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  • Forum Post: Hot sweats from menopause being brought on from treatment

    Hi has anyone got any tips on helping with the hot sweats from menopause being brought on. I'm finding it hard to sleep at night as I wake up boiling fling the duvet off then wake up freezing! I don't know if there's anything that can help, any ideas?
  • Forum Post: RE: secondary cancer in bones, lungs, breast, spine and who knows where else!

    Hi cake lady ( love the name btw), sorry to hear of your situation too, I had my op in September yours is much more recent. I hope you're recovering ok, I found it took a while for the nerve pain and muscle pain to get under control but now I'm much more mobile. What's it like with the neck...
  • Forum Post: Re: New member

    Hi Pam, Sorry I haven't checked this page for a bit. I went back in for a scan February and was told the my nodules had started to grow a little so my Oncologist said I should start more treatment. this time I'm having Trabectedin. I had my first one on the 27th Feb back on the 20th March...
  • Forum Post: RE: Husband has difficulty supporting me

    Oh dear, your poor husband is struggling in his own way, and poor you having to cope with his undeniably less than helpful attitude, on top of your own relapse and struggle with your treatment. Unfortunately some people just can't cope when their loved ones become ill and it brings out the worst...
  • Forum Post: RE: Chemo care package

    Hello! Most of what you stated are true and correct, also here are the main side effects of chemotherapy Fatigue Nausea and vomiting Hair loss Cold cap Increased risk of infection Anaemia Bruising and bleeding Loss of appetite Sleep problems My friend who undergo ovarian cancer chemotherapy...
  • Forum Post: My Pop

    Hello, My name is Nichola and I'm 31 years old. In January 2013 my dad (pop) was diagnosed with Lung Cancer, he was already in stage 4 so there was nothing they could do to make him any better, it very quickly spread to the brain and liver. As you can imagine my whole world came crashing down...
  • Forum Post: Re: waiting

    Dear Luckyboy, Your words are inspirational, thanks for posting. I joined this group as I was shocked to find out I had cancer, especially as i am so careful in the sun. Had a second operation as the first one didn't get it all, and I have found this site and the people on it so positive. So...
  • Forum Post: new: not sure ?!

    Hello everyone :) Okay so back in May 2013 I had my 1st smear aged 25. Result was Severe Dyskaryosis so was sent for a Colposcopy. CIN3 was diagnosed (margins unclear) and I was given LLETZ treatment. I then had another smear in October 2013 and was told it was just High Risk HPV. So this now brings...
  • Forum Post: Re: lost someone really special to secondary bone cancer??? Xxx

    Hi nicola my names Claire (32) Glasgow I lost my dad last June to secondary cancer:-( My dad had liver cancer and had a liver transplant a year later feel broke his hip, He was saying for months he didn't feel right still lots of pain eventually doctors listened and done a scan witch found a...
  • Forum Post: Help about proposed treatment

    Hi everyone I saw the medical oncologist yesterday for the first time and he is proposing a course of Cisplatin & Pemetrexed (Alimta) combined. Then, if this is successful at stopping the spread/growth then Alimata every 3 weeks 'maintenance' for the foreseeable future. When I questioned...
  • Forum Post: Re: Stuck in limbo

    Hello Deb I've read through all your posts, along with the helpful advice you've received. All the people who have already been through this process will recognise where you are and to a certain extent, the feelings you're experiencing: we've been scared, we've felt panicky, we've...
  • Forum Post: Advice - Medical Oncologist appointment tomorrow

    Hi everyone I have been diagnosed with NSCLC Adenocarcinoma outside my left lung, lymph nodes close to and near my neck - so Stage 4, advanced locally or T4 (25mm x15mm) N3, M1 (slight very small shadow on my liver). So, inoperable I'm told and proposed chemo is either gefitinib (Iressa) if the...
  • Forum Post: Looking to meet other 30ish women with breast cancer...

    Hi all, New to the site; I'm currently undergoing four treatments for stage four breast cancer - I'm thirty and was diagnosed in December. I have great family, friends, doctors and support, but I don't know anyone else in anything remotely like a similar experience, and it feels like time...
  • Blog Post: Pain Train Gathers Speed

    Started tube feeding yesterday (Monday) evening, and was really lazy by not eating anything by mouth. Made up for it by drinking a thick tasty beverage in the form of a chocolate complan shake (its about as good as it gets!). Stomach gurgled throughout the night. Despite being given the morphine yesterday...
  • Blog Post: Garden Pub Name

    I mentioned yesterday about my garden pub which is my little treat and belated chrimbo prezzy and have had quite a few names being suggested. Our house is named Stanhope (which is an old car, or two seater horse drawn carriage - google it for pictures) and I want that name in the title. Conventional...
  • Blog Post: Not Another Manic Monday

    And so, into Week number 4 of treatment and I seem to have forgotten the normal monday morning panic of getting back into work after a weekend off, of having to quickly prioritise tasks for the week ahead against all the Monday morning fastballs, and having to rejig my programme to suit. Today, to be...
  • Blog Post: Disbelief

    Evening All, For me I have to say that the hardest part of this whole shitty journey is the fact that nearly three months later I am still completely confounded by the whole thing. I am suspended in this foggy painful disbelief that makes moving on completely impossible. It sounds normal doesn’t...
  • Blog Post: Day 9 - Let The Battle Commence...

    Another lovely day in Wiltshire but what an awful night's sleep. Mouth was drier than a dry thing and tasted of a weathered and worn flip flop. Needed to sip water constantly through the night and feel tired to say the least this morning. I am hoping it is the Pepsi I drank for supper that caused...
  • Blog Post: Day 8 - The Guilt Trip...

    So into week 2 of RT we go, and after a brilliant weekend am now feeling a bit guilty. Am guilty of having to take so much time off work and others having to cover my desk. I am guilty of not being that poorly compared to others around me in the hospital (some who look really ill), and the online head...
  • Blog Post: Day 7 - The Calm Before The Storm...

    Just a short post today as Sunday is the day of rest. Had a really good day yesterday and great to see mam and dad. Appetite back now not feeling sick so fired four ham sandwiches down for lunch and the spare ribs at the pub for dinner in the evening, only water to wash it down though, and the BBQ spices...
  • Blog Post: Day 6 - That's The Way To Do It...

    Hope readers appreciated the double take on yesterday's blog, at no extra charge!!! My chat with nutritionist yesterday may have revealed the cause of feeling sick. Apparently trying to flush my gastro tube with water quickly with syrlnge so as to feel the strange sensation of having a drink from...
  • Blog Post: Day 5 - Ready for the Weekend

    Managed chicken tikka massala for supper last night, did not taste much like chicken tikka massala at all, although I caught some of the spices. Didn't sleep very well through the night, mouth drier than normal, bit of neck pain, and the feeling sick meant broken sleep. Early start this morning in...
  • Blog Post: Day 2 Pt 2 - Zapp 2 and Consultant Meeting

    Meeting with consultant clarified that despite the RT being targetted they have decided to do a full 'belt and braces' approach which will see both sides of neck and top of chest being treated - the left side of neck and chest will receive a lower dose rate than that of primary and tumour sites...
  • Blog Post: Day 2 Pt 1 - The Sun Is Shining

    Woke up to a beautiful sunny day, after what can only be described as 'broken' sleep. Mouth feels drier already - probably more to do with the saltwater gargles, which brings back (fond) memories of a swim across the Solent a couple of years back! Still it is a nice day so off for a 30 minute...
  • Blog Post: Day One - Let the RT Begin

    And so the first day of RT has finally arrived. Didn't sleep well last night as knocked the PEG tube during night (felt as though someone had poked me with a hot knitting needle). Wii Fit first thing saw an encouraging weight gain of 3lbs in a week. Diet starts today and kicked off with my first...
  • Blog Post: Star Date - Sun 17 Nov 13: Getting Ready To Rumble (Part Two)...

    After a false start last week where my 30 day RT start date was unexpectedly postponed for seven days, I have a strange feeling of 'deja vu' as I prepare myself to embark on the journey to full fitness. Apart from a stiff neck and some discomfort in my right shoulder I have recovered well...