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  • Forum Post: Re: Help me please

    Posted by
    Posted over 2 years ago
    Hi hopeful, yeah don't panic about the RAI, just like Kazzy said you have got to think completely about yourself in this situation. I once saw a wildlife prog about a mother wild dog in the Kalahari desert in Namidia/SW Africa. the Mother had to abandon her cubs for about a week in an old built ruin...

  • Forum Post: Re: an update

    Posted by
    Posted over 2 years ago
    I have to say tigger that from what I've been through(if you've had a total which I think you have) I would not have been happy had I not had RAI. My anterior neck really lit up, so go carefully. And best of luck too -Oliver.

  • Forum Post: Re: an update

    Posted by
    Posted over 2 years ago
    I like your post Barbara, this bad things knocking you offcourse and then the next bad thing, and then another(the big C) in a frank way giving you the perspective or biff to get back on course. This I find to be true and something hopeful, Bravo.

  • Forum Post: Re: an update

    Posted by
    Posted over 2 years ago
    That was very thoughtful Kazzy. I am working on the lowering issues, and the homelife/worklife wrinkles will come out well in the long run. I also think that because it's such a treatable cancer, as patients and as people we may find it easy to fit the treatable or easy aspect -to our lives, and...

  • Forum Post: Re: TESTIMONIES 12.0 - RAI - Going home and dealing with isolation

    Posted by
    Posted over 2 years ago
    My wife was very particular I kept clear for a few days after RAI. Hmmm, never mind. I don't believe she or Finn theBorder terrier would have been much affected. She has a back condition that led to suspician that she might be affected, but my understanding is that it's about developing creatures...

  • Forum Post: Re: Have I made a good decision?

    Posted by
    Posted over 2 years ago
    Hi jules. There is unofficial evidence that Chernobyl had an impact, but so too did atmospheric nuke tests in late 50's & early 60's(before they were banned). So if you were a baby in those times and possibly popped out in the garden to enjoy bit of spring sunshine - then you might be a candidate...

  • Forum Post: Re: Back on the forum!

    Posted by
    Posted over 2 years ago
    Hello Mandy, glad meds going well. The site is very slow, and I have noticed(though this might be a sympton of my computer problems recently) that when I click on the email notification it keeps telling me to join the group. So now I click on the email link and make sure that I log in name and password...

  • Forum Post: Re: Welcome

    Posted by
    Posted over 2 years ago
    Gavin, do you take your meds at night? Only reason I ask is you mentioned aches & pains etc(very tired- going to expect that ), and a bloke called Serge took his meds(thyroxin I think) at night. Found it hard to sleep, all achey etc. So someone clued him up to taking them in the morning - lo ......

  • Forum Post: Re: Welcome

    Posted by
    Posted over 2 years ago
    Don't know what happened there Gavin. My IT skills leave a lot to be desired. I was going to say your tumour was obviously a sneaky one, and quite aggressive too. Sounds like you are in good hand up at Leicester RI. I have found working very helpful to recovery(outdoors mostly like you). You aren't...

  • Forum Post: Re: RAI experience

    Posted by
    Posted over 2 years ago
    Very reassuring Barbara, and to remind that I felt next to nothing during RAI and all after effects were that sort of washed feeling - but my big scan lit up like a Christmas tree the week after. Clever medicine. ~OL

  • Forum Post: Re: Welcome

    Posted by
    Posted over 2 years ago
    Ths 'rare cancer thing' with thyroid Dean has caused some confusion for me during past year. 0.5 % for blokes is pretty rare, but I do wish my GP had said that rather than you've got a rare thyroid (cancer) condition. He must have known I'd be straight on Wikipedia and hoovering up all...

  • Forum Post: Re: Have I made a good decision?

    Posted by
    Posted over 2 years ago
    I think the scan would be the least of your worries jules?! Barbara is well right on the RAI, it's quite calm and straightforward. I found the treatment almost sublime, but I also found the post RAI scan deeply relaxing. But I did feel a bit green few days after RAI. Decisions are a way of life ...

  • Forum Post: Re: The Waiting Game

    Posted by
    Posted over 2 years ago
    Never done it Kazzy, not even steeplejacking up those long spire ladders. But I've done some very naughty things as regards 'risk-in-hindsight'. The most ooh-er was removing a giant order Tuscan 8 column and platform at Kings College Hosp Camberwell to make room for massive "Milburn"...
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