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  • Forum Post: RE: How long do most people wait after a recurrence is discovered during cystospcopy?

    Hi Blanket, (Your username sounds very comforting by the way!) thanks so much for that info in your case. You're very kind... Yes, from what I can see, it may be as late as November before I'm taken which would make it 6 months waiting, that's if I get seen to in November at all. I think...
  • Forum Post: Chemo advice

    Hi, My Dad has terminal bladder cancer (he was told he has around a year to live, maximum, in March this year) and is currently about half way through his first course of chemo. He is worse than he has ever been, hardly eating, sleeping most of the time and so weak that he can't get out bed with...
  • Forum Post: RE: How long do most people wait after a recurrence is discovered during cystospcopy?

    Dear Travelling On, What an odd situation for a recurrence of cancer not to be immediately followed by a treatment plan. You certainly should take the matter up with the hospital authorities. Over a 4 year period I had 2 cystoscopy apps. that were a couple of months or more late due to some mix up...
  • Forum Post: RE: How long do most people wait after a recurrence is discovered during cystospcopy?

    Hello WGC, Thank you so much. I went to see my GP yesterday again and he phoned the hospital in my presence. GP's rarely reveal what they think but he assured me that he thought it was ridiculous. They are to let him know what is going on - hopefully soon. He knew the consultant's office number...
  • Forum Post: RE: How long do most people wait after a recurrence is discovered during cystospcopy?

    Hi All, Well I had my break - for longer than I expected and enjoyed it, but for the fact that I kept wakening up during the night wanting to run to the toilet - nocturia they call it. It was good to get away but I couldn't go abroad, given that I may have been called and so there was more than one...
  • Forum Post: RE: How long do most people wait after a recurrence is discovered during cystospcopy?

    Hi Thanks Muminana, I'm really sorry to hear of the way you have been treated and just hope things work out for you. It must be a nightmare being passed back to that same consultant and I really do hope you're successful in getting transferred to another hospital. I'm thinking of this too...
  • Forum Post: How long do most people wait after a recurrence is discovered during cystospcopy?

    I was diagnosed with Bladder Cancer in 2011 (TA G2 - no treatment at all) Since then have had 2 recurrences. (By the way - never smoked a cigarette in my life.) The first recurrence was discovered last October and I was dealt with a few weeks later. However, I had another recurrence - discovered at a...
  • Forum Post: Dad to get fit before surgery - looking for advice

    Hi I'm new to this site, so appreciate any time any one takes to read this post. My Dad, who is 67, has just been diagnosed with muscle-invasive bladder cancer. Following extreme pain in his back and abdomen (and, it turns out, blood in his urine for some time), he had a cytoscopy under local...
  • Forum Post: RE: Anxious

    Hi Oscar - you don't have to apologise for the way you feel and being positive is also recognising that you are going to have worrying times too. Sometimes I think that it's better for me to stay away from discussion/self help groups/internet research as a I start to get more depressed again...
  • Forum Post: T4 Bladder Cancer

    Hi, A month ago my 81 year old mother was told she has advanced T4 bladder cancer which they also think has spread to pelvic bone. because of her age they just gave her three lots of radiation which they hoped would make her more comfortable. She is having terrible trouble with her bag blocking...
  • Forum Post: 88 year old with depression

    My mother - 88 years old - has just been diagnosed with bladder cancer. She also suffers from depression and is currently in a depressed state. She is scheduled to have surgery in a few weeks. The consultant says that about a third of her bladder is infected and that as much as possible would be removed...
  • Forum Post: Re: Edited by admin

    Hi There And firstly good on you for deciding to contact the forums for answers to such an important question. I had my bladder removed last August following two years of multiple Pta's grade 2 with mitomycin treatments directly into the bladder. Two years later a routine cystoscopy showed very...
  • Blog Post: 2-5 months Not nearly enough time!

    A brief background. I am 37 and live with my husband and two sons aged 4 and half and eight, My parents have lived for many years in the middle east due to dads work. my sister also with two boys lives in New Zealand, despite this we are still a close family and are in regular contact, the wonders of...
  • Blog Post: Bladder cancer webchat transcript

    Specialist nurses John and Hilary recently joined us in the chatroom for a live webchat all about bladder cancer. They answered questions on things like causes and risk factors, symptoms and testing, treatment and bladder removal. Here are all the questions and answers from the chat. You speak...
  • Blog Post: Bladder cancer webchat – Wednesday 17 July

    Next week, we’ll be holding a live webchat about bladder cancer with two specialist nurses from our Macmillan Support Line. John Newlands and Hilary Weaver will be live in our chatroom answering your questions on Wednesday 17 July from 12-1pm. John and Hilary will be answering questions...
  • Blog Post: thoughts from the front line - 113

    Well hello everyone! It has been a year since I last posted anything on here which means that we are just a few days away from the 2 year anniversary of my operation and, yep, I'm still here! Live and kicking! :-) Sending big hugs to all of you on here wether a sufferer of cancer or a family...
  • Blog Post: Trying to be strong...

    I've just completed my first full week of work after my dad's diagnosis and feeling really shattered. I'm so lost as to what I should be feeling right now. I want to be with my dad all of the time but know that this just isn't possible as I need to keep a cetain degree of "normality"...
  • Blog Post: Not good news

    I know it's been a while since I wrote on this blog but things seemed to have moved at quite a pace and time has gone by so fast. Mum had her op with an epidural as they said she was too frail for a general anaesethtic and she made a good recovery after a couple of days in hospital. Today we had...
  • Blog Post: Introducing myself

    Hi, I am Paraig, a 59yr old male who was diagnosed with bladder cancer in Vov 2010. Since then, I have had three TURBTs with the hope that the growths would not return. Alas they did and because the orginal growth had created a diverticulum this area is still creating problems. The consultant informed...
  • Blog Post: A Sisters View - The start of our journey 04/04/11

    The basics, Me - 35yr old mum of 2 and manager of a pre school playgroup, son 15yrs and daughter 4yrs who has high functioning autism, Husband who i've been with 8 yrs who has genitifemeral neuralgia ( Chronic Pain in pelvic area and finds walking hard - works from home. My Parents - love us to...
  • Blog Post: TSA Humiliates Bladder Cancer Survivor

    Tom Sawyer A bladder cancer survivor from Michigan who wears a bag that collects his urine says he was patted down roughly by a security agent at Detroit Metropolitan Airport, causing the lid on the bag to spill its contents on his clothing. Sawyer is one of the members of the Bladder Cancer Advocacy...
  • Blog Post: Bladder Cancer

    Although there are several types of bladder cancer, we usually think every time we hear or read this term transitional cell carcinomas. Are cancers that form inside the cells that form the lining of the bladder. One other cancers that come under this heading are squamous cell carcinoma and adenocarcinoma...
  • Blog Post: Less of a worry now......

    As you all have read over the last few months following my diagnosis of Bladder Cancer, I have been worried that i had something sinister going on in my rectum, as all the symptoms were there similar as with the bladder problems, so ones mind conjours up all sorts of configorations as to what must be...
  • Blog Post: He's Gone

    It's been a long time since my last blog and sadly, this is my last blog. My lovely, uncomplaining husband passed away on 25th Oct. 2010. He fought so strongly for eighteen months, way past the anticipated time that the Drs. had given. Now, I'm totally lost. I can't think straight...
  • Blog Post: uncomfortable week.........

    Hello everyone, Thanks to my friends on here for keeping in touch and shareing your experiences with me, they are all private matters that we all seem to be happy to discuss with each other, which i find reasuring in as much as you all seem to have come to terms with what is a terrible situation to...
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