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  • Forum Post: Re: RAI on Tuesday, getting Thyrogen tomorrw. Really nervous.

    I found gardening in warm weather very positive after the RAI, and plenty of white wine. Gave me agood glow, and good company(no-one under 15) helped too. Get it out the way and on with life. Yeah~ Oliver.
  • Forum Post: Re: RAI on Tuesday, getting Thyrogen tomorrw. Really nervous.

    Hi catandkit, yes i too have become a green gingerbread man. About these needles- I can tell you I've had blood taken 3/4 times a year for 25 years. The trick I found straight from the off was to eyeball the needle going in. To know just removes the tension, and it puts the nurse/doc at a more relaxed...
  • Forum Post: Re: Update and good news!

    That's good news about getting a let-off from RAI. Of course it helps too if you planned more/some kids. RAI tends to knock that rather squarely on the head -man or woman. All the best Oliver.
  • Forum Post: Re: Head and Neck - apparently Mac don't include Thyroid

    My health authority NW London are trying to resist having TC bundled with head/neck patients, but it may happen. I find the league table of cancers an unhelpful label. TC isn't 'cancer lite' just because it has a good long term survival rate. Lower down the 'pecking order' are skin...
  • Forum Post: Re: How's everybody feeling?

    Hi Fran. At least the weather has improved, and I have felt much better. My body seems to have decided to wake up after the dreadful past year. But it doesn't sound so great for you. I wondered what it's like being, far as I can tell, the only person with a medullary diagnosis in the group? I...
  • Forum Post: Re: Head and Neck - apparently Mac don't include Thyroid

    My limited experience in TWG NWLonC/N is that the surgeons at the last meeting(3 of them out attendance of 10) made much noise in opposition to the 'reform' to bundle Thyroids in with H&N . The view was it would be disturbing to new thyroid patients(not of all us after all, thinking of Sara...
  • Forum Post: Re: Thyroid Cancer all-clear - question from a newbie

    When it comes to 'show & tell' with cancer, I do think telling is a good idea. The more of us who can mention it(okay so you don't have to be that U2 fan waving his/her flag at every arena concert from 88-95), the more accepted cancer becomes and the better profile means better services...
  • Forum Post: Re: North West London Cancer Network Thyroid Tumour Working Group.

    Thanks Kazzy, I hope it makes a difference. I do have to put a lid on my natural inclination to talk drivel, so it does give me a good framework for self-discipline. Some of the health pros are 'well hard'. But you get a really good birds-eye. Marsden gets a very high rating which you may know...
  • Forum Post: Re: Testimonies 17.0 Financial and Practical Aspects of a Thyroid Cancer diagnosis

    I always lived from week to week regarding work/money, and having cancer was/is like being hunted in a dark wood with occasional beams of sunshine filtering through the mist. I suppose in a funny way having to graft all through the treatment was a focus and distraction. Yes it was a mast to cling to...
  • Forum Post: Re: Thyroid Cancer all-clear - question from a newbie

    Hi Katthemac, sounds like you've done alright. Briefly, the problem about TC is that it always has to be monitored, for life. We get clear, but never in the clear. It's one of those cancers that doesn't get the 5 years clear label. We always get checked 6 monthly and/or 12 monthly. In a way...
  • Forum Post: North West London Cancer Network Thyroid Tumour Working Group.

    Hi everyone, I promised a Facebook mate who's getting on a bit and big in Causes that this year I would be threading a cautious path in doing something in the NHS regarding certain topics close to us and some wider issues. I put out two feelers at the start of the year. The first was to do with teaching...
  • Forum Post: Re: TESTIMONIES 4.0 - Fine Needle Aspiration and other diagnostic tests

    Hi Mandy, you sound like you're doing very well. Next time you have an edoscope(whatever it's called) up nose/down throat, ask the doc if she/he feels confident, to vaseline the tube and pass it through without the spray(tear gas eh?). Post surgery a doc(prob surgeon actually) did me like that...
  • Forum Post: Re: TESTIMONIES 11.0 - RAI - at the hospital

    Re RAI testimony. Permission to use my input is granted Barbara. Oliver(goliver4).