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  • Forum Post: Advice/thoughts on planning holidays & any specialist protection/policies out there for us who want to travel?

    Hello this is my first post - it was going to be brief but I've added my emotions and thoughts to support my question. I’m 31, female and only child from a small family. My mum had an abdominal cancer diagnosis in Jan 14. At present she is in remission having responded well to chemo and feeling...
  • Forum Post: confusing prognosis

    Hi everyone. I'm just wondering if anyone else has been given confusing/misleading prognosis? I accept this is not an exact science. My partner Mimi is stage 4 group B. When she was first diagnosed, the oncologist told us she had up to 8 years, as she was not responding to chemo and her CA125...
  • Forum Post: Diagnosis

    Hi, Be really grateful if someone could help me with the following. Have had a few problems as my Husbands operation was in one hospital but he has been referred to another as that is where the Oncologist is. Currently waiting for an appointment although when I phoned the Oncologists secretary for an...
  • Forum Post: Immediate versus delayed reconstruction

    Hello, I'm due to have a right mastectomy with axial lymph node clearance on 11th August, followed by chemo and possibly radiotherapy. The thought of only having one breast for ages depresses me and I would like to have immediate reconstruction. My surgeon hasn't refused to do this but he has...
  • Forum Post: End of life

    I have incurable liver cancer and have a time frame of six to nine months with chemotherapy. I am already three months into this. My McMillan nurse has been absolutely fantastic but will not give me any symptoms I should be looking out as my time draws nearer as she doesn't want them to be in my...
  • Forum Post: I've just lost my mum to cancer and I feel so alone

    Hello, Two weeks ago today I lost my mum to cancer. We think it was prostate cancer but they are still unsure. See only go diagnosed three weeks before she passed away. I feel so alone, scared, heartbroken and angry and I don't really know what to do. Everyone says it will get better with...
  • Forum Post: A new guy, with questions :))

    Hello :)) First of all of course i just want to thank you all for your times, advices and everything you do here, you've been helpful to me so much, and i think also to a lot of people who only come and read but don't write, so thank you again :) Me my self, was diagnosed with TC in May...
  • Forum Post: Lost my Taid (Welsh for 'Grandad'). Devastated :( Far away from hometown.

    Hello all, I lost my Taid over the weekend to advanced cancer (12/7/2014) . It started around two months ago when he was concerned severe back pain that he was having. He found it hard to move. Over the course of a month, we found out that he had cancer in his spine, liver and an unknown primary source...
  • Forum Post: Fibroadenomas and breast cancer.

    I just turned 22 on last Wednesday and I have my second check up at the hospital on Friday for a lump I've found in my breast. The doctors say it is a Fibroadenoma. My mum had breast cancer and died a month after my 15 birthday and my boyfriend's mum had it 2 years ago and was given the all...
  • Forum Post: Fibroadenoma and breast cancer.

    I just turned 22 on Wednesday and I have my second check up at the hospital on Friday for a lump I've found in my breast. The doctors say it is a Fibroadenoma. My mum had breast cancer and died a month after my 15 birthday and my boyfriend's mum had it 2 years ago and was given the all clear...
  • Forum Post: Chemo and infection

    HI! so, some of you already know my story... Started my BEP 111 trial last week, double dose Bleo, Double dose Cisplatin and etopaside - Well... felt like death warmed up within about 2 hours of it starting... that didnt stop until about day 5, home and started to feel a bit better until I went...
  • Forum Post: I was diagnosed with Basal Cell Carcinoma, Nodular Type on June 26-2014 I have had a spot by my eye for at least 20 years,

    I was diagnosed with Basal Cell Carcinoma, Nodular Type on June 26-2014 I have had a spot by my eye for at least 20 years, really never got any bigger over the years. I'm scared to death it might of spread to the brain or somewhere else in the body. My Dermatopathology report say under microscopic...
  • Forum Post: RE: Tarceva Help,,,,

    I have NSCLc in May 2012 and went though radiotheraphy, chemo and pneumonectomy of the right lung. I am on Tarceva for the last 5 months and my first pet scan after 3 months was quite positive. I am due another one in a months time. I have side effects such as skin rash and duarrhoea. I get frequent...
  • Blog Post: TechnoJoy

    Have just Sussed out how to add to my blog via my new iPhone so expect a long post tomorrow. Generally speaking I am physically feeling better but reliant on my brilliant wife to look after me due to med requirements and not being able to drive etc. am oh so conscious that I am not communicating by voice...
  • Blog Post: Hello again

    Hi Everyone, So I haven't written on here for a while. To be honest I haven't written anywhere, I haven't thought and I haven't felt. It feels weird and slightly stilted coming back here and trying to be honest with myself because I've been doing a really good job of shutting everything...
  • Blog Post: Find Macmillan in your neighbourhood

    Macmillan’s new 'In your area' page brings together all our local services and opportunities in one place. Type in your postcode or location, and can see what’s going on near you, including: services for people affected by cancer volunteering opportunities fundraising...
  • Blog Post: Missing mum

    So mum passed away in November after battling away - it was all very sudden and she did not suffer. In a strange way I felt a sense of relief knowing she was not going to have to go through months and months of deteriorating, getting worse and us having to get options for her care sorted so that she...
  • Blog Post: MPs back Macmillan's call to end the carers crisis

    On Monday 16 December, MPs discussed how to improve the Care Bill at its second reading at the House of Commons. Thanks to our campaigners, we’ve made sure every MP in England* knows about Macmillan’s Do you Care? campaign . 34 MPs have met with people who look after loved ones with cancer...
  • Blog Post: Slow Release Pain Relief

    Now 0130hrs and am just waiting for PEG feed to force down a few more millilitres so I can tick another portion off my nutrition list. Switched to long lasting pain relief yesterday evening. Good news is that the tablet offers 12 hours pain relief, therefore in theory that could equal twelve hours unbroken...
  • Blog Post: First post and story so far

    About me: I am an ex nurse, now medical Sales Rep. I got divorced earlier this year and have 2 amazing kids. Boy of 10 and girl of 15. I've been through a tough 3 years and I'm finally getting everything in place to move on with my life. That was until a few weeks ago...... Last year I went to...
  • Blog Post: On to Morphine...

    Finally realised that I had to step up pain relief to morphine last night. My account of last night is pretty graphic so skip this blog if you need to... First spoonful at 5pm made me feel a little nauseous, a bit light headed and slightly number to the pain. I soon realised that the initial dosage of...
  • Blog Post: Pain Train Gathers Speed

    Started tube feeding yesterday (Monday) evening, and was really lazy by not eating anything by mouth. Made up for it by drinking a thick tasty beverage in the form of a chocolate complan shake (its about as good as it gets!). Stomach gurgled throughout the night. Despite being given the morphine yesterday...
  • Blog Post: Garden Pub Name

    I mentioned yesterday about my garden pub which is my little treat and belated chrimbo prezzy and have had quite a few names being suggested. Our house is named Stanhope (which is an old car, or two seater horse drawn carriage - google it for pictures) and I want that name in the title. Conventional...
  • Blog Post: Not Another Manic Monday

    And so, into Week number 4 of treatment and I seem to have forgotten the normal monday morning panic of getting back into work after a weekend off, of having to quickly prioritise tasks for the week ahead against all the Monday morning fastballs, and having to rejig my programme to suit. Today, to be...
  • Blog Post: Disbelief

    Evening All, For me I have to say that the hardest part of this whole shitty journey is the fact that nearly three months later I am still completely confounded by the whole thing. I am suspended in this foggy painful disbelief that makes moving on completely impossible. It sounds normal doesn’t...
  • Blog Post: Day 9 - Let The Battle Commence...

    Another lovely day in Wiltshire but what an awful night's sleep. Mouth was drier than a dry thing and tasted of a weathered and worn flip flop. Needed to sip water constantly through the night and feel tired to say the least this morning. I am hoping it is the Pepsi I drank for supper that caused...