Donate
  • Home
  • > Community home

Browse By Tags

Tag Cloud
Tagged Content List

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: Bad Skin

    Posted by
    Posted 2 months ago
    Hi everyone, this is my first post on here and forgive me for it being a rather shallow one. I started chemo last week for hodkins lymphoma and whilst I'm dealing fairly well with the side effects; painful veins, sickness etc, the one thing I'm struggling with is really bad skin. I usually have...

  • Blog Post: Consultant.

    Posted by
    Posted 5 months ago
    After yesterdays appointment I am still upset and annoyed. Two months ago we were told I had stage 1 Hodgkins Lymphoma, but we now find it's stage 2. This means what was going to be two to three rounds of Chemo has changed to three to four. I know compared to others its not much but its an extra...

  • Blog Post: 3rd ABVD

    Posted by
    Posted 6 months ago
    I had my third ABVD on Monday (12/11/12) they had trouble getting a vein again but that's not unusual the nurse said. I'm still getting really bad heartburn or acid reflux. I'm taking Ranetedine and Gaviscon but its still there grrr! My taste buds are all over the place too, it's that...

  • Forum Post: Re: 16 - 24 and living with cancer? Introduce yourself here

    Posted by
    Posted 6 months ago
    I am Hassan Shahzad 18 at the moment. Diagnosed of relapsed Hodgkins Lymphoma.. In treatment at RMH sutton. My Hodgkins Lymphoma was diagnosed on 27/4/2010, just two days before my 16th birthday in Shaukat Khanum Hospital pakistan. I was treated with chemotherapy. The reports went negative during...

  • Blog Post: Chemo yesterday

    Posted by
    Posted 7 months ago
    Well that wasn't so bad.... Didn't realise how long it would take even though people had said, it always seems longer when it's you sat there lol All went through with no issues. I was sitting next to a guy who had Hodgkins as well but was back after being clear for 4 years. ...

  • Blog Post: Dates received

    Posted by
    Posted 7 months ago
    Well I now have the date for my 1st lot of ABVD so things are more settled in my head. Its 3 weeks off but I can now try and work out my shifts around the regime as long as people at work dont mind swapping shifts.

  • Blog Post: Late & Rushed or was it?

    Posted by
    Posted 7 months ago
    Well is it just our clinic/centre or all of them.... We get there early as you’re asked to do only to find they are running 1hr and 10mins late. This is only the 2 nd time we have been there and its the 2 nd time we have found it running late I’m wondering now if this is the norm....

  • Blog Post: Friday through to today

    Posted by
    Posted 7 months ago
    Well Friday was the CT scan, nothing unusual there. Had one before a few years ago, same old horrible tasting stuff to drink.... The weekend just flew past, shopping and visiting family. Yesterday’s day care operation wasn’t as I expected, we turned up early as always and shown through...

  • Blog Post: Another day

    Posted by
    Posted 8 months ago
    Yesterday's tests were very straight forward and gave me a look at the day care unit I will be in on Monday. Today is a CT scan 6pm for a 7pm scan. I went on my scooter yesterday but Sue (my wife) is going to collect me so it's the bus today. It's about an hour away by bus. I'm really...

  • Forum Post: Re: Tests ongoing

    Posted by
    Posted 8 months ago
    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...

  • Forum Post: Re: Tests ongoing

    Posted by
    Posted 8 months ago
    I work in contract security on a shift basis. I work 4 days have 4 days off then do 4 nights and have 4 off. If they can sort out the treatment to start on my 1st off day then I am hopeful it will not affect my work. Next week I should know more and I will be settled in my mind a bit more I...

  • Blog Post: Sleep needed

    Posted by
    Posted 8 months ago
    I have not had a full night’s sleep since Friday, I wake at around 2am and so much going round in my head I’m not really going back to sleep. Today is my 1st day back to work after my diagnosis. Questions from everyone, I have enough of my own!! My diagnosis isn’t really complete...

  • Blog Post: Today's 1st Consultation

    Posted by
    Posted 8 months ago
    My 1 st consultation was today at 13:00 although being told briefly on the phone about my biopsy being positive for Hodgkins we were both feeing awful waiting for today’s meeting. My doctor was running late so we didn’t go in till 13:45 that’s the longest 45mins ever.. My doctor...

  • Blog Post: Numb & Fuzzy

    Posted by
    Posted 8 months ago
    I’m still at that point where I’m just numb & fuzzy about everything. I received a phone call Friday from the hospital asking me to attend an appointment Monday, I said I was working so couldn’t attend. The nurse/assistant was very insistent that I should attend but I was just...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 8 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Recurrent Hodgkin Lymphoma

    Posted by
    Posted 10 months ago
    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...

  • Forum Post: Mumps/Tonsilitis & HL

    Posted by
    Posted 10 months ago
    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Some Good News!

    Posted by
    Posted over 2 years ago
    So after 9 years, numerous treatment including various chemos, radiotherapy, a trial and an Allogeneic Stem Cell Transplant, plus all the various side effects you get from all the above treatments, plus being a relapse patient, I got the news today that I am in Full Remission :) It's been hard, having...

  • Forum Post: Re: Fpr those with a warped sense of humour WARNING- no punches pulled here

    Posted by
    Posted over 2 years ago
    Way hey! Had been pleased to see Christine back, was going to comment, but chemo brain is still at work (my excuse and I'm sticking to it) clicked back and ........welcome back LM. Oh feels as if we are gradually getting back to normal. Have missed you both and kept checking when hubby wasn't...

  • Forum Post: Just diagnosed and first chemo next week

    Posted by
    Posted over 2 years ago
    I found a lump just above my left clavicle bone in my neck and a couple of days later one came up in my right armpit. I went to the doctors and they gave me blood tests straight away and said they were checking for leukemia. However my bloods came back next day abnormal but non urgent and asked if I...

  • Forum Post: Re: Lymphoma

    Posted by
    Posted over 2 years ago
    Hi, I'm new to this site too and my symptoms sound similar to your daughters. I found a lump just above my left clavicle bone in my neck and a couple of days later one came up in my right armpit. I went to the doctors and they gave me blood tests straight away and said they were checking for leukemia...

  • Blog Post: My experience and staying STRONG!

    Posted by
    Posted over 2 years ago
    Was diagnosed with hodgkins lymphoma last tuesday and have found out its spread to my spleen and liver. As a 27 year old mother of two young children the effect this has had is overwhelming. My family are devastated and of course so am i. My head is all over the place and i'm trying so hard to...

  • Blog Post: Bone pain

    Posted by
    Posted over 4 years ago
    Hi everyone, I'm really confused at the moment. I am and have been suffering from severe pain in my ribs, shoulders, upper arms and neck for a while now. I first went to the docs with bone pain but was told it was pulled muscles, found out xmas eve 2008 that it was hodgkins lymphoma. I am now just...

  • Blog Post: Stem-cell therapy

    Posted by
    Posted over 4 years ago
    My boyfriend is about to undergo stem cell treatment for Hodgkins Lymphoma having just gone through three rounds of chemo. I was just wondering if anyone on here has been through it or had someone close to them go through it who can give me a sort of general personal heads-up as to what it's going...
Page 1 of 3 123Next 5 >