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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Recurrent Hodgkin Lymphoma

    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...
  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...
  • Forum Post: Re: worrying wife

    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
  • Forum Post: Re: not responding well to abvd

    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
  • Forum Post: Relapse in Hodgkin's Lymphoma

    I was diagnosed with Hodgkin's Lymphoma in January 2009, under went ABVD for 8 months which resulted in a complete remission in January 2010. Although it took me a while to shake the affects of the chemo, I have been in pretty good health since being told I was in remission. However for the last...
  • Forum Post: Re: one lump two lumps 3 lumps more?

    Don't let anybody fob you off. My GP was brilliant, but I was misdiagnosed by one hospital and as I was getting no better I went for a second opinion at another hospital that admitted me immediately. A huge mass was removed and i was diagnosed with HL. I had 6 months ABVD, but then had the 1st relapse...
  • Forum Post: ReACH Trial

    My oncologist has said I will be put into the ReACH study (Reduced Intensity Allografting for Chemosensitive Hodgkin Lymphoma). Just wondering if anyone has heard of it, or anyone else is going to be part of it? This is the only info I can find on it..... http://public.ukcrn.org.uk/search...