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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Some Good News!

    So after 9 years, numerous treatment including various chemos, radiotherapy, a trial and an Allogeneic Stem Cell Transplant, plus all the various side effects you get from all the above treatments, plus being a relapse patient, I got the news today that I am in Full Remission :) It's been hard, having...
  • Forum Post: Re: Stem cell rescue done

    Hi Stacey The bone marrow aspiration was done right in the beginning (Jan 2010) along with the biopsy of a malignant node tissue that was extracted from the abdomen. Tests showed bone marrow was free from disease (they use the term 'uninvolved') but the sample lymph node tissue showed HL....
  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...
  • Forum Post: Re: my sister

    Hi I hope the results are out and the doctors are taking good care of Chantelle. Hodgkin's Lymphoma is among the most easily treatable although one has to be patient. I have come down this 13-month journey to the last lap, my high dose chemo + stem cell rescue treatment is due next week. All going...
  • Forum Post: Re: not responding well to abvd

    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
  • Forum Post: Re: Relapse in Hodgkin's Lymphoma

    Hi Rather than wait, I would advise you to get a scan, if I am not wrong, blood tests can sometimes fail to detect a relapse. I was diagnosed with HL in Jan and after 12 doses of ABVD failed to clear the disease in Aug, I am now due for my 3rd and final cycle of MINE salvage regimen next week,...
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