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Forum Post: New to all this.....

Posted by Ann2013
Posted 1 month ago

Hi all! I found a lump in my neck & thought I had mumps! went to doc. He refered me to ENT - thought I had blocked salivera gland. After numerous scans - ultersound, CT, & MRI, + byopsies, they think I have Lymphoma, they found 2 abnormal lymph nodes.. Then the scans found another mass...
Forum Post: Worn out and freaking out! Hubby's DLBCL

Posted by Dusk
Posted 1 month ago

So, my hubby and I have had an extremely busy four weeks. We've had: -A surprise diagnosis of DLBCL after a routine wisdom tooth extraction. -GP appointment -A bone marrow biopsy -First blood tests -A PET/CT scan -A CT scan -Initial meeting with consultant haematologist, which...
Forum Post: Re: First R-CVP treatment today

Posted by Jannie
Posted 1 month ago

Hi there, Glad it is going well for you, and that the first step is over. I am currently having radiotherapy on my eyes, (that is all I will need for the moment, even though my lymphoma has spread to just under my ear, and in my stomach), but will eventually have to have R-CVP at some stage. Although...
Forum Post: Want your thoughts - 10min online survey

Posted by seenat
Posted 2 months ago

My name is Natalie Seebeck and I am a student at the Lo ndon Metropolitan University studying Psychology. As part of this course, I am conducting a research project on people’s beliefs towards their illness/health condition and related treatment. You have been invited to take part in this study...
Forum Post: Re: not responding well to abvd

Posted by tinnedfruit
Posted 2 months ago

ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
Forum Post: Re: I am itchy and your thoughts please.

Posted by Jannie
Posted 2 months ago

Hi Sonya - welcome to the site! Personally I find that it is best to say to anyone who asks, as my consultants have told me "it is to be seen as a chronic illness, like high blood pressure, diabetes, etc; which can be managed, at the moment I'm in remission, so thinking positive". I...
Blog Post: Week/Weak 1

Posted by trean
Posted 3 months ago

I'm one week into my treatment for Hodgkin Lymphoma and in all honesty not feeling half as bad as I expected. I'm aware that this will probably change and I won't be able to carry on "as normal" as I have been this last week, however I'll try to as long as I can. This week...
Forum Post: An introduction

Posted by Randy
Posted 3 months ago

Hi everyone. I just joined a moment ago and didn't know where to begin. It's a little depressing sometimes to think about and I thought maybe writing to others would at least get my thoughts to a point where I can deal with them. I was diagnosed with SLL in October 2012 and was determined...
Forum Post: My husband has Aggressive High Grade Diffuse B Cell Lymphoma

Posted by MegK
Posted 3 months ago

My husband has Aggressive High Grade Diffuse B Cell Lymphoma. He was diagnosed recently and has just had his first Chemo, he is very poorly having lost 4 stone in just over 2 months, being unable to walk and extremely fatigued. In October we were on a cruiser on Loch Ness where he was manning locks and...
Forum Post: Cancer patients and the feeling of 'Otherness'

Posted by AlexNTU
Posted 3 months ago

My name is Alex Reitemeier, I'm a psychology student at Nottingham Trent University doing some research into cancer. I want to find out if other people's reactions to a person's cancer shapes and changes their self-perception. I have emailed and received permission form the Macmillan...
Forum Post: Re: losing your hair

Posted by mum dianne
Posted 3 months ago

Hi Lorijade My daughter aged 21 was diagnosed with lymphoblastic leukemia in Dec. she went straight into hospital and started Chemo she was told she would lose all her hair and probably become infertile too, 3 weeks into her treatment it started falling out (she had long brown hair) but she has always...
Forum Post: Just joined but been treated for Melanoma

Posted by LouPyper
Posted 4 months ago

Hi there. I was treated for Melanoma last year but I have just joined the online community today to gain some extra support. I have had an enlarged lymph node on the left side of my neck for a long time (very near the location of my melanoma tumour) and i am getting really worried about it. It is...
Blog Post: run up to third chemo session

Posted by eclectic chicken
Posted 4 months ago

Someone sent me a note of slight concern today as I’ve not been blogging… they were worried about me being bogged down by my chemo. Actually its quite the contrary… the last few days (maybe as much as a week – lucky me)! I’ve felt pretty much normal… the...
Forum Post: HIV positive + Hodkins Lymphoma = Unlucky but optimistic :)

Posted by F1fan1980
Posted 4 months ago

Hey peeps - well, its only been 3 weeks since cancer diagnosis, so after having researched like mad "The Hodge" and ABVD I thought i would start chatting to some real people who have been there or going through the same "process" as I am. HIV was diagnosed back in 2007 and I have...
Forum Post: Living so far away

Posted by BeaLouise
Posted 4 months ago

I'm from London (and here for Christmas currently) but I am doing my degree in Australia. My dad was ill in 2012, and was called in for an op after findig a lump in his neck. They found that he has lymphoma, but my parents didn't tell me until over a month later when I came home. After my...
Blog Post: The name of the beast

Posted by eclectic chicken
Posted 4 months ago

(22 Nov, 2012) …is a diffuse large B cell lymphoma… its a non Hodgkins thing and is very aggressive (I knew enough to burst into tears with relief not fear when the consultant said it’s aggressive). I start chemotherapy on Wednesday… no doubt more on that later. ...
Blog Post: Bonfire well and truly pissed on

Posted by eclectic chicken
Posted 4 months ago

(Nov 5, 2012) Where were we? Oh yeah…. ct scan..colonoscopy…blah blah…. then back in to see the consultant who fast tracked me for all these delights..who couldn’t tell me anything as the results weren’t in. Then (to cut long story short cos i really can’t...
Blog Post: Leukaemia and Lymphoma webchat – Tuesday 21 August

Posted by Priscilla - admin
Posted 9 months ago

Next week we will be holding a webchat with Cancer Information Nurse Specialist Bill Carlin about leukaemia and lymphoma . Bill will be answering questions live in the chat room on Tuesday 21 August from 6.30-7.30pm. Join us to ask about the different types of leukaemia and lymphoma, about symptoms...
Blog Post: My experience and staying STRONG!

Posted by kath.jones83
Posted over 2 years ago

Was diagnosed with hodgkins lymphoma last tuesday and have found out its spread to my spleen and liver. As a 27 year old mother of two young children the effect this has had is overwhelming. My family are devastated and of course so am i. My head is all over the place and i'm trying so hard to...
Blog Post: Almost 2 years in remission

Posted by Jozzy
Posted over 2 years ago

Seemed ages since I last did a blog so decided to take a look, can't believe it was before Christmas, my world seems to have changed so much since then - for the better I transferred into a new and less stressful job in January with regular part time hours and have seen a big improvement in my...
Blog Post: So Far..

Posted by Kat.
Posted over 2 years ago

Basically this is the same as my profile but i just wanted to share my experience with you all and if there is anyone out there that is suffering even when in remission i will be here for you... (Non Hodgkins Lymphoma) Hi everyone I am a 39 yr old single mum to a beautiful daughter of 16 from...
Blog Post: Just Unlucky ?

Posted by gordmiester
Posted over 2 years ago

I'm 39 and living with my partner in Scotland. My father died from a Brain Tumor in his early fifties, my sister was diagnosed with breast cancer last year and is now continuing her remedial therapy after successful chemo treatment. My brother of 52, died on the 21st of Dec this year from a rare...
Blog Post: The Story So Far

Posted by ilovebaalambs
Posted over 2 years ago

I have been keeping an online blog for quite a while http://cancerandbabyequalschaos.blogspot.com/ but i thought id add the posts here too so others in the same situation can see they are not alone. I hope it helps someone out there x
Blog Post: Trudging through

Posted by Jozzy
Posted over 3 years ago

Half way through my target time for sorting work issues out and not there yet. Did ask for a 1-1 with my line manager and also for a welfare meeting to feedback what my consultant had said about symptoms I was experiencing being stress related and not a sign of lymphoma returning but didn't get an...
Blog Post: Diagnosis at last

Posted by Chas75
Posted over 3 years ago

My first ever blog on the net .I am due an appointment tomorrow at the General Hospital Southampton to explore possible treatment for my cancer which is Squamous Cell Cancer I had been told i had Lymphoma but when i spoke to the Macmillan nurse she told me my records showed different Had an oppointment...
Blog Post: monday feeling

Posted by spokey
Posted over 3 years ago

well the weekend has caught up with me well and truly today ,after little sleep for days then one huge sleep last night im still pretty shattered,on top of that pretty certain im coming down with a cold too ,still im not too down hearted had a great weekend with familly still managed ride on bike,so...

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