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  • Forum Post: im confused

    Posted by
    Posted 6 months ago
    i had a TT in august as i was suffering from an overactive thyroid for over 3 years.tests then came back i had thyroid cancer. myself and the doctors had no idea i had it or for how long. saw my surgeon on tuesday for a post op appointment and thats when he told me what they found. he didnt tell me what...

  • Forum Post: Re: Am I winding myself up?

    Posted by
    Posted over 1 year ago
    That's good to hear Flaurenoko, and Marsden does sound excellent. I do know they have a thyroid SCN(specialist cancer nurse) who can help with loads of problems & support. If you do have contact, I'd be grateful for any feedback as we're trying to get one for St Marys Paddington(ie for...

  • Forum Post: Re: Am I winding myself up?

    Posted by
    Posted over 1 year ago
    The problem about getting any type of cancer, even we the lucky ones, is that it always will be a huge shock then becoming normal as we get used to it. I also experienced the shock, treatment and people's experinces here, and in the day to day routine; it did change my life to quite a certain amount...

  • Forum Post: Re: Am I winding myself up?

    Posted by
    Posted over 1 year ago
    From the good experience I had(by and large) the communication between different depts should be excellent, but surely depends on the hospital, NHS/NHS private or independent private. All I can say is my lot at St Marys Paddington all had Monday meeting(ward round) and I never experienced disjointed...

  • Forum Post: Jaw & Salivary gland problems

    Posted by
    Posted over 2 years ago
    Has anyone discovered any research/reliable information on the effect radioactive iodine treatment can have on the salivary glands in the medium & long term? I have had 3 lots of RAI and have a recurring swollen jaw problem - sometimes many months after treatment. I have consulted my GP, dentist...

  • Forum Post: Feeling a little lost

    Posted by
    Posted over 2 years ago
    Hey everyone, I'm just new to this community blogging. It first started back in 1999, I was 13 and diagnosed with papillary thyroid cancer so I had a TT followed with some radio-iodine. Everything was fine until I turned 22 and my consultant said my cancer had come back in the surrounding lymph...

  • Forum Post: Re: WBS iodine scan

    Posted by
    Posted over 2 years ago
    5 down to 0 is good I think Barbara. I'm too relaxed about results for my own good, but as I recall negligable trace(ie nothing) is the result you want, which I know is stating the bleeding obvious. I haven't chased up my own result which I must do. For some reason I remain a bit aloof about...

  • Forum Post: Re: Thyrogen - is it available?

    Posted by
    Posted over 2 years ago
    Thanks Kazzy. I've been away for a bit, just a break, so out of the Mac loop a bit. Trying to keep up with the NWLCN involvement plus posts here, but not doing very well. Concerning myself, I have to add that my lead consultant in US did retire so no2 is in the hot seat now. When she did a scan pre...

  • Forum Post: Re: Normality?

    Posted by
    Posted over 2 years ago
    Hello Crosby. Sounds familiar the symptons & frustration you're going through. I had TT/RAI/ T4 adjustment etc .. completed 15 months ago and still exhaustion and other vex symptons come & go. The likelihood is that life is going to be compromised to some degree from now on, but we can...

  • Forum Post: Re: New member and is this normal?

    Posted by
    Posted over 2 years ago
    Hello Nemadine, I'm Oliver(TT foll/pap cancer/RAI). If you have cancer you are entitled to an oncologist; insist on being under care of consultant oncologist. I don't know your medical set - up, but it sounds a bit sparse despite having a CNS. I am cared for by a group of specialists working...

  • Forum Post: Re: Post RAI, how long before you stop feeling 'Mongy' ?

    Posted by
    Posted over 2 years ago
    This flaring nostril situation brings to mind a small, quite possibly unrelated, sore situation - small vampire sores at each corner of the mouth. I had assumed these were cold sores but they have lingered. They are quite discrete too, almost a 2 little shadows. They suggest slight 'singeing'...

  • Forum Post: Re: Post RAI, how long before you stop feeling 'Mongy' ?

    Posted by
    Posted over 2 years ago
    Morning Dean, Iposted last night but the Mac mistress of correction whisked it away before I could post it(as it were),....and now i can't remember.... I commented on why you are still on T3 or rather why you haven'tgone on T4. I was straight on T4 after the op(soon as I'd ceased my LB impersonation...

  • Forum Post: Re: the youngest.....

    Posted by
    Posted over 2 years ago
    Just read your post Kazzmo, and despite you putting a brave face on things, your med team(s) sound a bit slack if u don't mind me saying so. If they couldn't clear you out during TT then surely your bloods would have been more emphatically screaming 'cancers back' in the years following...
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