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  • Blog Post: Last chemo done and dusted! 4th April 2013

    Posted by
    Posted 1 month ago
    My sixth and last FEC chemo was on the 22nd April. The side effects hit me harder again this time, but here I am nearly two weeks on and I'm slowly recovering and I am feeling better each day. The sun is shining and that always makes you feel better! The hypnotherapy sessions to tackle my needle...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Blog Post: 4th March 2013

    Posted by
    Posted 2 months ago
    Phew, the weeks are still whizzing by! I had chemo number 5 last Friday and thankfully the cannular went in first time, so no tears or shaking from me for a change. I told my youngest daughter, that my appointment was an hour later than it was as I didn't want her to witness the distress I get...

  • Blog Post: 16 February 2013

    Posted by
    Posted 3 months ago
    I can't believe how fast time is passing! Chemo number 4 came and went on Friday 8th Feb. My veins are not playing ball as they are painful after previous chemo's, so after two attempts a doctor was called and the canular had to go in on the inside of my arm. I'm still trying to find a local...

  • Blog Post: 2013 - and stable

    Posted by
    Posted 3 months ago
    Sorry about the gap between posts . Where was I? Part-way through a course of chemotherapy for CUP (cancer of unknown primary) in chest and throat lymph nodes ... and I suddenly realised it's been four months of treatment, and a right drag at that. I think I've been fortunate. I've had a...

  • Forum Post: Re: losing your hair

    Posted by
    Posted 3 months ago
    Hi Lorijade My daughter aged 21 was diagnosed with lymphoblastic leukemia in Dec. she went straight into hospital and started Chemo she was told she would lose all her hair and probably become infertile too, 3 weeks into her treatment it started falling out (she had long brown hair) but she has always...

  • Blog Post: 22 January 2013

    Posted by
    Posted 3 months ago
    FEC chemo number 3 under my belt, yay! It was touch and go as to whether I would get to the hospital last Friday after a very heavy snowfall in Cardiff. Having had my chemo delayed the week before due to my low blood count, I was determined to get my chemo! I even googled how long it would take me to...

  • Blog Post: 16th January 2013

    Posted by
    Posted 4 months ago
    Where has the last few weeks gone!! Well I'm glad to report that Cinders did go to the New Years Eve ball in the end! I managed to get a last minute place on the day, so hurriedly packed my posh frock and sparkly bandana and checked in at the hotel with my six friends! I had a couple of glasses of...

  • Blog Post: 30th December, 2012, day 9 of second round of chemo and I'm feeling goooood!

    Posted by
    Posted 4 months ago
    So, having dreaded being laid up in bed over Christmas, I am so glad to report that I had a great one and ate all my christmas dinner and even managed some Buck's Fizz and mojitos! Despite the disruption of flooding and bugs, all my children managed to travel to me and they wouldn't let me lift...

  • Blog Post: The name of the beast

    Posted by
    Posted 4 months ago
    (22 Nov, 2012) …is a diffuse large B cell lymphoma… its a non Hodgkins thing and is very aggressive (I knew enough to burst into tears with relief not fear when the consultant said it’s aggressive). I start chemotherapy on Wednesday… no doubt more on that later. ...

  • Blog Post: 21st December - week 3 and chemo number 2 under my belt, yay me!!!

    Posted by
    Posted 4 months ago
    I have rested completely over the last couple of days and thankfully my blood count had gone up this morning when I had a blood test. I was so nervous about having a cannular put in, but the PICC line specialist that saw me on Monday, came and did it herself and although I found it stressful, it was...

  • Blog Post: 18th December - day 18 post FEC chemo

    Posted by
    Posted 4 months ago
    It's been an eventful week since I posted my last update! I had my hair cut into a very short pixie crop a week ago today and it started to fall out on Saturday morning. I washed my hair and my hands were full of hair as was the plug hole. I thought I was mentally and emotionally prepared for it...

  • Blog Post: 11th December - day 11 of 1st FEC chemo

    Posted by
    Posted 5 months ago
    Well so far day 4 and 5 have been my worse days on FEC! I don't have much energy or appetite still and the ongoing insomnia leaves me very tired, but its all manageable and I do what I can each day to keep some kind of normality in my life! I had a little road trip out to Sainsbury's on Sunday...

  • Blog Post: TGIF 7th December!

    Posted by
    Posted 5 months ago
    Woah, what a week this has been! Its now day 7 of FEC chemo!! Day 4 (Tuesday) of chemo was rough and day 5 (Wednesday) the worse so far! I cried and felt so angry and sorry for myself!! My appetite is zero and my mouth feels like I've drank a shed load of alcohol! Im brushing my teeth gently and...

  • Blog Post: Monday 3rd December

    Posted by
    Posted 5 months ago
    I'm feeling ok considering what's been pumped into me! I still feel nauseas in the night and on waking, but I'm fine once I start taking the anti sickness tablets in the day. The steroids make me feel restless, which is not a good combination when I feel so tired!!! My middle daughter came...

  • Forum Post: Re: Wig/scarf recommendations

    Posted by
    Posted 6 months ago
    Hello LM, Thank you for the link you sent to Annie. The site have some lovely hats in some beautiful colours, some best styles I have seen for a while. I have decided to wear hats and scarves rather than a wig and have been looking for a while, my chemo starts in a couple of weeks. Now I am...

  • Forum Post: Vein Problems after Carboplatin given in the arm/ exhausted from chemo

    Posted by
    Posted 7 months ago
    Has anyone gotten 1 high dose of Carboplatin in the arm instead of a port? My husband had his chemo 7 weeks ago and the veins in the arm they used swell alot and get hard It seems the more he uses that arm (of course it had to be his right one) the more the vein swells. He was hammering this weekend...

  • Forum Post: Re: Is the cold cap worth it and chemo questions

    Posted by
    Posted 8 months ago
    Hi Jo, I am glad you found my post helpful. My hair is still looking good and is about shoulder length now! I am planning on having it cut and coloured soon at Tony & Guy as they have staff trained in hair care for cancer patients. I know it will be mega expensive, but your hair can be totally...

  • Forum Post: Stable results after EOX. Husband wants a break in treatment, I'm worried.

    Posted by
    Posted 8 months ago
    Hiya all, We received my husband Russells scan results yesterday and we were told that after three infusions of EOX that his cancer of oesophagus and lung secondaries, are the same, no bigger, no smaller. So he has decided to have a six week break from Chemo, although he was supposed to be having...

  • Forum Post: Just Diagnosed (help and any advice or info would be great)

    Posted by
    Posted 9 months ago
    Hi people, this is all quite new to me as i'm usually a healthy lad. Today i was diagnosed with Hodgkinson's Lymphoma and it's socked me beyond belief. I never thought i'd be told i have cancer and it's still quite surreal. Ready to beat it and get back on my track to a normal...

  • Forum Post: Worried

    Posted by
    Posted 9 months ago
    So worried as we have one more infusion of EOX , which will be the third for Russell and then the scan, which will tell us if it is working. I am struggling and keeping my feelings from him. What will we do? We don't have a date for it, but the consultant said we will 'take it from there'...

  • Forum Post: Chemo vs Radiation Stage 1 Seminoma after Orchiectomy

    Posted by
    Posted 9 months ago
    My husband just had his right testicle removed with stage 1 seminoma. It has been three weeks and they say it was contained. There were also no tumor markers. He is 43 yrs old. We are not worried about fertility. And we have an elementary school child. We have experience with other type of cancer in...

  • Forum Post: Started losing hair 2 days ago :(

    Posted by
    Posted 9 months ago
    Day 15 after first lot of FEC and I've noticed I'm losing my hair. I didn't expect it to start so soon. I thought I'd have another week until I started my second treatment. I'm prepared for it, but not emotionally. On the whole I've been ok, but it doesn't stop it upsetting...

  • Forum Post: Just Diagnosed

    Posted by
    Posted 9 months ago
    Hello, My Aunty was diagnosed 3 weeks ago with OC. My Mum has been very upset as its her 'little sister' (Mum is 69 and my Aunty 65). She has always been very fit and healthy, working outdoors most of her life and going for long walks and enjoying working in the garden. It just seems so unfair...

  • Forum Post: Fatty Liver : Surely that isn't good?!

    Posted by
    Posted 9 months ago
    Im so very ANGRY and in shock. My mum had pancreatic cancer diagnosed last January, she had a whipple operation straight away. She was then the told that they took as much as they needed to, but as cancer cells were found in 9 of the 18 lymph nodes they would gave her chemotherapy to hopefully...
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