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  • Forum Post: caring for my lovely mum with inoperable gbm4 brain tumour

    my beautiful mummy is in hospital with gbm4 brain tumour. the drs said they can't operate but might do radiotherapy. she is really confused and can't retain new info: she goes to the loo and can't find her way back to her bed; she keeps asking what's wrong with her and then asks why...
  • Forum Post: glioblastoma plus drug induced hepatitis due to chemotherapy

    Hi, i just wondered if anyone else had a similar experience. My mum became ill in november 2013 acting strange loss of movement bad eyesight hallucinations and speech problems. Doctors and family thought she had a stroke. On the 4th February 2014 she had a brain scan and they kept her in hospital as...
  • Forum Post: Final Stages?

    Dads syring driver went in on Monday, morphine increased again on Wednesday now also getting medication for agitation. He doesn't really waken now, occasionally flutters his eyes. Has had no food or drinks today as it just wont go down.. Nurses tried again this evening and they couldn't even...
  • Forum Post: Final stages...........how do I know?

    How do you know when your loved one is reaching the final stages? What are the signs and how long is the final stage? I hate to see my dad as a shadow of what he is and he is so fed up and tired all the time. I want him here but I don't want him to suffer.
  • Forum Post: Have you been affected by brain / cns tumour and had treatment Hull or East Riding?

    I work for Macmillan and am looking at how cancer services for people affected by brain and CNS tumours are delivered for people who were treated in Hull. I really would love for people to get involved with me to help shape how services should look in the future. This could mean telling me your story...
  • Forum Post: Re: brain tumour

    So sorry to read this. It makes me remember my chemo experience. I stopped after only four days. I just couldn't hack it, and it took so long to get out of my system. Mine is grade 4 GBM and there is no cure for it, so the doctors understood that I didn't want to go that route. It was going to...
  • Blog Post: Out Of The Blue

    On Sunday 2 September I braced myself for grief. From a few days before I knew what was coming. Six months since he took his final breath. I lit all his candles, and I kneeled down in front of my photos, ‘the shrine’ to him. I was sad. As I spoke to him I shed a tear. But I didn’t...
  • Blog Post: Mother Dearest

    I am a daddy’s girl; his little princess and mini-me. My mum knows this, and over the last 18 months she has watched as my world shattered around me; as I dedicated my every moment to care for him, and then my every tear as I grieved the loss of my first true love. My parents seperated when...
  • Blog Post: Rainbows and Angels and Shooting Stars?

    On 12 November 1986 I laid eyes on my first love. On 1 March 1986, nine months earlier I had been at his wedding. I was nothing more than the size of a peanut; just starting to grow the fingers that I would wrap around his, and the lips that would kiss him so lovingly for the next 25 years were just...
  • Blog Post: The Rainbow

    03 March 2012 On his first day of testing out his new magic powers he sent me a shooting star. 04 March 2012 Every day since I have seen a rainbow. For the first few days it appeared on the carpet outside my bedroom, reflecting off a nearby mirror. I began to fear the day I didn't...
  • Blog Post: There Is Something Wrong With The Tree

    02 March 2012 A story shared between a father and a daughter. A story for the past. For the present. And for the future. As a young girl he read The Magic Faraway Tree stories to me at bedtime. As a mother I hope to share these with my own children. But first I want to reshare them with my father...
  • Blog Post: The Day The Earth Stood Still

    02 March 2012 I held his hand. I kissed his hand. I begged him not to leave me. I told him I needed him. But more importantly I told him I loved him. He is my hero. He is the Guide and the Weight of My World. He is my everything. And I am his mini-me. I held his hand. He took his final breath...
  • Forum Post: Re: Brain Tumour Grade 4 inoperable

    I am so sorry to hear about your brother. I can understand why he feels terrified but to give you hope let me tell you about my husband. He was diagnosed with exactly the same tumour (Grade IV Glioblastoma) and given a devastating prognosis - back in July 2007. So he has survived for 4.5 years. He...
  • Blog Post: Doctor Doctor

    So, today I went to see my doctor for a check up. She has been the most amazing doctor I have ever known this past year, and thank goodness I have her. I have a very good relationship with my doctor, I can talk to her about anything; her door is always open to me, she is always on the other end of the...
  • Blog Post: Happy?

    Is it ok to feel happy? Is it ok to feel excited? Maybe its just a high from all the jelly babies. I woke up with that same Monday morning feeling, is the weekend really over again already? Just another day at work. I enjoy my job, I enjoy my friends... and most importantly its a distraction. They...
  • Blog Post: Moonface & The Slippery Slip

    My dad is sleeping a lot at the moment. I read him a few chapters of The Magic Faraway Tree a few nights ago, the story he read to me and my brother night after night when we were young. It meant so much to me. But it was the ultimate bedtime story, knocked him out for days! I didn't see him awake...
  • Blog Post: It's Not Fair

    Hi There! I've never been a great talker. If something is on my mind I can sit for hours telling you what's wrong in my head when you ask, but I can't find the words to verbalise it. I find it easier to write things down, my mum jokes it would be easier to get answers out of me if she...
  • Forum Post: It's Not Fair

    It's not fair. It's not fair. It's not fair. Catchphrase of the week right there. I don't really know what to say, I don't know how much of a back story to give, or just what to say at all. I've always worried about my little brother, his dad (my step dad) was 57 when he was born...
  • Forum Post: Re: Just diagnosed- 3 months to live. Help?

    Dont believe all what your told. I was diagnosed with a Grade 4 Glioblastoma in May 2010 and given 6 weeks to live. One year on today and I'm still here. I've had the Radio and Chempthearapy and have responded well I am no longer on any medications for the cancer and in march was given the...
  • Forum Post: Re: Looking for GBM fighters

    Sam, Sorry to see that your tumour has been upgraded to GBM4. I know from my own experience that it has not always been possible to find positive stories relating to GBM on here. I often find myself reading posts and thinking it's all doom and gloom and why should I carry on reading them because...
  • Forum Post: Re: Are there any success stories of surviving Brain Cancer

    Lisa, What I would say to you is don't believe all you hear and read about Brain Cancer. There is a great deal of positive stories on here as well as negative it's just a case of weeding them out and not dwelling on the negative. At the moment I would consider myself as a success stories...
  • Blog Post: first time here just need some help/advice :(

    Hi everyone - Im new to this site and have been reading other peoples heartwarming blogs so thought I would write my own. God knows where to start... On january 4th 2011 my dad had what we now know as a seizure, and basically frit the life out me and my mum so had to get an ambulance..he spent 10...
  • Forum Post: Grade 4 Glioblastoma

    It Took me a while to join up here, after reading so many posts on this hideous disease. Firstly i'd like to offer my sympathies and support to everyone who has lost a loved one, or has a loved one currently undergoing treatment. My mother (58) was diagnosed in June of 2010 after having a seizure...
  • Forum Post: Re: glioblastoma multiforme

    This monster GBM terrifies me as a suffer and I can only imagine how those of you who are careres feel because I don't fully understand how my wife feels. In the begining of my treatments all I could think of is WHY ME but as time has past my thoughts have changed, It has happened and there is...
  • Blog Post: Mum passed away

    Our fantastic mum passed away on Thursday 30th Sep it was a hard 6 month fight but mum and all of the family fought it bravely , We are all so proud of mum for how she dealt with everything that this cruel decease threw at her . We are sorry to people who had replied or commented on our post's...
  • Blog Post: PEABS

    Am finding myself just chatting to one and all today. I'm in a place that I don't like being in.....That of the world of cancer...well actually I'm not it's my beautiful daughter. I actually hate cancer with everything i possess...and I often question if they, the doctors, have...
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