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  • Forum Post: Abnormal Results

    Hello, My name is Lindsey. I am new to this forum. I was just wondering if anyone could help. So I had an endoscopy and colonoscopy done today, and I received abnormal results. My stomach lining is red and swollen, so they did some biopsies. Also I have a tortuous colon, meaning that it is longer...
  • Forum Post: Re: Just had my last radiotherapy!!!

    Hello Lizzy Firstly, well done on getting to the end of your RT treatment! It was certainly a milestone for me after a fairly hectic 30xRT and 6 concurrent chemo sessions. I can't provide any immediate good news though: the 3 weeks following the end of treatment were my worst. I found that breaking...
  • Forum Post: How Many Of You had Intratubular Germ Cell Neoplasia in your original tumor?

    I have recently been going over my pathology report and noticed that intratubular germ cell neoplasia was detected. (= yes) i was just wondering if this is the case for all of you, or just a select few? The reason i am concerned is because it is a good indicator of the testicle turning cancerous. How...
  • Forum Post: Cancer can just fuck off........

    Firstly can I say I am sorry. I am sorry for the language and I am sorry if this turns out to be a bit of a moan and I am sorry if I offend anyone. (if I offend please let me know and I will remove) I am sick of cancer. Back in November 2013, they found a tumour in my wife's bladder, she had...
  • Forum Post: There's a mouse in the House

    Right I need your attention. I'm sure you've heard of Crufts - the biggest dog show in the world? Well I have Chihuahuas that have qualified to be shown there this year. Most exhibitors buy a new outfit for Crufts - after all you never know where the TV cameras are filming! Well,...
  • Forum Post: Urgent Advice/Help sought - how make decision whether to do Chemo or not ?

    Hello - I am 77 years old and have triple negative, stage 2A, grade 3 aggressive breast cancer. Had mastectomy and axilla clearance (found 3 out of 19 lymph nodes had cancer). Just had bone scan and CT scans (results pending) Been suggested by oncologist option of FEC Chemo (6cycles over 4.5 months...
  • Forum Post: Need Massive Help On My Treatment Options.

    Hey guys, as some of you already know, I had my CT scan today. I should hopefully get the results back by next wednesday. (the waiting period begins again...) I spoke in great detail with the urologist today about the possible potential treatment options, and I have to say, im really in two minds...
  • Forum Post: Re: Philosophy of terminal illness

    I'm not sure I'm qualified to speak on the terminal illness aspect of this, as I'm not in that position, though I did have late stage cancer at 38 with all the facing up to mortality that goes with it. As far as the philosophical aspect of this stuff, I had to face up to what I did or...
  • Forum Post: this is it

    today my dads oncologist has said they can no longer treat him as they no longer know what they can do to save him. sitting in that room and hearing that was heartbreaking. i almost feel angry at the doctors etc but also i know its not there fault. Dad has a rare cancer which there isnt much info...
  • Forum Post: Confused and lost

    I'm very new to this -in fact my first post on a discussion board ever. I'm not necessarily looking for answers as I know how people react and cope are very different. I guess I just need to know that what I'm feeling is normal? The whole story in a nutshell: I found a lump in my neck...
  • Forum Post: Re: Pathology Report Help

    Here is a brief write up of my report. Radical orchidectomy measuring 60x45x approximately 40mm with cord length 80mm up to 25mm in diameter. On sectioning the specimen there is an ill defined variegated part haemorrhagic part necrotic tumour measuring 35x30x approximately 30mm. It does not appear...
  • Forum Post: Very Concerned (Just Had A Call From The Doctor)

    Hi there, I just recently got off the phone with my doctor. they took a blood test from me yesterday and gave me the results. They said that my testerone levels were down to 7.7 from the usual 9.9. They said that this could be due to my body getting used to the one testicle. The thing that...
  • Forum Post: Pathology Report Help

    Hi guys, I just got off the phone from my urologist. He gave me some detail about my pathology report before sending it out to my clinic. He said the tumor was stage T1 and was confined to the testicle ( mainly yolk sac, some seminoma, some mature teratoma) He said i will have a ct scan next...
  • Blog Post: Day 2 Pt 1 - The Sun Is Shining

    Woke up to a beautiful sunny day, after what can only be described as 'broken' sleep. Mouth feels drier already - probably more to do with the saltwater gargles, which brings back (fond) memories of a swim across the Solent a couple of years back! Still it is a nice day so off for a 30 minute...
  • Blog Post: Day One - Let the RT Begin

    And so the first day of RT has finally arrived. Didn't sleep well last night as knocked the PEG tube during night (felt as though someone had poked me with a hot knitting needle). Wii Fit first thing saw an encouraging weight gain of 3lbs in a week. Diet starts today and kicked off with my first...
  • Blog Post: Star Date - Sun 17 Nov 13: Getting Ready To Rumble (Part Two)...

    After a false start last week where my 30 day RT start date was unexpectedly postponed for seven days, I have a strange feeling of 'deja vu' as I prepare myself to embark on the journey to full fitness. Apart from a stiff neck and some discomfort in my right shoulder I have recovered well...
  • Blog Post: Quotes on Loss

    Hello, I am sitting in bed, at 4.15am and I am not the remotest bit sleepy and my heart won’t stop pumping in over-drive so I think that I’ll write in here for a while. I hope it calms me, I am not even sure what I am exactly stressed about – all I know is that right this instant...
  • Blog Post: Fertility and cancer - a new phase

    A couple of months ago I began writing this blog post, it’s been put off because of not really knowing how to approach this topic. It’s been difficult to write, but thankfully with the right information I’m in control again. I had cancer 13 years ago now, at 14 years old I was told...
  • Blog Post: Ever wanted to put a question about cancer to an MP? Now’s your chance.

    On 11 September 2013, Macmillan will be holding its second Parliamentary Question Time at the House of Commons in London. Macmillan Question Time brings together a panel of MPs, peers and health experts to answer questions about cancer care and services. Ciaran Devine, Macmillan’s chief executive...
  • Blog Post: Introducing Freya...our new Campaigns Blogger!

    Meet Freya. Cancer Voice. Campaigner. And now, blogger. She'll be giving you the inside track on our campaign work over the next few months. Here, she introduces herself and gives you a sneaky peek of what you can expect... Like many people I knew the name Macmillan and thought most of Macmillan’s...
  • Blog Post: 1st Entry... A little info...

    My story so far…. I found out on 11 th February 2013 that I am a BRCA1 carrier. Truth be told, I wasn’t sure what to think… “Did this mean I was going to die?” was probably the first thought that went through my head, for some random reason. I have a strong family history...
  • Blog Post: Question everything and ask for copies of letters

    Having had a chance to read my dad's letters from the hospitals, all the answers to the questions are there, just that my parents didn't understand the technical jargon and never asked the consultant to explain them. They expected the consultant to tell them verbally all what they needed to understand...
  • Blog Post: The early days part 2 .... Lucy and Over the Wall

    When I was told that I was going to a summer camp to be with other children who had also gone through cancer and other serious illnesses, I was embarrassed and fought back at it for about three months. If you have had childhood / teenage cancer there are a multitude of organisations, initiatives and...
  • Blog Post: The early days.... going back to school Part 1

    The years following the end of my chemotherapy were a strange mix of trying to be a ‘normal’ teenager, dealing with the onslaught of puberty and dealing with the trauma my body and mind had previously experienced. Coupled with this, I had deep family issues that weren’t going to be...
  • Blog Post: It's your personal achievement and there is so much to be learnt from it

    In this blog I want to address what it is like to live with the fear of cancer, post remission and post being told you may be cured. In 1999 I was diagnosed with an Osteosarcoma in my right fibula bone. I was 12 years old and had never even heard of cancer before. The only person in my family to have...
  • Blog Post: The last few months start.

    I'm not quite sure where to start. The history may not even be relevant. All I know is that my mum is heading home from an almost 3 month stint in hospital with the decision made that we're not going to pursue any further treatment - palliative chemo made her so poorly and being in hospital added...