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  • Forum Post: Re: the youngest.....

    Posted by
    Posted over 2 years ago
    I never heard anything like it Dean. I was given the programme before I went to surgery, and straight on 200mcg Thyroxine straight after op(next day I think although I was deep in Linda Blair country- maybe you have mini head symbol for her!). Do you get access to an SCN at your hospital, as it might...

  • Forum Post: Re: Side Effects or mind games!

    Posted by
    Posted over 2 years ago
    I must say, and I mentioned long time back, Robert my nuclear med and I exchanged profound moments of the shared seriousness at the moment of 'pill launch', as though he silently explained that yes this was a heavy treatment and it would work, but the side effects were going to impact. And I...

  • Forum Post: Re: Side Effects or mind games!

    Posted by
    Posted over 2 years ago
    You sure about that permament damage to body bits & bobs from 'stable isotope'? I thought(hoped) the fact that iodine radiation exits quickly gave us a good turnaround. Buuut I see what you mean Jenny. Lithium does terrible things to you as well, even though the docs all shake their heads...

  • Forum Post: Re: the youngest.....

    Posted by
    Posted over 2 years ago
    Good for you Kimbers, and certainly TC's can affect young women (papillary being the usual tumour), so don't panic about the age issue. I'm a 49 year old man and got a papillary & a follicular(usually affecting women same age as I). Thyroid cancer is rare but very treatable, and there...

  • Forum Post: Re: New & Blue

    Posted by
    Posted over 2 years ago
    It's interesting to hear you had contact with SCNs Ellie. Kazzy had some good experiences with hers, but my hospital -St Marys Paddington can't get it together to get or share one even with Head&Neck. Looking back, even though I stiff upper lipped my way through the early times of pre-diagnosis...

  • Forum Post: Re: New & Blue

    Posted by
    Posted over 2 years ago
    Hi wooly, went through yours this time last year, and it life does improve even if we have a 'warning for life', something I actually find reassuring as we get particular focus & care. I can't add much to Kazzy & Jennys' advice, except did you get any support at your hospital...

  • Forum Post: Re: mtc

    Posted by
    Posted over 2 years ago
    I agree with Barbara that MTC people do get a bit sidetracked by us more frequent & perhaps vocal F&P TC. But I may have missed the threads& posts from you in Testimonials, and I know that the wider TC community would like to hear your stories. The health pros for N/West CancerNetwork are...

  • Forum Post: Re: RAI waiting time post op?

    Posted by
    Posted over 2 years ago
    I went straight on T4 after the op, so not sure why you can't Dean. Quite a lot of variation between our treatments isn't there. When you do get it make sure you take it pre-brek(1 hour) in morning. Don't dose urself at night - gitters. Ol.

  • Forum Post: Re: Does it run in your family?

    Posted by
    Posted over 2 years ago
    Hi ugglybugger. If you are interested John Radcliffe Hospital in Oxford are doing Genetic Trial for TC. A Prof Tomlinson is heading it, and you can get involved via your Onco. They take couple of vials extra of blood when you have 3 or 6 monthly thyroglobulin test. It's anonomous, but you have the...

  • Forum Post: Re: TC and work

    Posted by
    Posted over 2 years ago
    Go for it Dean(not wanting to sound too much like a panting yuppie)! I swerved a bit during /after the cancer. I'd spent 15 years s/employed but largely doing work for one large institution in that capacity, and they certainly got their money's worth out of me. So it just happened that area...

  • Forum Post: Re: Who is waiting for whole body scans?

    Posted by
    Posted over 2 years ago
    Hi Barbara. It's odd the long wait anyway, or do you have a particular reason for the 4-6 month gap after RAI. I had the WBS 6 days after RAI. The result came back showing lots of anterior neck activity, but maybe you're talking about the WBS after that one(I haven't had a further big scan...

  • Forum Post: Re: Its all happened so quickly

    Posted by
    Posted over 2 years ago
    Hello Crosby, you have had tough time of it. Funny how the lump has a knack into fooling us there's nothing amiss. I was aware of mine about 5 months before my GP spotted it. But a tough thing it is having any cancer, even TC which some folk think is like falling off a log. I don't agree with...

  • Forum Post: Re: RAI on Tuesday, getting Thyrogen tomorrw. Really nervous.

    Posted by
    Posted over 2 years ago
    I found gardening in warm weather very positive after the RAI, and plenty of white wine. Gave me agood glow, and good company(no-one under 15) helped too. Get it out the way and on with life. Yeah~ Oliver.
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