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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Mumps/Tonsilitis & HL

    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...
  • Blog Post: My experience and staying STRONG!

    Was diagnosed with hodgkins lymphoma last tuesday and have found out its spread to my spleen and liver. As a 27 year old mother of two young children the effect this has had is overwhelming. My family are devastated and of course so am i. My head is all over the place and i'm trying so hard to...
  • Forum Post: Re: results after 6 months of abvd

    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...
  • Forum Post: In remission

    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...
  • Forum Post: Re: G-CSF injections, any advice appreciated

    Hi I completed 12 doses of ABVD (fortnightly) and after the disease relapsed at the end of this regimen, did 3 cycles of MINE (3-wkly) salvage chemotherapy. In my case, I have been injecting myself with 300 mcg G-CSF for 7 days, starting the 2nd day after the end of each chemo. This has maintained...
  • Forum Post: Re: worrying wife

    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
  • Forum Post: Re: not responding well to abvd

    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
  • Forum Post: Re: Relapse in Hodgkin's Lymphoma

    Hi Rather than wait, I would advise you to get a scan, if I am not wrong, blood tests can sometimes fail to detect a relapse. I was diagnosed with HL in Jan and after 12 doses of ABVD failed to clear the disease in Aug, I am now due for my 3rd and final cycle of MINE salvage regimen next week,...
  • Forum Post: Relapse in Hodgkin's Lymphoma

    I was diagnosed with Hodgkin's Lymphoma in January 2009, under went ABVD for 8 months which resulted in a complete remission in January 2010. Although it took me a while to shake the affects of the chemo, I have been in pretty good health since being told I was in remission. However for the last...
  • Forum Post: Re: Getting scared of results!

    I agree - your gut feel might well be way out - you have seen your Dad go through quite a lot and you are naturally concerned. If I could offer some points to try and think about - they helped me whenever I awaited results, so I hope they will help you too: Whilst waiting, make the most of today...
  • Forum Post: Re: one lump two lumps 3 lumps more?

    Don't let anybody fob you off. My GP was brilliant, but I was misdiagnosed by one hospital and as I was getting no better I went for a second opinion at another hospital that admitted me immediately. A huge mass was removed and i was diagnosed with HL. I had 6 months ABVD, but then had the 1st relapse...
  • Forum Post: ReACH Trial

    My oncologist has said I will be put into the ReACH study (Reduced Intensity Allografting for Chemosensitive Hodgkin Lymphoma). Just wondering if anyone has heard of it, or anyone else is going to be part of it? This is the only info I can find on it..... http://public.ukcrn.org.uk/search...
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