ago

MacMillan - we need a balloon that could help fundraise & help us. Christmas is coming & so many of us have either lost someone close or is helping someone close to us fight this disease, so why is there not the MacMillan balloon which is released at one o'clock on Christmas day to the...
Forum Post: Guilt

Posted by memphiskid
Posted over 2 years ago

I have an agressive type of CLL , started my Chemo on the 10/11 November. My tablets started the next day for a week. I am having F.C.R treatment. I have become very guilty that iam not at work. Looking at the books and information on this website alot of people do go back to work during treatment but...
Forum Post: Re: results after 6 months of abvd

Posted by tinnedfruit
Posted over 2 years ago

Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
Forum Post: Awful jaw/tooth pain

Posted by smiley_rach
Posted over 3 years ago

Hi I had my first cycle of R-CVP chemo for non-hodgkin B Cell lymphoma on Thurs 9th Dec and since Sat I have had the most awful pain in my jaw/teeth/face... like the tiny nerves are being pricked by millions of pins. The pain is constantly there but gets suddenly worse when I put food in my mouth...
Forum Post: Re: worrying wife

Posted by tinnedfruit
Posted over 3 years ago

Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
Forum Post: Re: not responding well to abvd

Posted by tinnedfruit
Posted over 3 years ago

Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
Blog Post: Chemo end

Posted by nanaboo
Posted over 4 years ago

Well 6 months have gone and Alan had his last chemo today .He has a scan on 28th then see the doc in october ,we will have fingers crossed,Thks to all that have given support .No fellow chatters i am not planning on going just yet .Ofrf on holiday next Mon for 5 days it will be a break and a change of...

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