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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Some Good News!

    Posted by
    Posted over 2 years ago
    So after 9 years, numerous treatment including various chemos, radiotherapy, a trial and an Allogeneic Stem Cell Transplant, plus all the various side effects you get from all the above treatments, plus being a relapse patient, I got the news today that I am in Full Remission :) It's been hard, having...

  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Posted by
    Posted over 2 years ago
    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...

  • Forum Post: In remission

    Posted by
    Posted over 3 years ago
    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...
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