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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 3 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: Bad Skin

    Posted by
    Posted 4 months ago
    Hi everyone, this is my first post on here and forgive me for it being a rather shallow one. I started chemo last week for hodkins lymphoma and whilst I'm dealing fairly well with the side effects; painful veins, sickness etc, the one thing I'm struggling with is really bad skin. I usually have...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 9 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Re: results after 6 months of abvd

    Posted by
    Posted over 2 years ago
    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...

  • Forum Post: Re: worrying wife

    Posted by
    Posted over 3 years ago
    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted over 3 years ago
    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...

  • Forum Post: Re: Relapse in Hodgkin's Lymphoma

    Posted by
    Posted over 3 years ago
    Hi Rather than wait, I would advise you to get a scan, if I am not wrong, blood tests can sometimes fail to detect a relapse. I was diagnosed with HL in Jan and after 12 doses of ABVD failed to clear the disease in Aug, I am now due for my 3rd and final cycle of MINE salvage regimen next week,...

  • Forum Post: Re: one lump two lumps 3 lumps more?

    Posted by
    Posted over 3 years ago
    Don't let anybody fob you off. My GP was brilliant, but I was misdiagnosed by one hospital and as I was getting no better I went for a second opinion at another hospital that admitted me immediately. A huge mass was removed and i was diagnosed with HL. I had 6 months ABVD, but then had the 1st relapse...

  • Forum Post: Problems with Chemo- advice for Mum

    Posted by
    Posted over 4 years ago
    Hi, I am looking for help My son (who is 21)has Hodgkins Lymphoma,(2b) he was diagnosed on 5th December, started chemo shortly after, but now he is getting very upset on chemo days - he would not go for his 5th treatment and we had to re arrange - but when they started the chemo he became very sick...
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